For Sam Pereira

We have friends in common my friend, my friend,
And once in the darkness of winter
As I was young and flighty
More alone than not
I planted my walking stick
In the drifts and said
Echoing Doc Williams
“I am lonely, best so,”
And shouted “no more friends,”
Because that’s what young men do

I’m old now and see the error
Though everyone I love
Lives down the road, down the road,
All my friends live down the road
The poem holds a door open

The American Doctor

If you’re disabled you know the doctor won’t see you now; or the doctor will see you but only after you’ve abandoned your silly wheelchair. Did you know that over 70 per cent of medical offices in the United States aren’t accessible?

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How many fingers am I holding up? They actual ask me that. After they’ve patted my guide dog.

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Somewhere in the distance, church bells, the old fashioned medicine…

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Everybody’s got something to hide except for me and my disability…

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The doctor thinks he might have a hernia but he’s not going to tell anyone. He hates the body’s insults.

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The doctor falls asleep and dreams of water wings.

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The doctor throws white stones at the moon.

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C’mon! Throw that wheelchair away! You’re not trying hard enough!

Being disabled is to be always living in a peripheral state…

Being disabled is to be always living in a peripheral state. Those who don’t experience this don’t know how unfair and unstable crippled life really is. In order to mask this the non-disabled say that access is coming “tomorrow.”

So I sing “tomorrow tomorrow the accommodations will come out tomorrow” and wait for Daddy Ableist Warbucks to come.

If you’re a disabled person you know the drill.

Cripple’s Lament

    “they say I'm alienated from reality
    as if I had the power to decide life”

                    —Sanni Purhonen

They say I’m blind and should trade my eyes
For jellyfish—or just be a coral in darkness

They say I’m nothing more than the wind enraged

For cover, in polite society they say I’m like them
But they don’t invite me to the grand reunion

They say its written someplace I’m the match end

When I was a small I carried
A dead pocket watch

I thought how one day I’d have a clean reality

They say I’m a dry season

They change their minds: I’m a rumor of tears

They talk like men drunk on silver

They say I’m a poor infinity

I’m not afraid of anything

Today, Just a Man…

“I used to be purple but now I am pink,” wrote Kenneth Koch. I used to be a disabled child but now I am a disabled man. I’ve yet to achieve pink. I guess you could say my insides are like a sea wall covered with spiny anemones. I climb it. It’s just behind my face. Somehow I never get stung.

Either/or I am darkness descending
Or giving way
So morning is clear
Today, just a man
Walking with shadows in him
And no one knows how it will be
Or if our five senses
Will ever rise

Disability and the Onion

The skin of the onion is the measure of his glory. But his skin is imperfect, a humiliation, a hundred layers of anguish. The onion is a kind of library, an archive of failures. Explore. Peel away the layers. See Aristotle waving five roses at sunrise. See Cain who goes on killing Abel. See Algebra. See the coins of Silesius. Damned if you can’t see everything. This is a sufficient way of knowing, immortal. Say whatever you want.