Author: stevekuusisto

I have a short essay over at Dirt and Seeds about what used to be called a “primal experience” back when people talked about the unconscious. Nowadays the unconscious has been relegated to quaint-ville and only turns up on television shows like Fringe where its a second class narrative device involving hypnosis and aliens. Sometimes I wonder what Carl Jung would think of the advent of “big pharma” and its destruction of the talking cure. Jung understood a happy life contains plenty of darkness and we better not forget it. He said:

Even a happy life cannot be without a measure of darkness, and the word happy would lose its meaning if it were not balanced by sadness. It is far better take things as they come along with patience and equanimity.

Measure, meaning, patience, equanimity. 

My early childhood–my primal moments–occurred in Helsinki, Finland in the late 1950’s when the Finns were balanced precariously between the Soviet Union and the United States. It was a dark time. They’d survived two wars with Stalin and though they hadn’t been gobbled up like Estonia, Latvia, and Lithuania, they’d lost approximately 20 % of their country to the Soviets. Worse perhaps, they’d lost out on the Allies Marshall Plan because they’d received arms from Hitler to fend off the Russians. In effect, Finland was poor. In my first memoir Planet of the Blind I tried to describe what that poverty felt like:

In Helsinki I lean close to the gray, birdlike women with ether eyes who ride the trams. Each has survived the wartime starvation, and now, in the darkest city on earth, they are riding home with their satchels, which had taken all day to fill; the stores were ill-stocked

and the lines were long. I remember their almost feral attention to the trolley’s windows at twilight. As a small boy, I climb ever closer to them, their strangeness imprinting on me an indelible image of hardship.

Even a happy life cannot be lived without a darkness–maybe more than one measure. The moment above is primal–I haven’t forgotten. Helsinki today is clean and prosperous and even her smallest children walk about the streets speaking on cell phones. There are fancy foreign restaurants on every corner. I like today’s Finnish capitol.  I always choose civic satisfaction over its opposite: abandonment. Poverty is abandonment; depression is also. But back in 1959 there was something about those women on that trolly–a depth of understanding, a wizened sorrow. 

Schopenhauer said: Each day is a little life; every waking and rising a little birth; every fresh morning a little youth; every going to rest and sleep a little death.

I like the “little Helsinki” of my darkly measured, little and early days. 

(Note: I will not make myself popular by posting this. But as Bruce Springsteen once said: “When I was growing up, there were two things that were unpopular in my house. One was me, and the other was my guitar.”

1.

Disability studies tends toward essentialist views about language. As Salman Rushdie puts it, essentialism is “the respectable child of old-fashioned exoticism. It demands that sources, forms, style, language and symbol all derive from a supposedly homogeneous and unbroken tradition. Or else…” 1 

If you want to critique the empire by using its own tools essentialism is as good as anything in the box. The social construction of normalcy fits the bill. 

2.

The engineering of normalcy is (was) (remains) real. From Frances Galton to Antonin Scalia the reflexive and reactionary assignment of physical and social value per bodies is the Lingua Franca of deterministic economies. No one has written more persuasively about this history than Lennard J. Davis. 

3.

Essentialism gives away the game too soon. By this I mean that cultures are too diverse and local to adhere to the dominance of social construction no matter how powerful this idea may be. It is far more useful to talk about the economic construction of normalcy than to imagine it as a thoroughly cultural dynamic. 

4.

Margaret Mead: “If we are to achieve a richer culture, rich in contrasting values, we must recognize the whole gamut of human potentialities, and so weave a less arbitrary social fabric, one in which each diverse human gift will find a fitting place.”

I would prefer disability studies to talk about richer culture not a falsely dominant one. 

Culture is not propaganda. It is not the panopticon. It is not a repression index. It is not a metonymy for whatever dark force you may imagine controls the puppets. Believing these things one simply gives up on people. 

“The oppressed want at any cost to resemble the oppressors.” (Paulo Freire)

By Andrea Scarpino

“It is in stillness that we save and transform the world,” Eckhart Tolle writes. 

Anthony Bogues says there are two kinds of peace, negative peace (the absence of war) and positive peace (the presence of something positive). When we think about activism of any sort, we’re often thinking in the negative: fighting to end war, racism, sexism, poverty. But we don’t often think in the positive, of what we will create in oppression’s absence. 

My poetry has often been focused on witnessing oppression, war, atrocity, our global water crisis, bodily pain. I’ve been writing toward negative peace, pointing out what is wrong with our world in the hope that understanding what’s wrong will encourage the reader to enact change. But I haven’t been writing to construct something new and positive. I haven’t been supplying an alternate vision. 

