Photo: Stephen Kuusisto with a dark suit jacket over his head, his face showing,  eyes rolling and “cat who ate the canary” smile.

By now my wife is sick of this image, a photo of me doing my Marty Feldman imitation taken in Iowa City around ten years ago. I tend to post it a lot. I admit this. It’s my way of saying “what hump?” (I’m of course talking about Mel Brooks and his film Young Frankenstein, and the scene where Gene Wilder as the ambitious doctor apprises Feldman as “Igor” the hunch back and says in the supercilious and jaunty manner of all physicians to all disabled people, “Perhaps I can cure that hump!?” Feldman: “What hump?”

Like Feldman I had a childhood eye problem. His derived from a thyroid condition that left him with exophthalmic bulging eyeballs. Mine was retinopathy of prematurity and severe nystagmus–I couldn’t see much and my eyes moved uncontrollably. Everyone knows if you’ve flicking, wandering eyes you’re either a crook or a comedian.

“What hump?” was my introduction to what we call nowadays “the medical model of disability.”  

When Young Frankenstein came out in 1974 I was a struggling college sophomore whose legal blindness was both a social and intellectual obstacle. The ADA was far off in the future and frankly I’d no language for my circumstances. I told people I had eye problems rather than tell them I was blind. I’ve been lucky to meet hundreds of brothers and sisters for whom disability was first a problem of language, then a matter of declaration. Closeted disability is legion.

And there I was in a dirty little theater in upstate New York when Marty Feldman hit me with satori. I saw my true self. I understood I could be joyously “Abby Normal.” 

OK. It took me years to get joyous. You don’t become Igor overnight. And yes, I still worry about what others may think of me. One imagines some parts of the super-ego are healthy. But I don’t care what strangers think of my disability. Not a whit. Your ableist, facetious, shriveled, suck the persimmons exceptionalism means nothing to me.  I even wrote a blog post about why I feel sorry for sighted people.

Marty Feldman did some artful jujitsu with his deformed eyes. I loved him for that. What a thing! And of course I was living in a provincial culture. Small town America. Middle of nowhere. No disability guides. Years away from meeting and joining the disability rights movement. Surrounded by fraternity boys and the faculty who loved them. But you see, when people show you possibilities with overt celebrations of abnormality even a kid with glasses thick as padlocks sitting in the front row of the Exchange Street Cinema, who felt like a crushed cigarette butt, who had no idea how he would “make it” in the world, well shit a brick, you change lives for the better.

I suppose I’ve now written my true teaching statement. Perhaps I should send it to the administration?





Good Morning, Mr. and Mrs. Benevolence

Purgatory, from purge: “an abrupt or violent removal of a group of people from an organization or place.”

Purgatory, in Roman Catholic doctrine: “a place or state of suffering inhabited by the souls of sinners who are expiating their sins before going to heaven.”

“Well that’s it,” said Aunt Benevolence, “the good times are over. It’s time to send the lame and the halt straight back to the dirty boulevard.”

Uncle Benevolence wasn’t so sure. He scratched his purple wen. “I don’t believe, my dear, that there IS a dirty boulevard anymore. It’s been replaced by a heated, closed to traffic, “promenade” with decent shopping.”

“Well,” said Auntie, “we’re going to have to send them somewhere. Once there’s no Medicaid to speak of, and no health insurance for the knock kneed elders and the scoliatics, etc..”

“Well I hear North Dakota is empty,” Uncle said. “It’s mostly empty, anyway.”

“How will we get them there on the cheap?”

“Everyone knows boxcars are cheap.”

They sat for a time side by side in silence.

“It was easier on the old days to just take care of people,” Auntie said after a little while.

“Yes,” said Uncle, “but they’ve gone Pagan now. You know, Horace and shit. The best days are the first to go.”

“When did they forget Jesus?” Auntie asked.

“In America?” Uncle asked.

“Yeah,” Auntie said, “you know, Christian’s bundle, noblesse oblige, shit, even just a minimal sense of national regard for appearances…”

“It was never a Christian nation,” Uncle said. “And the Devil loves a vacuum.”

Literary Dog Games You Can Play at Home


Take a poem you love and substitute “dog” for it’s main conceit. “So much depends upon a red dog, glazed with rain water, beside the white chickens…” (A dog makes more sense than a wheelbarrow, yes?) “Because I could not stop for dog, he kindly stopped for me…” (Emily Dickinson on a bright day?) Auden: “Lay your sleeping head, my dog,/Doggish on my faithless arm…”

This is just a game I have to soften certain minutes. You know those minutes, the ones without sustaining warmth. I may have fewer of these minutes as I have a guide dog who goes with me everywhere. In a soul crushing meeting I can reach down and stroke her her, right there, under the table. This is always excellent. Then I silently add a canine “canto” or a question. What if John Keats had owned a dog? I think he’d have gotten on better with the nightingale. Paraphrasing Steve Martin’s comment on the banjo—“it’s hard to be depressed when you’re playing it”—it’s hard to meander and maunder over death when you have the company of a dog. I don’t mean to say you can’t do it. But it’s harder with a Labrador than a song bird.

Though Longfellow doesn’t say it, I like to think his Hiawatha taught people to draw their dogs.

(This is a variant game, poets who’d be better with canines.) Poor Ezra Pound: “When I carefully consider the curious habits of dogs/I am compelled to conclude/That man is the superior animal./When I consider the curious habits of man/I confess, my friend, I am puzzled.”

Ezra had acquaintances only. And was a poor judge of human character. A dog could have helped. Only beaten dogs liked Mussolini. But I digress.

Swinburne would have been better if he’d written of dogs.

From a Notebook, Early 1980’s, Helsinki


I wonder what Ronald Reagan’s hair does when he’s sleeping? Does it have a traveling life like Gogol’s “nose” and if so, does it revert to a natural gray? Does it turn up wagging at a strangers door?


Pentti Saarikoski:

“Kaikki minkä valveilla

näen on kuolemaa,

kaikki minkä nukkuessani, unta.”


Everything behind us

Is death I see,

Everything slept, dream.

—Cafe Strindberg, Helsinki, coffee steam on windows…


Eyes so wild he can’t flirt. But what if flirting is boring?


Now and then I have to whisper to myself as if a train station is a library.


Dear Mother:

Again I have failed. This time in the Punjab. Please send train tickets and a little tin of biscuits with the Queen’s face on the lid.


Reagan’s “Star Wars”—like selling toasters really. He learned everything at General Electric. At an embassy party last night I saw all the young Georgetown men yapping that it’s real. Smiling, glassy eyed schmucks.


Of Spinoza and a Spruce Tree

No one reads Spinoza in my neighborhood. The elderly woman with her old dog hasn’t heard of the devaluation of sense perception as a means of acquiring knowledge. She’s never thought of a pure, emerald nest of dendrites zizzing the accidents in her head and it’s not that she’s old, or feminine, she’s not wrong headed, she just happens to trust what she sees.

I sit on an old wooden chair under the spruce tree. The eyes are not necessary for perfection of mind. And the woman who hasn’t read Spinoza walks by with carpet slippers on her feet. A thunderstorm is coming though it’s early morning.