What Became of Me

I haven’t been blogging lately. The truth is that I’ve been trying to categorize the distinctions between the rhetoric of the budget cutters in Washington and the real world scenarios that will face people with disabilities no matter what deficit reduction plan is adopted. While the American Association for People with Disabilities was quick to applaud President Obama’s declaration that he will not cut federal spending on the backs of the elderly and the disabled, the President’s plan does in fact entail cuts to programs for PWDs. While Obama’s cuts (which are still undisclosed) may be less draconian that those proposed by the GOP they are still likely to escalate a nationwide stampede toward gutting social services. Accordingly the hypothesis is that one can accept smaller penalties from one undisclosed scenario or appalling penalties from the other. In turn I’ve been silent for a week because I can’t seem to digest the meats that have been brought cold to the table.

I ask how much would it hurt the U.S. to cancel the construction of a single submarine in favor of funding adequate in home care and special education for all our citizens who have profound mental disabilities?

What matters is the proper analysis of the gulf between rhetoric and reality as it may affect real people.

In this regard I’d like more leadership from the President and the Democrats.

Why haven’t I been writing? Because I’ve been pulling out my hair.

S.K.

Break You

Head of Bacchus-Dionysus

 

By Andrea Scarpino

Poetry can break you. Its tenderness, brutality. Its moments of lyricism so beautiful you forget where you are. Who you are. Emily Dickinson said, “If I feel physically as if the top of my head were taken off, I know that is poetry.” And Robert Bly: “For this is a world in which everything is lost.”

Poetry can break you. Day after day, the blank page, thousands of words that need to be arranged in exactly the right order, exactly the right shape. Exactly the right punctuation or lack of punctuation. Thousands of words clamoring for your attention and you must choose carefully, correctly. You must choose their life. The weight of that charge insurmountable.

Poetry can break you. Hours spent sending it into the world, trying to find it good homes, kind readers, and day after day, rejection letters, silences. “Thanks, I really liked these,” one editor wrote in blue pen on my rejection slip. “This is lovely,” another wrote about my personal essay, “but too personal for our journal.” Again and again, defeat. “You can’t take it personally,” I tell my students, and in that moment, I believe. Gregory Orr: “love/ Is also a shattering.”

Poetry can break you. But then, it can put you back together. I moved across the country at 17 after my mother lost custody of my younger brother. I moved alone, no idea where I would stay, if I would finish high school. Days before I left, my favorite doctor gave me a book of poems by Mary Oliver. He read “The Journey” out loud to me while I lay in a hospital bed getting my final pain treatment: “determined to do/ the only thing you could do–/ determined to save/ the only life you could save.” That moment, that poem, saved my life. And also, Charles Simic, after my father died: “Then, I remember my shoes,/ How I have to put them on, / How bending over to tie them up/ I will look into the earth.”

And then it can put you back together. “It is either the beginning or the end/ of the world,” Carolyn Forché said, “and the choice is ourselves/ or nothing.” Poetry can break you. Again and again. Break everything you think you know into pieces. And then it will hold out its hand. “Ourselves or nothing,” it will say. And it will help you choose.

 

Poet and essayist Andrea Scarpino is a frequent contributor to POTB. You can visit her at: www.andreascarpino.com

Disabled, But Looking For Work

carrot-and-stick

 

 

If you’re a person with a disability who is presently looking for work, or if you’re like me and have been unemployed and told that you’re case is hopeless then this article in the NY Times should resonate. It’s also a reminder that President Obama’s declaration in his speech to the nation yesterday that he won’t abandon people with disabilities in the current budget cutting climate is an important call to action for liberal and progressive citizens to stand up for social programs.

  
(New York Times)

Excerpt from Inclusion Daily
April 12, 2011
BATESVILLE, ARKANSAS– [Excerpt] Christopher Howard suffers from herniated discs in his back, knee problems and hepatitis C. As a result, Social Security sends him $574 every month and will until he reaches retirement age — unless he can find a job.

Though he has been collecting disability checks for three years, Mr. Howard, who is just 36, desperately wants to work, recalling dredging for gravel rather fondly and repairing cell towers less fondly.

"It makes me feel like I am doing something," said Mr. Howard, a burly man with a honey-colored goatee. "Instead of just being a bum, pretty much."

Programs intended to steer people with more moderate disabilities back into jobs have managed to take only a small sliver of beneficiaries off the Social Security rolls.

Yet, at a time when employers are struggling to create spots for the 13.5 million people actively looking for jobs, helping people like Mr. Howard find employment — or keeping them working in the first place — is becoming increasingly important to the nation’s fiscal health.

Entire article:
Disabled, but Looking for Work

http://www.InclusionDaily.com/news/2011/red/0412a.htm

Quandary of Dynamic Diffusion

I’ve been thinking for a long time about the phenomenological space between being seen and the art of being seen. Like Foucault I believe that our smallest gestures are both performed by us and of us. People with disabilities must traverse this acculturated labyrinth with a good deal of emotional intelligence or what we like to call comic irony in the English Department.