And I’m not even sure how to do such a thing. What does a constructive poetry of peace look like? How would I write it? 

And does it begin in stillness? 

Last month, the NY Times published an opinion piece on meditation that quoted Buddha as having said, “I teach one thing and one only: that is, suffering and the end of suffering.” The piece describes a study that may demonstrate meditation’s ability to increase our compassion for other people. In it, 50% of participants who had taken an 8-week meditation course gave up their seat to a woman using crutches and sighing loudly in pain—compared to only 16% of non-meditators. One of the study’s authors describes its outcome thus: “The next time you meditate, know that you’re not just benefiting yourself, you’re also benefiting your neighbors, community members and as-yet-unknown strangers by increasing the odds that you’ll feel their pain when the time comes, and act to lessen it as well.” 

To feel another’s pain and act to lessen it. Isn’t that at the heart of activism? Of poetry? 

I used to read about Buddhist monks meditating all day for peace and find myself becoming angry—how did meditation help anything? Marching in the streets, that’s what those monks should have been doing! Writing their government officials! 

But I’m beginning to realize that resistance can look like many things. Feeling another’s pain and giving her your seat. Learning stillness, growing comfortable in it. Learning interconnectivity, and thus, compassion. Learning to envision a better world—and then sharing that vision with others. Learning to write towards a positive peace. 

The farmer rakes

Straight as a ruler–

Spring onions, little cups of amber,

Carrots in rows

Like houses in London,

Egyptian beet root

Perfect as pyramids.

And Van Gogh to the side

examining the buttercups.

–Risto Rasa

Translated from the Finnish by Stephen Kuusisto

Posted with Blogsy

Trapped in lies 

Like a boy among pirates

I flip channels: 

A Jesus huckster 

Waves a bible 

Like a scalp; 

A loud man 

Claims 

He has a perfect knife;

Batteries;  

Thinning hair;

Miracle bra;

Join the Army;

“Help! I’ve fallen

And I can’t get up!”

Dog treats;

Hemorrhoids;

Insurance;

Hang gliders;

Talking toilets;

Lewis and Clark;

Vampires;

Hotel getaways;

Speed freak

Baseball;

And something 

Intricate, blistered,

Abacus of the soul–

Old men marching in parades…

“Why does a dog get sick?” writes poet Marvin Bell in a poem called “One of the Animals” and he replies the only way we know how, saying: “You tell me.” The question is both central and unanswerable as are all unfair mysteries.  Now my beloved guide dog Nira is sick and her suffering reminds me I’m one of the animals and I better not forget it. I don’t know why a dog gets sick–don’t know the purpose of my life save that I’m caring for a Yellow Labrador who has given everything for me. I am alive because she’s made the right decisions on the streets of New York. She’s watched out for me in a hundred cities. And so my job is to resist the thick, Kierkegaardian questions about suffering and fate. Why does a dog get sick? So we can be loyal. 

In my thirties I saw that if I wanted to travel and live a larger life I needed a reliable partner who would always be up for adventure, who didn’t have a conflicting appointment or a better social occasion on tap. And yes, this companion would have to be affectionate but also focused, would have to be without hysteria, would have to be capable of preventing me from stepping into harm’s way. Imagine the personals ad you could place in the Village Voice. Wanted: nearly but not totally selfless reliable life companion with enthusiasm, judgement, occasional disobedience when it’s in the interest of the partnership; able to guide blind person in strange places day and night, unflappable in fierce traffic, ability to problem solve in crises; ignores squirrels and dropped pizza slices, can handle escalators, revolving doors, subways, airplanes, helicopters, sailboats, oh, and must have cold nose, floppy ears, and possess mucho hilarity when off duty.

Nira is my third guide dog. All three have been Yellow Labs from Guiding Eyes for the Blind, one of the nation’s premier guide dog training programs located just north of New York City. My dogs have done much more than save me from cars or prevent me from falling down stairs–they’ve reminded me hourly, and often minute by minute that I must resist the seasickness of my inner life and get moving. 

I was unprepared emotionally when Nira was diagnosed with cancer. The shock of her diagnosis and the unfairness of the news caused me to swerve between tears and distraught pragmatism. I arranged to have her tumors removed right away. Action would be crucial. Her growths were removed and I learned Nira had mast cell level one–the least dangerous kind. Then her stitches tore and our vet decided slow healing with an open wound would be preferable to stitching her up again. Nira and I are united in a period of duress and inaction. Her recovery could take as much as a month. My wife and I tend to her with syringes of warm water and salve. We button her up in my old shirts. She sports an oversized plastic cone on her head. My job is to sit beside her and keep her calm. 

