Making Sense of March 31

The birds hereabouts are birding, rutting, whatever it is the birdies do when they do it. And the ones who are done with mating are building nests in the still barren trees. This morning, early, a robin who looked to be the size of a Buick walked across my lawn as if he was surveying the property. Soon perhaps, my doorbell will ring and a bird will offer to buy my house. “I’m not selling,” I’d say. And the bird would say “Sell or be occupied, it’s up to you.” “What have you done with Tippi Hendren?” By the by, did you know that birds can snarl?

 

The wildlife is healthy here in the Iowa River Valley and on this last day of March you can hear it stirking and crunking and humping. Even the nascent grass chatters in a grassy patois. Why shouldn’t it? Lucky nature, I say. Nature takes care of itself. Nature has its freedom to talk without history. That’s why it sounds so good. The red tailed hawk flying just 50 yards from my roof doesn’t care about the Eiffel Tower. He can snarl when he’s hungry. He can see a mouse on a boulder from a thousand years ago.

 

Andrew Marvell was born on this day in 1621. This has been a good day for poets and writers. All of the following were sprung on this day:

 

Marge Piercy

John Fowles

Octavio Paz

Nikolai Gogol

 

Let me also point out that Cesar Chavez was born on March 31.

 

To hell with the Eiffel Tower. That it opened on this date in history is small beans.

Tippi Hendren was not born on this day. But I’ll bet that on this date in history she was fighting off the advances of Alfred HItchcock. Poor woman. It was bad enough to be stalked by birds…

 

S.K.  

How I Spent My Birthday

 

downtown Iowa City

 

Yesterday was my b-day and I discovered much to my horror that long ago, too long for accurate memory, I’d scheduled a 9 am physical for meself. So I trudged to the doc’s office and sat in the windowless waiting room amidst truly sick people some of whom smelled of cheap cigars and stale beer and many of whom were coughing like chimney sweeps and I hunkered into meself, mannerly, withdrawn, properly so. In the examining room where I waited an additional 30 minutes in solo woolgathering I read a five year old issue of Popular Mechanics which had an article on wind mills. I think I like wind mills. I mean, I think I’m for them. I saw there in the doctor’s office that I’m rooting for the windmills.

Later I went to Prairie Lights Bookstore which recently made the news because President Barack Obama paid them a surprise visit last week and yes, he even bought some books for his kids. My friends who work there are still fair amazed and I got to hear about the President’s musings while in the store. He told Jan (the owner) that formerly one of the greatest pleasures in his life was browsing alone in a bookstore. And there he was, surrounded by cameras and reporters and security, and gawkers, and trying to pick out some books for his children. He did it with grace. Hemingway was right: “Courage is grace under pressure” and sometimes it’s just a matter of preserving the small graces. The president charmed everyone.

I see now that I’m 55 that I’m for “small graces”–that it may be the only thing to strive for. I should add “anymore” to the end of that. That’s what they do in Iowa. They say: “It’s getting so your house costs less than a tank of gas, anymore.” Or: “I could use some more bacon on my bacon, anymore.” Anymore is one of the small graces.

I went outside and watched a man in a chicken suit–a large chicken suit, a large man, all feathers white in the noon sun, watched him parade up and down clutching a sign on a stick which said “We Deliver” and I wanted to add “anymore” but decided I didn’t want to talk to the chicken so I kept moving.

I had lunch with my pal Paul Casella who teaches writing to the university’s scientists and who is, like me, an easterner who thinks Iowa City is the best place to live if you love literature and smart talk. Paul was just back from climbing Mt. Kilimanjaro. He told me that he’d seen references to “disability studies” in Tanzania and we talked about the African movement toward disability rights and the UN’s international charter on disability. We ate exceptional burritos. Anymore. Paul is on his way to Spain to address an international conference of doctors on writing. He said the doctors are urologists. I wanted to make a joke out of this but couldn’t think of one. An international conference of urologists who want to write better is inherently funny. Of course it is, anymore.

In the evening I met my wife Connie at an Iowa City restaurant called Devotay. They serve organic and “slow food” and local cuisine and we had a lovely meal and some serious laughs and perhaps indeed every day should be our birthdays, anymore?

While we were eating Connie saw a man wearing a top hat and tails dancing out on the street. Iowa City is that kind of town.

 

S.K.

