More Pink Men

I thought that things were going badly but now I’m not so sure.  I just heard that Donald Trump may shave his head as part of a wager with someone and heck, that’s worth getting excited about.  Why? Because then he’d be another big pink man on TV along with the cast of characters I’ve mentioned below.  In fact, I suspect that "The Donald" would in fact look a good deal like "Daddy Warbucks" if his pate was pristine and maybe even waxed.  Of course I’m a blind guy.  My visual literacy is perhaps a bit suspect.  But I have it on good authority that Trump has a big head and that accordingly there’s the potential for a genuine Warbucks look should the man lose his wager and get scalped.

I don’t know what all the fuss is about concerning Rudy Giuliani’s new wife having been married "twice" before her marriage to America’s Mayor.  She apparently "forgot" one of her husbands when she said that Rudy was her second hubby.  I don’t see why this memory lapse bothers people.  Jeez.  It’s not like she’s tried to take credit for inventing the internet or something like that.

So I’m feeling better about America because it’s entirely possible that Donald Trump will join the Big Pink Men Hall of Fame.

It doesn’t take much to lift me out of my gloom.  I mean, you know, the war, the erosion of civil liberties, the loss of global respect for our nation: all these things are easily forgotten when one can still contemplate the prospect of a very rich man making an ass of himself.  I used to watch "Columbo" for that very reason. If you remember, that was the premiss behind every episode.  I used to love Peter Falk’s criminal adversaries, all of whom were beautifully arrogant and filthy rich.  I remember one episode where Robert Culp played a particularly narcissistic doctor who had murdered his wife.  But like all running dogs of the capitalist system, he talked too much.

I’m giving "thumbs down" to a new murder/suspense thriller called "The Maiden’s Grave" by Jeffrey Deaver (who is famous for "The Bone Collector").  In his newest venture a psychopathic murderer escapes from a Kansas prison and takes a bus load of deaf girls hostage.  Although Deaver has done his homework about the deaf community and though he goes to great lengths to make deafness and deaf culture realizable to his readers, in the end his deaf characters are simply a contrivance of plot: they are unfortunately cast as being brave or timid according to their respective feelings about their deafness, a contrivance that I personally feel is quasi-ableist at best.  I was disappointed by the book because I’ve liked Deaver’s Lincoln Rhimes novels and I think that despite all his research into deafness he has fallen short of the sophisticated portrait of disability that he has offered in these other books.

But back to the big pink men issue: I wonder if all the Presidential candidates had to shave their heads who would win the election?  Rudy has an edge since he’s nearly bald.  Hilary and John Edwards have the best hair and so they’ve got the most to lose in this scenario.  John McCain already looks bald, or so I’m told.  Fred Thompson could easily be another big pink guy.

Hey, does anybody besides me think that if someone from "Law and Order" is going to run for the presidency it should really be Sam Watterson?  Just a thought.

S.K.

 

The Good Old Days

I am not astonished to see that the United States hasn’t signed the United Nations International Charter on Disability Rights, but I am of course disappointed. I will be traveling to Kenya in June and it will be interesting to be in a nation that signed the protocol and have the opportunity to explain why the United States chose not to. I look back fondly to the days when America stood for human rights around the globe. As our current President would say: "Ah, those were the good old days…"

S.K.

Continue reading “The Good Old Days”

Pink Men on Every Channel

So I was depressed. I ate a sub sandwich, you know: "Man World Prozac" and I sat down in front of the TV and did some serious channel surfing. It was the weekend. Outside the birds were bragging about their libidos and miscreant neighbors were playing with a radio controlled "all terrain vehicle" which sounded like a fiercely amplified zipper, and all I could think was "why in god’s name would someone play with a radio controlled ATV?" and then of course I knew the answer: "they didn’t have a sub sandwich; they didn’t have a TV". Or worse: they DID have those things; had "done them"; had concluded that radio controlled toys were a step up.

On TV I had some choices to make if I was planning to watch something. That’s the mind set of someone who grew up in the age of three channels: when a guy with a war limp showed up with the big box of spare tubes to fix the jiggling screen; when they had "test patterns" before seven in the morning…

I took a bite of my sub. It was a middle aged guy’s sub: turkey.