Our roles are now reversed. I must be the calm one alongside her. I’m trying to be still and reassuring. I lie down on the floor beside her and whisper and she wags her tail. I say whatever comes to mind. I quote Zen and the Art of Motorcycle Maintenance: “life is on the sides of the mountain and not at the top” and tell her we’re both on a splendid journey. 

My guide dog Nira is now snoring having just had her pain medication. The poor girl has a ten inch incision on her belly and lower chest and while its healing properly the whole thing is red and swollen. At night she has to wear a plastic cone on her head to prevent her from licking the staples. And despite all this she wags her tail. I marvel. 

And I marvel at the little dog, “Harley” who is solicitous of his big sister. He walks up to her and touches his nose to her face. He wants the big dog “back” so he can play tug of war. But he knows something’s up. Dogs are compassion engines. He knows. 

Yes dogs are compassion engines and people can learn a lot from them. 

Emily Dickinson said :“Dogs are better than human beings because they know but do not tell.” I have not been able to find any record of Emily’s dog. My own say many things. 

Here in my house it is quiet–a fairy tale–the prince and princess are asleep. I don’t know why I’m the privileged one who is awake. I know the television was invented to rob this moment from human beings. 

I walk about on very ordinary days and see strangers and feel tenderness and hope for them. This is the absolute truth. I feel these things though the world is a ruined carnival. 

Wind in the alders. A mourning dove. Rain on the roof. The grownups asleep. And the little dog keeps track of things at the window.

I wrote over the weekend on Facebook and on this blog about my guide dog’s surgery and was astonished by the kindness she and I received. The response belies the notion (most recently proposed in The Atlantic) that social media is deleterious to community life. The words of support mattered a great deal to me and hence to Nira Dog. (I am, after all, her translator.) 

My friend Bill Peace (known as Bad Cripple in the blogosphere) called me via the old fashioned telephone and helped me laugh–he arranged for a Mass to be said in Nira’s honor though Bill is a non-believer. Why not? 

Nira is home now and sporting a purple, wrap around compression bandage and by god she’s wagging her tail. I think Labrador Retrievers would wag their tails in Hell. 

Helen Keller said: “What we have once enjoyed deeply we can never lose. All that we love deeply becomes a part of us.” I’ve always liked this and yet I’m too edgy to fully agree. My life has been profoundly influenced by three guide dogs and I keep mementoes of the first two beside me in my study. Yes my dogs are part of me–in fact I’m alive today because of them–but we do lose, oh boy do we lose. And as the poet Lorca says: “the heart feels it is a little island in the infinite.”

When my first guide dog Corky died I managed to hold her in my arms and sing. I’d always sung to her and I knew that her last moments should be good, that I couldn’t blubber and weep before her–she needed to know that everything was okay. And I managed it. And as her spirit passed I came apart. 

I am learning. I walk with apples for the horses. I cry when I have to. I stand up and sing when it counts. 

But something in the world of grief, perhaps grief itself, turns it shoulders, and notices us. The Labrador knows to wag her tail. I stand up and sing when it counts but my dog is wiser than I am. All my dogs have been wiser. 

I’m walking around my grief the long way and hoping for the best. How is that Helen Keller? 

(USA Today)
July 22, 2013

WASHINGTON, DC– [Excerpt provided by Inclusion Daily Express] Last year I met Dan Berschinski, a retired U.S. Armycaptain, Afghanistan War veteran and a double amputee. Eight months after he was severely wounded, he visited South Africa to watch theWorld Cup. Most fans were sizing up the teams, but Dan was sizing up other questions: Would his wheelchair fit through the hotel doorway? Would the bathrooms be accessible? Would the buildings have ramps?

As Dan told me, “Those are the kinds of questions we take for granted here in America, but, unfortunately, the accessibility measures that we enjoy here simply aren’t present in many other countries.”

Too many countries haven’t done what the United States did 23 years ago this week when we passed the Americans with Disabilities Act. In too many countries, what we take for granted hasn’t been granted at all.

We need to change that — and we can. But it requires American leadership in the world so that our wounded warriors and Americans with disabilities can travel, serve, study and work anywhere in the world with the same dignity and respect they enjoy here at home.

Entire article:
John Kerry: Our disabled deserve access abroad
http://tinyurl.com/ide0722134