Sorry I Can’t Hear You, I Have a Cruet in My Ear

 

The story that’s breaking in The New York Times that the Vatican did not defrock the late Rev. Lawrence Murphy who molested deaf boys in a Wisconsin “special school” is the latest evidence that the Catholic Church needs to be prosecuted “country by country” for it’s only through prosecution that corrupt institutions develop civil rights policies and procedures to guarantee them.

 

The full story: http://www.nytimes.com/2010/03/25/world/europe/25vatican.html?ref=todayspaper

 

It should go without saying that it’s difficult to have a disability. And it’s harder to report abuse when you can’t speak. Perhaps the church can mollify the world by bringing back “Limbo”?

 

I don’t know. I can only say that reading the Times this morning I felt, (as I often did when reading about the administration of George W. Bush) that there seems to be no bottom to the malfeasance.

 

Maybe Pope Benedict can resign and go on a speaking tour with Karl Rove. The Rove & Ratzinger Tour. Everyone do your own logo.

 

S.K. 

Scenes from the LA Marathon

By Andrea Scarpino

 

Start: Wheelchair racers are first across the starting line, then hand crank racers, elite women, elite men. Then the rest of us. Zac and I set our watches, begin a slow jog as the crowd pushes forward. As far as I can see, people run ahead of me, people run behind. The sound of tennis shoes on pavement, breath, spectators cheering on the sidelines.

Mile 2: Male runners pour into the bushes along the route, and a woman, too, stands next to a tree, moves aside her running shorts.

Mile 3: A long, steep uphill climb. I keep my head down, focus on breathing in and out to the count of three. Runners around us are stopping to walk. I’m slowing down. Then I hear taiko drums, look up. Long arms arc through the air with each drum beat, an echoing booming sound. I can’t tell my own heart from the beat of the drums. I run to the rhythm all around.

Mile 8: A group of onlookers hold a sign: “Let’s Create a Department of Peace.” When I raise my arms and cheer for them, they jump up and down, cheer back at me.

Mile 13: We’re minutes ahead of our goal pace. A woman behind us talks on the phone as she runs. Okay, I love you too. I’ve got to go. I love you. Yeah, I’ve got to go. Two barefoot runners, runners who look to be in their 70’s, runners who look to be 9 or 10. A group of Elvis impersonators pass us dressed in white jumpsuits, pushing a boom box playing Elvis songs. Thank you very much, one keeps saying as the crowd on the sidelines cheers.

Mile 15: I start to slow down, get a cramp in my side. We walk a few minutes but when we begin again, the cramp comes back. I get frustrated, tears well up in my eyes. We’re ahead of our goal pace, but I panic, begin to think I’m not going to finish after all. I’m trying to breathe into my cramp but it just keeps coming back.

Mile 16: A woman on the sideline hands out ice cubes in a square tray. I take two, eat one right away, hold the other in my hand.

Mile 17: Brentwood, a fancy French restaurant with patrons eating breakfast at outside tables, talking on their phones. I see women with designer handbags, men with Italian leather shoes. No one waves, no one even looks up to smile. This infuriates me. You could at least wave, I shout to the diners, We’re running over here. A few heads turn, someone screams a little bit. Then to Zac, Jesus Christ, rich people don’t know how to cheer. He looks at me and laughs, says, I’m glad to see you’re back.

Mile 18: I’m not having any fun, I say to Zac. What can we do to change that? Our yoga teacher always says in class, If you’re not having fun, change something. I’ve been so serious about failing, so upset the past couple of miles as my time slows, my side cramp returns. But this is only running, nothing to get so upset about. Zac starts to tell me knock knock jokes that don’t really have a punch line. I start to smile, to laugh.

Mile 20: Drag queens hula hoop on the sidelines, scream and wave and keep their hula hoops racing around their waists.

Mile 22: We’re finally at the last hill, finally entering our neighborhood, the section of the race Zac and I run every week. The cute clothing store, the coffee shop, the store with expensive yoga pants. Home turf at last.

Mile 24: The best sign of the race: “26.2 miles. Because 26.3 would be crazy.” Zac has us walk one minute for every four minutes we run. This is the only thing keeping me going. I count every breath until he says Thirty seconds left and then I start counting down from thirty.

Mile 25: Cheer alley. Team after team of high school cheerleaders line the sidelines, jump up and down with pom poms flying. Some stand on each other, others kick their legs high.

Mile 26: We only have two blocks left to run. The finish line up ahead, throngs of people on each side of the route. We can still finish strong if we kick it right now, Zac says. And we do. My legs speed up when I ask them to.