But what interests me as I get older is the space between performing an identity and the pre-disposed cultural script, for that’s a vast space, like the distance between wearing your first pair of shoes and putting on your old man slippers. What I mean is that there’s a revery or imaginative dynamic to standing or rolling in the world that’s not sufficiently identified by performance theories no matter what we say. I think the poetics of disability is still in its infancy, but the point is clear that diversity, especially physical or neurological diversity holds enormous promise for the cultural imagination and for the imaginer. Our friend Anne Finger has written brilliantly about the tight and rich fusion between embodied strangenesses and imaginative opportunity and I urge you to read all her work but especially her recent short stories.

Sometimes when I talk about the poetics of disability people think I’m romanticizing disablement, thereby reinscribing compensatory metaphors of giftedness but this is not what I’m suggesting at all. Instead I mean to say that the conditions of diffused mentation that physical difference manifests makes possible the kinds of rich, lyric points of imagination–a circumstance that many people with disabilities know quite well.

A fine arts program that extends and explores the imaginations of physical differences is a dream I continue to hold to.

Just some thoughts on a day of high wind here in Iowa City.

S.K.

From Our Friends at Ohio State

Remember Disability Rights In April
Protests and civil disobedience forced the signing of Section 504’s implementing regulations 34 years ago this month

On September 25th of 1973 President Nixon signed Section 504 of the Rehabilitation Act. In D.C. the Department of Health Education and Welfare began writing the regulations to ensure that the civil rights objectives of Section 504 could be enforced.

On April 5, 1977, thousands of “the disabled” converged on Department of Health, Education and Welfare offices around the country to demand that the equal rights legislation Congress had passed 5 years earlier be implemented. In San Francisco they took over the HEW Office and started what became the longest sit-in occupation of a federal building in U.S. history

At 7:30 A.M. on April 28, 1977 they celebrated victory. The rules implementing Section 504 were signed by HEW Secretary Joseph A. Califano. Section 504 of the Rehabilitation Act of 1973 is a civil-rights provision. It does not provide funding for any programs or activities; rather, it is a requirement that accompanies federal funding to organizations such as schools and universities. Any organization that receives federal funds – for any purpose – must comply with section 504. Section 504 laid the ground work for the American’s With Disabilities Act of 1990 which established broad civil rights protections for individuals with disabilities. Between 1990 and 2008 the courts narrowed the protections of the ADA. Congress responded by passing the ADA Amendments Act Clarifying its intent that the ADA extend Section 504’s Federal fund dependent protections as broad civil rights for individuals with disabilities. In the past few months we have seen new regulations covering employment, commerce, public programs and government services

Justice William J. Brennan said that with Section 504

“Congress acknowledged that society’s accumulated myths and fears about disability and disease are as handicapping as are the physical limitations that flow from actual impairment.” Arline v. Nassau County, 1987

“The San Francisco 504 sit-in did not succeed because of a brilliant strategy by a few disability leaders. It succeeded because the Deaf people set up a communication system from the 4th floor windows inside the building to the plaza down below; because the Black Panther Party brought a hot dinner to all 150 participants every single night; because people from community organizing backgrounds taught us how to make collaborative decisions; because friends came and washed our hair in the janitor’s closet sink. The people doing disability rights work in the 1970s rarely agreed on policies, or even on approaches. The successes came because people viewed each other as invaluable resources working towards a common goal.” (Corbett Joan O’Toole, Ragged Edge Online October 19, 2005)

Resources
A Look Back at ‘Section 504’: San Francisco Sit-In a Defining Moment
http://www.npr.org/programs/wesun/features/2002/504/

The 25 Day Siege That Brought Us 504
http://www.independentliving.org/docs4/ervin1986.html
The Section 504 rules: More to the story
http://www.ragged-edge-mag.com/0102/0102ft6.html

A History: Disability at Ohio State
http://digitalunion.osu.edu/r2/summer06/kmetz/index.html

Disability Studies At OSU
http://disabiltystudies.osu.edu/

Supreme Court To Decide If Church School Must Follow ADA Employment Rules

Supreme Court To Decide If Church School Must Follow ADA Employment Rules
(Associated Press)
March 30, 2011

WASHINGTON, DC– [Excerpt] The Supreme Court will decide whether a teacher at a church-run school is a religious or secular worker when it comes to the Americans with Disabilities Act.

The high court on Monday agreed to hear an appeal from Hosanna-Tabor Evangelical Lutheran Church and School of Redford, Mich.

Cheryl Perich, a teacher and commissioned minister, got sick in 2004 but tried to return to work from disability leave despite being diagnosed with narcolepsy.

The school said she couldn’t return because they had hired a substitute for that year. They fired her after she showed up anyway and threatened to sue to get her job back.

Perich complained to the Equal Employment Opportunity Commission, which sued the church.