A quick survey of the TV revealed:

"The Hitler Channel" Hitler all day, all night, and forever. I wondered why the other dictators don’t have their own channels. Where’s the Augusto Pinochet channel with cameo appearances by Henry Kissinger? Note to self: must write to Cable Company.

"The Endless Cooking Show": People you wouldn’t invite to your home doing things to food. Where is the show that demonstrates how a good Welsh rarebit can be produced in seconds think even my "All Terrain Vehicle" neighbors could get excited about that.

"The Boob and Butt Makeover Info-mercial Channel": Suzanne Sommers is featured during prime time. Off hours you get more people you wouldn’t invite to your home. They are mostly women–but some men are featured too. All of them did unspeakable things at the Frat house just last year. Someone’s daddy knew someone’s daddy and now they’re parading around in lycra. Blow dried hair. And those "I never get diarrhea" smiles.

"The Terrifying Shouting Men Channel": Turns out there are lots of these channels. They are the same men in different costumes depending on the show. They are mostly white men. Big heads. Very pink. They shout about President Bush and how decent he really is; they shout about how there’s never been a basketball player like insert name here; they shout about automobiles; they shout and shout about how everything in the world that’s bad has to do with some kind of liberal conspiracy, but try as I might, I can’t find any of these liberals on my tv. Just lots of sneering and shouting pink guys. They look like overgrown infants: they shake rattles and wobble from place to place. Note to self: must suggest to one of the junior Kennedys that we need a bigger version of the Peace Corps…

"The Country Music Alimentary Canal Jamboree Channel": People singing through their noses about terrible things that seem to be happening to their "insides". Opera without plot. Sad really. Several of these people could move over to the Butt channel without strain.

"The Corporation T Shirt News Channel": Lots of graphics to package the war, complete with theme music. When CNN first did this during the first Bush’s Gulf War people were appalled by the crass commercialism of music and televised video game montages. Remember those days? It "is" funny in a dark way to see how they’re struggling with the reality principle: the war is going very badly. It’s the Pogo Principle for CNN: "We have met the enemy and they are us…" Or something like that. Now they’re bringing out Donald Trump to say that he thinks W. is the worst prez in history. No wonder the neighbors are outside with their radio toy.

I settle on the "Ancient Movie Channel" largely because people don’t talk as much. There’s silence and you can hear the hiss of the old film sound track. I like that sound of falling rain while the characters stare meaningfully at the carpet. Note to self: remember to live near water…

One last thing: In Ohio there are at least 8 religious fanatic channels available all the time. Again, no surprise:

Big pink men shouting…

Note to self: call Time Warner or WOW and tell them to rename basic cable plan "The Big Pink Men Who Remain Vaguely Infantile" Option. And in fairness to the public, they should point out that this is the only option…

Note to self: eat apple. Play with dogs. Visit website of Copper Canyon Press to read about amazing Arabic language poetry…

S.K.

Halls of Shame?

My friend and colleague, Scott Lissner, the ADA Coordinator at The Ohio State University, sent me the following excerpt and link concerning a student with autism who was so discouraged by his treatment at college that he felt compelled to share his experiences publicly.  I wish that some 17 years after the passage of the ADA that students with disabilities felt better about pursuing a higher education in the U.S. but unfortunately the story below remains all too common.  Many colleges do not see disability as being an important part of campus diversity initiatives.  This is of course ironic since disability as a condition affects one in four Americans.

Steve Kuusisto

Here is a link to a piece written by a 19-year-old CUNY student with aspergers that might be of interest http://www.wiretapmag.org/education/43008/

"As I walked home through Central Park one afternoon — having been expelled from Hunter College’s Manhattan dorms that morning — I was so emotionally drained that even the bare trees seemed vivacious by comparison. During my two months as a resident student I’d lost 15 pounds, slept maybe five hours a night, and had constant, vivid, flashbacks of my many humiliations. I spent my days as tense as a hunted animal, fearing the scornful gazes of students who shunned me like they would a person who’d committed a heinous crime. My self esteem was shattered; when enough people look at you with disgust, it’s hard not to see yourself as disgusting. As for why? The best answer I have is that, in this era of tolerance, on a campus where the mere mention of racism elicits anger, I was guilty of being different from my peers.

