Special Education and Disability Obstacles Still Quite Real: Students Still Hungry

 

    

 

I believe that Ira Sokol’s post about assistive technology for students with disabilities and the discrimination against them by school administrators is the best piece of blogging about ableism I’ve seen in some time. Sokol, whose blog is called SpedEdChange has titled his post “Beyond Disability” and in it he does a marvelous job of demonstrating how all technologies are assistive technologies (especially for people that imagine they don’t have physical problems) and in turn the bias against students reading with accommodating technology is both silly and yep, driven by moneyed interests.   

What bias, you say? You will need to read Ira’s excellent piece for a fuller treatment but here’s the deal: technologies that put people with disabilities on the educational playing field are still keenly distrusted by ableist types who imagine that some kind of cheating is going on. We don’t have to descend into a lecture about Social Darwinism but the general idea is the old canard that accommodations in the classroom may give a special ed kid an unfair advantage. Sokol does a good job of showing how the outrage against Oscar Pistorius is the same outrage directed at learning disabled children who use educational software. I have been the recipient of these discriminatory ideas all my life. Once, in graduate school a professor told me that if I needed extra time to read for his seminar I didn’t belong in his class. And the fights my mother had to undertake to get extra time for me when I took the SAT exams back in 1977 were both epic and humiliating. (Remember the dark days before the ADA?) Nowadays the rights of blind people to use AT are generally understood though the application and inclusion of that technology in classrooms is still a hard fight.

In baseball the catcher’s mitt is an accommodation. Does he have an unfair advantage? The player who is thrown out trying to score might think so. But if you think this analogy is invidious, think again. The catcher’s mitt has extra padding to absorb the velocity of thrown pitches. That’s it’s advantage. The disadvantage (as any catcher will tell you) is that the glove has no pocket. A good catcher knows how to hold the ball in the glove. A good catcher has the strongest hands of any player on the field. He has adapted to his accommodation.

     Catcher's Mitt

Going to public schools in the 1960’s my only accommodation was having people read to me. My version of the catcher’s hands was to develop a capacity to remember what I was hearing. Good for me. I did what I had to do. All kids with disabilities take what they have and use it to the best of their abilities. The ultimate ableist would say that I had a special advantage over kids who were reading the print off a page because I had extra time. I had someone read to me—once, and once only. Yipper! I had one hell of an advantage. And of course this reactionary confusion is the point. We don’t know what education means. We don’t know what individuality means. Our current system is adapted from the Victorian idea that public ed will prepare a child to work in the merchant classes. Reading, writing, and arithmetic are essential to being a shop keeper. In the years after World War II (with the advent of the G.I. Bill) a new expectation came of age in America: people from the lower classes felt that higher education was possible and within their grasp. We all know that higher education requires you to work hard. This is one of its signature qualities. Hard cerebral work will help to make a woman or man a critical thinker. But all too many educators still don’t know what the process of work—raw, tough, persistent mentation—really means.    

Imagine that!

There are many educators who still don’t know what educational work—acquisition of knowledge “means”. In large part this is because education departments at colleges and universities have often failed to imagine the educational possibilities that can be realized beyond standardization. And lest you imagine that this is a philosophical problem I would counter by saying it’s a problem of capital. One must imagine that disability is a form of hunger. One must think of food as a reasonable accommodation. One must think of food as a human right. Like my baseball analogy the comparison will appear invidious until one thinks of the environment of learning. When I use my assistive technology I am working in a different relationship to the page—think of this as my intellectual metabolism if you will. I am taking in and breaking down information according to the capacities of my body. We scarcely know what the body means when we discuss the acquisition of educational skills. I guarantee you that most education departments are not talking about it.

Denying students the proper technology and learning methods amounts to denying them food. One thinks of Paolo Freire who observed that as a child in poverty he couldn’t learn: “I didn’t understand anything because of my hunger. I wasn’t dumb. It wasn’t lack of interest. My social condition didn’t allow me to have an education. Experience showed me once again the relationship between social class and knowledge"

Concerning hunger there is much more to be said. Apart from its “tenor” as analogy, hunger, (real hunger) also disproportionately impedes students with disabilities. LD kids need proper breakfasts and then, yes they need appropriate learning tools. The latter are not guaranteed in these United States. I remember attending a school board meeting in Iowa City two years ago, when, during a discussion of budget cuts, an administrator announced that they could cut special ed teachers in the district because, “lo and behold” the administration had very reliable information suggesting there would be no special ed kids in the district next year! (Bring your own smelling salts, please.)