The church wanted the case thrown out. Courts have recognized a “ministerial exception” to the ADA which prevents government involvement in the employee-employer relationship between churches and ministerial employees.

Entire article:
Supreme Court to decide Redford case: Is teacher at church school a religious or secular worker?
http://www.InclusionDaily.com/news/2011/red/0330e.htm

Excerpt from Inclusion Daily.

In Lieu of Churches

By Andrea Scarpino

Paris’ Notre Dame is my favorite place in the world. I have studiously walked the church’s circumference outside and in, crossed the Seine dozens of times trying to take in the enormity of its stone walls. I have cried in the monument for those deported by France in WWII, eaten pain au chocolat sitting on a bench outside the front doors so early in the morning visitors weren’t yet allowed to enter. I have sat in a pew on Christmas Day, listened to the priests singing hymns in Latin and French, smelled the evergreen tied to each pew, the hundreds of lit candles, incense.

I love to feel small and unimportant in Notre Dame’s beauty, to stare in wonderment at its stain glass windows, wooden doors, to listen to my own footsteps, my own breath, as I walk its floors. I love to think about the hundreds of years it took to construct, the generations of workers and Parisian citizens who never saw the finished product—and revel in my luck, my privilege. In Notre Dame, I come the closest that I’ve ever come to feeling something divine, something magical. I’m not sure what it is, but it’s the closest I come to believing in something spiritual.

Usually, I have to try really hard to look contemplative when someone begins discussing religion or spirituality. I don’t know what spirituality means, in all honesty, and every time I’ve pressed people for answers, I’ve felt only dissatisfaction with their replies. In the US, I can rarely be bothered to peek inside church walls, even when traveling. There’s something so piddly about most American churches, something so beige and small and, well, human.

And that may be the heart of it, I’m beginning to realize. American churches wear their humanness on their sleeves—what with their all-purpose rooms and industrial carpeting, expansive parking lots, grape juice glasses, neon signs, AA meeting announcements. They feel like any other building on the block, their windows and walls of a scale I recognize. I don’t feel anything magical within.

I’ve been to American synagogues and felt that same humanness, and the Moroccan mosque I visited was impressive but so modern (the floors heated from underneath, the roof able to be opened and closed electronically) that it was hard for me to see it as magical. The closest I’ve felt to the magic of Notre Dame was visiting Buddhist temples in South Korean, and standing among redwood trees in Northern California. There, again, that quietness, that feeling of something special inhabiting a place, something magical I can’t quite understand. Among the redwoods, especially, I felt almost a beating heart, almost a breathing.

When I’m asked about my religious inclinations, I always stumble around for an answer. Saying I’m atheist or agnostic misses the point entirely—it’s not that I do or don’t believe in a god; I just don’t think about him. I don’t pray to a higher being, but I do talk to my father and hope he hears me, I send out wishes to the universe, thank planes for landing safely, thank the ocean for a beautiful day at the beach. And in Notre Dame, I feel something. Something magical, unable to be named. Something that makes me weep. So I guess that would be my religion, my spiritual pursuit—moments of magic. Moment when I feel the universe somehow beating inside me. When I feel small, in wonderment. When I feel the greatness of our lumbering earth.

Poet and essayist Andrea Scarpino is a frequent contributor to POTB.

The Daily News story – VIDEO: Shocking gay-bias attack

(SEE VIDEO AT BOTTOM)The victim of a gay-bias attack in the West Village spoke out Wednesday about growing violence against members of his community.Damian Furtch, 26, was pummeled early Sunday by two suspects shouting anti-gay epithets, police said.The beating was the third bias attack in the neighborhood since October."The attack against me is part of the larger issue of violence against gay and transgender people in New York City," Furtch said in a statement."This has to stop. Under no circumstance should a person be attacked for their sexual orientation."City leaders were also outraged over the hate crime. "We are sickened by this hateful attack on our streets and will not stand for it," said City Council Speaker Christine Quinn (D-Manhattan), who handed out flyers condemning the assault.Furtch said a group of men first harassed him and a friend about their bright-colored clothing while they ordered food at the McDonald's at W. Third St. and Sixth Ave."I stepped outside . . . in an effort to avoid the tension in the restaurant," Furtch said.But two of the men – believed to be between 18 and 20 years old, one with a tattoo of a cross under his left eye – followed Furtch to the sidewalk and set upon him, police said.The crime comes months after two similar attacks.In October, Frederick Giunta was busted for beating a bartender inside Julius Bar on W. 10th St.Days earlier, Matthew Francis, 21, allegedly shouted homophobic slurs and assaulted a man in the Stonewall Inn.Police ask anyone with information on the most recent attack to call the Crime Stoppers hotline, (800) 577-TIPS.jkemp@nydailynews.comAll News: http://www.nydailynews.com/news/ny_crime/2011/03/30/2011-03-30_damian_furtch_victim_of_manhattan_gaybias_attack_says_its_part_of_larger_problem.html

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