Finish: We cross the finish line and I grab for Zac’s hand. Someone gives me a bottle of water, a bag of bagels, someone wraps my shoulders in a heat blanket. I see an older woman with medals lined all the way up one arm. I walk straight to her. What a beautiful smile, she says as she puts the medal around my neck. Thank you, I say. I can’t stop saying Thank you.

Andrea Scarpino is the west coast Bureau Chief of POTB. You can visit her at:

www.andreascarpino.com

The Blood of Foreigners

A short story by Kulta Koira

“It’s no laughing matter,” he said. (A Berlitz instructor, now

openly drunk and knocking back another Finlandia.)

“It’s no laughing matter when you meet a vampire”

(This was Helsinki, a good vodka town.)

I was a visiting folklore scholar and new to the city. I’d gone to “Cosmos” reputedly the best bohemian bistro in the Baltic.

The waiter put more vodka on our table. They served it with pepper and wormwood.

“I mean,” my companion said, “how was I to know she really meant it?”

(He closed one eye and scrutinized his glass.)

“I thought the problem would be her husband—she said he was out of town but you know how that is.”

“Anyway I went home with her. I was stinking drunk and then we were in a taxi going to her place. I didn’t have any money so she asked the driver to come up and said she’d pay him in the apartment.”

“We’re waiting, standing in her living room, me and the cabbie– one of those Finns who never says a thing. And then she’s back and sweet Christ on a fuckin’ crutch she’s got blood all over her face and its dripping down her blouse.”

“I’m backing up but the driver gets in my way. It turns out he’s part of her act and he shouts in English, ‘You were going to fuck her!’ But it’s more a query—like stage dialogue if you know what I mean, and then he hits me with a karsh.”

The waiter returned with a basket of fried smelt.

“I’m from Dublin,” said Berlitz, staring at the waiter. “I can drink and I can bloody well take a bash to the noggin—but these Finns, they’re hardnosed—look—I eat my fish with a fuckin’ fork! (He turns to the waiter.) “Hey, Sibelius, show him how you eat a fish!”

The waiter, who, if he had to be compared with someone looked like James Dean with peroxide—the waiter picked up a fish by the tail and dropped it in his mouth. And then he swallowed it, bones and all.

“Next to the Finns I’m the Queen Mother!” said Berlitz, who was in point of fact eating his smelt with a fork.

“Anyway, I woke up in a closet. I crawled out and I was in her living room and the sun was coming up. I was feeling my head when I noticed that they’d taken my clothes. So I start looking. I’m still good and drunk. Crapacious. Embalmed. I had these insect eyes, you know? I could see everything at once. Newspapers on the coffee table…a view of factories through a window. Fifties era Alvar Aalto furniture but dingy. Rubber boots by the door. A black and white poster of Prague with a castle in silhouette…But I didn’t see my clothes. Just my shoes by the couch. And then I looked at my arms. They’d drawn these frigging Egyptian hieroglyphs on my arms with a magic marker. I mean Ptah, and Anubis, and these snake-like things. And then I saw they’d drawn them across my belly and down my legs.”

“Well for Christ’s sake, I thought, now I’m an art project for vampires. I went through the apartment then and sure enough they’d split. And then I realized there weren’t any clothes in the place. Not a shred of clothing. Every closet was empty. The dresser was empty. I even looked under the kitchen sink in case they’d stuffed some clothes in the trash. Nothing. Shit! I was buck naked and painted all over like the Rosetta stone—and you know—right about then I wondered what day of the week it was and I really couldn’t remember—I thought I could walk home in the nude if it wasn’t rush hour.”

“At last I found some towels. One was bloodstained. But the others were okay. They were from the “Hotel Alpina” in Obergurgul, Switzerland. I fit one around my waist and tried the apartment door. Of course it was locked from the outside.”

“What to do? I checked the phone. Thank God it was working! I thought maybe I’d call an ambulance. Why not? I was a naked foreigner having a heart attack. I thought that would be a good story. I’d tell the operator I was staying at the apartment of friends who were in the country and I would say I couldn’t remember the address and she’d have to trace the call. I’d say I needed an ambulance. They’d come and get me, break down the door. They wouldn’t care about the towel.”