My most marked difference from the other students is labeled "Asperger’s Syndrome" (AS). …"

http://www.wiretapmag.org/education/43008/

Assistive Technology, World Wide

News release:

United Nations
MEDIA ADVISORY

UN FORUM TO EXAMINE HOW INFORMATION TECHNOLOGY CAN ASSIST
PERSONS WITH DISABILITIES, 26 MARCH

UNITED NATIONS, 20 March 2007 — The many ways information and communication technologies (ICT) can improve the lives of persons with disabilities will be the topic of a meeting taking place at United Nations on Monday, 26 March.

At the first Global Forum of the UN Global Initiative for Inclusive ICT, disability advocates and leading experts from around the world will come together to assess the status of accessible and inclusive technologies for persons with disabilities. As the Convention on the Rights of Persons with Disabilities opens for signature on 30 March (see http://www.un.org/esa/socdev/enable), participating corporations will showcase their latest innovations in the field of inclusive technologies.

Speakers include Laura Ruby, Director of Policy and Standards, Microsoft; Victor Tsaran, Accessibility Program Manager, Yahoo Corporation; David Dikter, Executive Director, Assistive Technology Industry Association; and Axel Leblois, the Global Initiative’s Executive Director.

Emilie McCabe, General Manager, IBM Global Public Sector, will deliver the keynote address. Prof. Peter Brecke, of Georgia Tech’s School of International Affairs , will present the Digital Inclusion Index for Disabled Persons, which measures countries’ level of inclusion from the standpoint of ICT.

“The forum will examine how best to support the development of accessible and assistive features for ICT products,” said Sarbuland Khan, Executive Coordinator of the UN Global Alliance for ICT and Development. “There are core areas of opportunities, as well as specific funding and research and development resources which industry could benefit from”.

Morning panels will examine the scope for ICT industry of developing inclusive products and services, the pervasive impact of ICT on the lives of persons with disabilities, current research to reduce accessibility gaps among common ICT products and successful applications regarding the workplace, home, media, e-government and public services.

Afternoon panels will address how to harmonize and standardize accessible and assistive technologies to make them work on a global scale, as well as the role of the public sector in fostering innovation and compliance through legislation, regulations and procurement rules.

The forum is organized by the UN Global Alliance for Technology and Development and the Boston-based Wireless Internet Institute in cooperation with the Secretariat of the Convention for the Rights of Persons with Disabilities.

For information, please visit http://www.g3ict.com/ and http://www.un-gaid.org or contact Enrica Murmura at the Global Alliance secretariat, tel: 212 963 5913, e-mail: murmura@un.org or Edoardo Bellando, Tel. (212) 963-8275, e-mail: bellando@un.org,. 

S.K.

Farewell to a Friend of Thousands

My wife Connie called me last night from New Hampshire where she’s visiting family to report that she had just read an obituary of Judge Richard Casey in the Manchester Union Leader. Connie and I knew Judge Casey from our time working together at Guiding Eyes for the Blind, in Yorktown Heights, New York. Judge Casey was both a graduate of Guiding Eyes, and a top notch Manhattan attorney when Connie and I first got to know him. He was also in those years an energetic member of the board of directors of Guiding Eyes. Dick Casey was in fact such an extraordinary attorney and public servant that President Clinton nominated him to serve as a Federal Judge in New York.

I will always know Dick Casey as the man who worked tirelessly to promote Guiding Eyes for the Blind. After going blind in mid life, Dick went forward with a dog from Guiding Eyes and found the benefits of mobility and the corresponding confidence that comes with having a professionally trained guide dog. In turn he put his considerable energy into serving the guide dog movement by serving on GEB’s board of directors and he worked tirelessly to help the guide dog school raise funds that will assure that any blind person who wants a guide dog can acquire one "free of charge".

The newspapers will talk about Dick’s extraordinary legal career which saw him presiding over several important cases and that’s appropriate of course. But I want to say in the "blogosphere" that Judge Casey’s philanthropic work on behalf of the blind will always be significant because it will go forward and benefit thousands of lives to come.

We have lost a tough guy who had a secret, soft heart, though he wouldn’t want the word to get out. Our hats are off and our prayers are for Richard Conway Casey and his family and friends.

S.K.

On Writing Nonfiction

A few weeks ago I was speaking at Grinnell College in Iowa and I read aloud from two books of my own creative nonfiction. When I was through with the dramatic part of the presentation I encouraged the students and faculty in the audience to pepper me with questions. One young man asked me if I "minded" being identified as a "disability writer".

I had to admit that I’d never thought of myself in precisely those terms. I could add that I’ve never thought of myself as "a five foot seven inch tall writer" or "a thinning hair writer" though as identity groups these might not be so bad. (I should look up the respective heights and pate conditions of the great nonfictionists throughout history. How tall exactly was Montaigne? What kind of hair did Samuel Pepys have?)

I told the student that in all honesty I don’t think there’s a distinction to be made between literary writing and what he was calling "disability" writing since in point of fact all novels for instance are essentially in some way about the body. I mentioned Hemingway’s "The Sun Also Rises" and Melville’s "Moby Dick" as two major examples of novels that are about deformity and illness. "Can you name a novel that isn’t in some way about the life of the body?" I asked him.

Continue reading “On Writing Nonfiction”

Stop on By

If you are in the Columbus area on April 5 I urge you to stop by the campus of The Ohio State University for the event described below. Mental illness is one of the most complex disabilities and I’m a admiring fan of the self-advocacy movement that today’s college and university students have been developing across the nation.

S.K.

 

Understanding and Advocating for People with Mental Illness

Short Video and Discussion led by

OSU Counseling Center and NAMIOhio

Thursday, April 5, 2007

5:15-7:30 pm

Refreshments Provided!

Room 14 in Psychology Building

If you wish to request accommodations for a disability or

have questions regarding the student chapter of NAMI,

please E-mail Lisa at carvitti.3@osu.edu for more information.

NAMI on Campus affiliates are student-run, student-led organizations providing mental health support, education, and advocacy in a university or college setting.

Their mission is to improve the lives of students who are directly or indirectly affected by mental illness, increase the awareness and mental health services on campus, and to eliminate the stigma students with mental illness face.

Check out www.namiohio.org to see how NAMI is helping Ohio.

Tap, Tap

I walk with a guide dog for the blind most of the time. Some days I travel without him. I tap the pavement with a long white stick.

Once, in Dublin, Ireland, I worked my way through the long airport and swept my cane before me and a woman grabbed me by the arm without warning.

"Where do you want to go?" she asked. She was wearing serious perfume.

"I want to go to Paris," I said.

"Oh," she said, "that’s where I am going!"

"Ah," I said, "but I don’t want to go to Paris today."

"Why not?" she asked. She was still clutching my arm.

"Because Paris is the city for restlessness," I said, "and I am not restless."

We were standing in a crowded Irish airport and for a moment we were perfectly still.

"Today," I said, "I am headed for the sea where I will become actual, sharing the form of motion."

She let me go and walked away, lost in her own body of thought.

s.K.

Welcome to the Blogosphere!

For the better part of the past twenty years Simi Linton has been one of the most influential and effective public intellectuals in the field of disability studies in the United States.  She has also been a tireless advocate for disability arts.  Her book "Claiming Disability" is a groundbreaking text in the field of disability studies and her recently published memoir,  "My Body Politic" is a captivating view of a life of engagement as a scholar and artist. Now she has entered the blogosphere and I want to urge readers to visit her site and learn more about her public workshops and her views about where things are trending in disability arts. I want to add that I’m teaching both of her books in my spring quarter graduate workshop in disability studies at The Ohio State University and I will be directing my students to her site without delay.

Welcome Simi!

Visit her blog at:

http://similinton.com/blog 

S.K.

Better yet, you can now find her on our blog roll.  "Disability Culture Watch" is her link…