“So that’s what I did. The ambulance got there in about 15 minutes. And there was a policeman who managed to get the door open with some kind of gizmo—so they didn’t have to chop it open. They were quick and what’s more they didn’t seem to notice anything unusual about a foreigner locked in an apartment and girthed in a towel with hieroglyphs all over his body. They thought I might be having a heart attack and they strapped me to a stretcher and hustled me out and slid me into the ambulance and that was it.”

”At the hospital they performed all kinds of tests. I didn’t mind. I was in a clean and curtained place. They kept me for observation. They gave me aspirin. The next morning they brought me to a young doctor. He must have been about 30 and he was thin and fair and I guessed that he’d never have to shave. He had John Lennon glasses and he looked serious. His eyes were extremely blue. ‘You haven’t had a heart attack,’ he said. ‘Your tests appear normal. There is nothing wrong with you. You can go home.’

“I started to get up and he said ‘there’s one more thing. The police would like to talk to you.’ Then he left and two detectives came in. They looked like members of the Finnish national skiing team—really tall and Nordic. ‘You have been to Egypt?’ said the first one. ‘Or maybe San Francisco?’ Then the other one said: ‘you are the fifth foreigner with hieroglyphs admitted to this hospital in the past three months.’ It was funny. Foreigners painted by the vampire woman and winding up in the hospital… Alright… But I didn’t laugh. Sometimes I try to look smart. I
didn’t know what was up. I
’m just sharp enough to know that all our falsehoods are divided—ergo, when they find out how stupid we are we’ve got nothing to fall back on. I think that’s why Mark Twain said: ‘when in doubt tell the truth.’”

“So I told them the truth. I got drunk at Urho’s Pub and went home with a woman who said her husband was out of town. I told them about the blood on her face and how I woke up in a closet and the missing clothes and Anubis all over my arms and legs.

“And then I went on. I told them I didn’t have a wife, so there was no scandal beyond having made an ass of myself. I said I didn’t feel the need to pursue matters and, well, I told them I was a man of limited imagination, didn’t like things kinky, couldn’t care less about the hieroglyphs…And then there was silence for quite awhile. I had run out of things to say. I wanted to ask them if they could loan me some clothes since I was wearing paper slippers and a hospital gown and still had to get home. Then I wondered what do they know that I don’t know?”

“The detectives spoke after a minute of silence. The woman was a self-proclaimed vampire. Her other victims were German businessmen. They too had been conked on the skull and painted with Egyptian grammar. The Germans had also seen blood on the woman’s face. I wanted to ask how they had arrived at the hospital but I knew the cops wouldn’t tell me. I had enjoyed believing I was original with my phone call and heart attack.”

“’The hieroglyphs are not known to have any semantic meaning, they are random drawings,’ said Cop Number One. “’We have to tell you that in the other cases the drawings were produced to cover the needle marks,’”

“’We will ask the doctor to come back and remove your hieroglyphs,’ said Number Two. ‘We must tell you that it’s likely that you are the victim of a crime.’”

“Blood theft! I was a victim of blood theft! In Scandinavia no less!

I was thinking what are the odds against that when the doctor came back in.”

“He scrubbed and the markings came away on his sponge: sure enough, there were needle marks all over. And I think my mouth was open. The doctor said that blood had been removed from my body in small increments—that is, they took more with each stab.”

“The doctor took off his John Lennon glasses and wiped them with a cloth. ’They took 10 ounces from you in calibrated bloodlettings,’ he said. ‘We found a high dose of Valium in your body. It appears they took the most blood from the skin around your navel—the needle mark is perforated there—the syringe was in that spot for quite some time.’”

“’It was the same with the Germans,’ said Number One. ‘We don’t know why this woman steals blood.’”

“Number Two leaned forward and said, “We’re chief detectives. The Finnish government takes a dim view of blood theft. Since Helsinki is at present the cultural capital of Europe there is also the issue of tourist confidence. This case has been given priority from the Interior Ministry.’”

“They introduced themselves. Number One was Chief Inspector Arvo Koski and his partner was Inspector Jussi Makela. They looked like brothers. Six feet plus and blond as platinum. ‘Here’s what we’d like,’ said Arvo, ‘we’d like to follow you in what the Americans call a “sting” operation.’”

“They played on my vanity. Said I was good looking, and unlike the Germans I spoke Finnish. ‘We want you to find her again,’ they said. ‘We don’t know the woman’s identity. The apartment she took you to is owned by a textile company. The company has no record of a man or woman matching the descriptions we’ve been able to obtain. She attacked her other victims in their hotel rooms.’”

“And so it came to pass that I, one James O Connell, Berlitz instructor, student of Finno-Ugrian languages, found myself in a sting. The plan was for me to hit the Helsinki nightlife with a bankroll and I’d be tailed. Koski and and Makela would never be far behind. And of course the entire country is crazy over cell phones—they’ll tell you they invented the cell phone—Nokia is a Finnish company. It’s the damndest thing, all these Scandinavians talking like mad on their cell phones—I mean it’s a nation of people who formerly never spoke more than ten words in their lives. Now they’re all fookin walkin’ around free associating to each other. It’s a fookin’ technological Haight-Ashbury around here for Christ Sake!

Every now and then Berlitz had to come up for air and a deep pull on the vodka. Then he’d signal James Dean with a snap of his fingers ending with a thumb and forefinger circle to signify mutual agreement. Then another tall vodka would appear with a dish of pickled onions.

“Vampires and spies…it’s some town for night life! Did you know there are more spies in Helsinki than in any other city in the world? It’s a hold over from the Cold War when the Soviets and the Americans each had an embassy with hundreds of employees. The Russkies and Yanks still drive around at night with their head lights off.

“On my first night out with Koski and Makela following me, I figured I’d go to “The American Bar” in the Hotel Torni—you know, a historic place. So I went there and drank Chivas and smoked a Cubano and watched the joint fill up.”

“I know 8 languages. My Da said I was destined to be a fook up , and he’s mostly right—but I can at the very least be called an international fuck up—I’m the guy you want if you need to find a lady’s dentures in a dumpster in Istanbul after a night of carousing—I can explain anything.”

“So there I was eavesdropping on two Danish secret service guys who were talking about blood. “

“It’s a race,” said Dane One. (Who looked like he was all dried out—you know, like an over the hill movie star.”

“Yes, But we’re going to find the vampire girl first,” said Da

ne Two. “I’ve got the blood right here.” He patted his suit jacket and I could see a bulge.

“Honest to God! There was a chubby Dane with a bag of bloodright there in the Hotel Torni.”

“I got up and moved to another table. I didn’t want them to think I was listening.

There were some Russians—probably agents sitting around a chess board.

Well wouldn’t you know, now it was the Russian’s turn to talk about the “blood girl”—they were vowing rather loudly to beat the Americans to the prize. I couldn’t believe it. They were just sitting there and talking so anyone could hear—assuming you spoke Russian. They said the whole thing was some kind of plot to smuggle Ebola virus into St. Petersburg.”

“I went to the Men’s Room and took a leak. There were two Finnish poets by the wash basins. I recognized them from a festival at the National Theater. They were talking about the vampire as metaphor: the theft of blood standing for class warfare and one of them said any “vampire girl” had to be working class.”

“Well, Deep Fried Jesus!” I thought. “The whole blasted city knows about this damned thing.”

“I went outside and hailed a cab. I didn’t have a plan in mind.”

“Alright,” I thought, “So it’s a small town. East meets West though inexactly, Finnish Capitalism is oddly aggressive but like all Western systems it absorbs strangers, even though that whole business is grudging. And so I was thinking like that, and thinking who really wants to drink blood, not as a metaphor for the Industrial Revolution, but for real—Christ Almighty talk about the Eucharist! Then toss in Gnostic pre-Christian, neo-Egyptian hieroglyphs—literal meaning, no jerking around with French post-structuralism—who would want to be that person?

Berlitz was eyeing a stain on the table cloth. He was far away—whether from vodka or the little cinema in his head I couldn’t tell. I knew I wouldn’t tell him I was a folklorist. I wanted him to keep going. We were the only customers left in the old Czarist restaurant. He looked up and plunged ahead.

“I told the cab driver to take me to the amusement park. Helsinki’s version of “Coney Island”—even though it was winter and the “off season”—even sensing that metaphor and semiotics were of limited use—I just thought, well what’s the closest thing to Kairos? Where would you live if you wanted to live forever in the frozen north? Where could you drink blood alone?”

“I wasn’t much of a school boy but I remembered that the Egyptians didn’t think the body was real—I mean for them the flesh was only real in the afterlife which meant you always wanted to be in a place where your blood could be close to the stars. Maybe I was just blowing it out my ass. But that’s how I remembered it.”

“Why would a blood drinker want only foreign blood? Why would she live in a universe of Egyptian grammar?”

“Because, “ I thought, for this vampire woman blood and hieroglyphs are both the same. Each is a kind of translation. Don’t ask me to explain it. I just knew somehow that I was “on to something” as the Americans say.”

“I imagined that the blood of foreigners had something to do with language. I couldn’t figure it beyond that level—it was like a math problem or something.”

“ I could see the Olympic Stadium and the rows of shops bravely lit against the winter night. I told the driver to stop at a liquor store. I knew I’d need some Koskenkorva—that precious Finn vodka that they don’t export. The vodka that beat Stalin.”

“An abandoned amusement park at night in winter in the far north is not a difficult place to break into. The stumble bums manage to find their ways under fences. Some of the poor bastards are under the roller coaster drinking anti-freeze through hollowed out loaves of bread—it’s a hard town.”

Well you can see that any man, woman, boy or girl, or any Grecian hermaphrodite would be hauled along by a story like the one that Berlitz was telling. And while I’ve been known to tell a few stretchers myself, I’ve never lied when I felt the ghost of my mother stirring my fate so I’ll come out with it. Berlitz had just finished telling me about the drunkards who strain Prestone through French bread when he up and died. I mean dead.

He snapped off like an appliance—eyes wide as saucers, with no sign of pain—he simply fell over into his smelt.

At first I thought he had merely passed out but soon enough the waiter and I saw that he was ardently dead.

Then the ambulance came and the emergency guys confirmed that he was richly, starkly, widely, crookedly done for. I mean they socked him with the paddles and injected him with a big syringe that actually looked like a “play” syringe from when you were a kid and you used to play doctor. But Berlitz was now a case for requiem and I said truthfully that I didn’t know the man.

I looked in the paper the next day for news. There was a small article in the “City” section about the death by heart attack of an Irish Berlitz instructor named James O’Connell and the paper said he was from Dublin and that he apparently had no family.

I like to think of him wandering under the frozen roller coaster deep in the arctic night searching for his blood thief under the fat northern stars.

Kairos indeed.

Not everyone gets to die the way they lived.

I was trying to decide whether O’Connell’s demise meant that he was truly Irish or Finnish when there was a knock at my door.

I didn’t answer it.

The last part of a requiem is the “Libera me Domine”—God has risen; which means of course he’ll come again.

By the way I looked it up: Arvo Koski and Jussi Makela actually exist They are genuine detectives.

It’s also true that Helsinki is still full of spies even though the city isn’t as important as it was during the Cold War. .

As for the vampire girl and her partner—I figure they’ve moved on. Helsinki has changed so much in the past couple of years. They’ve got the Hard Rock Café now and California pizza. It’s got to be very difficult to steal blood in a well lit, commercial town unless you’re in Washington or L.A.

Still, I’m glad I didn’t answer the door when it was almost spring in the far north.

Kulta Koira lives in the far north.

Highgate Cemetery, London

 

“Why are you taking us to the cemetery, Professor?”

I remember D.H. Lawrence saying: “I like to try new things so I can reject them.”

“So you can see how the Victorians pictured their place in history,” I said.

I was with 9 students from Ohio State.

Ravens were sitting atop Samuel Taylor Coleridge’s tomb.

“They buried him with a little bell, in case he should wake up and need rescuing,” I said.

“Karl Marx didn’t get a little bell, and you’ll notice there are no birds on his tomb.” I said.

“George Eliot doesn’t have any birds either, and look, her tomb is sinking. That’s because they buried her with all her books.” I said.

“How do you know her tomb is sinking if you can’t see?” asks a girl.

“Because I read,” I said.

You could hear a day laborer spading up wet earth beside a fallen stone.

 

 

S.K.

Disability and Its Discontents

I’ve borrowed the following abbreviated definitions of disability, that is, disability understood as a sequence of models—that is not a static position at all—from an entry by Deborah Kaplan, Director of the World Institute on Disability. Her full remarks can be found at The Center for an Accessible Society. The nuanced analysis of disability allows us to see that it is a variegated and polysemous construction, and can be understood to encompass: 

 

A medical model of disability which regards disability as a defect or sickness which must be cured through medical intervention;

A rehabilitation model, an offshoot of the medical model, which regards the disability as a deficiency that must be fixed by a rehabilitation professional or other helping professional; and

The disability model, under which "the problem is defined as a dominating attitude by professionals and others, inadequate support services when compared with society generally, as well as attitudinal, architectural, sensory, cognitive, and economic barriers, and the strong tendency for people to generalize about all persons with disabilities overlooking the large variations within the disability community."

 

In general terms these descriptions serve as a starting point for useful conversations about disability which ought to be understood not as a condition of bodies but as an offshoot of cultural thinking. In many cases the latter is marked by some rather old assumptions.

Most of this blog’s readers are familiar with this puzzle, many of them are, like me, living that puzzle. Many of them are alertly, day by day building lives of evident accomplishments with or in spite of disabilities; many are still misunderstood when they’re on street. “How do you know when you dog has made a poopy?” asks a woman. And one wants to say, “Well I have an advanced degree Madame.” Mostly one winces. Moreover, one says something benign: “They teach you about that at the Guide Dog School”.

Reading my friend Andrea Scarpino’s post below I was reminded (or more properly, re-reminded, and isn’t there a better word than this?) that the general public, liberal or conservative, rich or poor, educated or not, doesn’t understand disability “a wit” and that’s a great shame—especially when, as Andrea’s post shows, the incomprehension of disability is tied to very low expectations of what people with disabilities are all about.

I used to think that the problems regarding disability and the public eye had a great deal to do with the medical model and/or the rehabilitation model alluded to above. But more often now I sense a fealty or dark fidelity between the broadcast media and magazine industry, a kind of “know nothing” stance toward disabled people that reintroduces the twin dynamics of “miracle cure” and “heroic determination” as the only ways to talk about profound physical differences. And that’s a shame since most of us can’t be cured and heroism is a category of human imagination that doesn’t fit into daily life very well. And the media doesn’t like to talk about character and steadfastness and patience and hard internal work, the work that goes on inside a man or woman.

I remain convinced that Oprah Winfrey has done more damage to real people with disabilities than almost a hundred years of mediocre doctors. Her support for Jenny McCarthy with her “cure for autism” cheapness (here I’m borrowing Frank Zappa’s sense of the word) is just the latest in Oprah’s silly, uncomprehending tricked out chatter about people with disabilities. I think a show about the character of real people with real autism who by turns exemplify marvels of temperament and imagination would be worth watching.

 

Okay. That’s me. Here I am, tonight and blogging after a long day of creative work. I’m ready for some new stories and a newer media. Even doctors get what I’m talking about.

 

S.K. 

Planet of the Ignorant

cartoon dunce

 

By Andrea Scarpino

Los Angeles

I’m a pretty big fan of the Planet of the Blind blog, and include my correspondent status in my bio for readings and poem publications. In the past year that I’ve been blogging, I’ve had many people comment and ask questions about it. One person introducing me said, “I can barely read my own handwriting; I feel like I’m on the planet of the blind right now!” Another introducer had gone to the website and added some kind comments about its content.

But this weekend, my introducer riffed a bit about blindness, said that having a blog about blindness seemed a little counterintuitive. “I mean, how could the blind people read it?” he asked. Then he inexplicably said something about pornography for blind people and called me to the stage to read my poems. It was a fundraising event, and didn’t seem like the time for a lecture on assistive technology or the ways in which culture creates disability. It was supposed to be a good time, with drinks being sold at the bar, music, glamorously dressed audience members.

So when I got to the microphone, I told about the time I bought a copy of an old Playboy magazine written in Braille for $5 at the Cincinnati Public Library, how “porn is written for everyone.” Even though I can’t read Braille, I loved having the thick magazine in my apartment, loved bringing it to class to discuss with my students. Then I read my poems about death and grieving and left the stage for another reader.

But that moment sits uneasily. I believe in teachable moments, but I can’t tell if that was one: a bar with drinks being served, music in the background. I looked for my introducer after the fundraiser wrapped up to speak to him privately, but couldn’t find him anywhere. What I would have liked to say to him is that there’s a difference between physical biological limits and being seen as a having a disability, that his ignorance to the fact that people who are blind are able to surf the internet demonstrates our low disability IQ, that in truth, almost every one of us will experience some sort of disability at some point in our lives. That joking about how a person who is blind couldn’t possibly surf the internet isn’t even much of a joke, doesn’t even have much of a punch line.

Instead, I’m left preaching to the choir. I’ll play triangle. Steve, you sing baritone?

 

Andrea Scarpino is the west coast Bureau Chief of POTB. You can visit her at:

www.andreascarpino.com