(In case you’re wondering, I told that administrator that he should be ashamed of himself. This in turn led to considerable eye rolling from the
school board members. Imagin
e! Being lectured by a blind man with a dog!)

The fact is that schools and even colleges are all too often incapable of seeing disability education as a human right—as an equal right. This is because all educators involved in budget decisions cannot imagine disability accommodations as being a matter of critical pedagogy.  Critical pedagogy, among other things, asks us to openly inquire about the origins and sustaining dynamics of learning structures. In other words it examines the relationship between teaching and learning. Or as “Deep Throat” would say: “Follow the money.”

It costs money to put assistive technology and special ed teachers in the mainstream classroom. It’s far easier to deride accommodations as representing an unfair advantage to LD students than it is to recognize the connections between disability and the social mechanisms that create and recreate it.

Read Ira’s post.

 

S.K.

 

White House Disability Call

White House Monthly Disability Call

In order to help keep you more informed, we are hosting monthly calls to update you on various disability issues as well as to introduce you to persons who work on disability issues in the federal government.

This month’s topic will be on the President’s budget as it relates to people with disabilities.

This call is off the record and not for press purposes.

We strongly urge and ask that you distribute this email broadly to your networks and list serves so that anyone who wants to participate and learn about the President’s budget can do so.

Our next call will be Tuesday, February 15 at 1:00 PM Eastern.

The conference call information is below.

Dial in for listeners: United States: (800) 288-8974

Title: White House Disability Call (use instead of code)

Date of Call: 02/15/2011

Start Time: 1:00 PM Eastern

For live captioning, at time of call, log onto:
http://www.fedrcc.us//Enter.aspx?EventID=1710748&CustomerID=321

If you received this email as a forward but would like to be added to the White House Disability Group email distribution list, please email sfeuerstein@who.eop.gov and provide your name, email address, city, state and organization if applicable.

Again, please distribute widely.
The White House · 1600 Pennsylvania Avenue, NW · Washington DC 20500 · 202-456-1111

Resting Up

Sleep

 

 

By Andrea Scarpino

My mother has always wanted me to rest more than I think necessary. When I was little, this led to epic battles over naps and bedtime, with me insisting even as I was clearly falling asleep that I was only closing my eyes. To cajole me into any semblance of an afternoon nap, she had to lie down in the bed with me, and even then I only agreed because I loved the quiet games we would play as she tried to keep me still for an hour or two.

As I grew up, I had many friends who would speak in glowing terms of spending a weekend or university break in bed, of longing to devote an entire Saturday just to sleep. I thought they were crazy—and still do, in all honesty. Unless I am deathly ill—and even then—sleeping through a perfectly lovely Saturday sounds to me like punishment.

Which is not to say that I’m a model of productivity, that 100% of every waking moment is spent doing something great/important/wonderful. I have wasted much more time than I would ever admit watching marathon sessions of Intervention on hulu. And 30 Rock. And (sigh) Jessica Simpson’s The Real Price of Beauty. But when I’m bored, exhausted, feeling down, need to escape, I don’t turn to sleep. I sleep because eventually, my body shuts down. Not because I want to.

This weekend, I was supposed to present at the annual conference of the Association of Writers and Writing Programs (AWP). I’ve been submitting panel proposals to AWP for years without success, but this year, I finally received an acceptance. Now that I live in Marquette, however, I have very limited airline access, and most available flights fly through Chicago. Whose airport just received 21 inches of snow. First, my Wednesday flight was cancelled and rescheduled to Thursday, then my Thursday flight was cancelled entirely. I tried to find another flight that would get me to AWP in time for my presentation, but everything was booked.

So instead of presenting this weekend, instead of wandering long rows of publishers in the book fair, instead of hearing some of the most famous writers in the US speak, I’m forced to stay home. There is nothing I can do to do to make a flight appear. When I told my mother, who had been incredibly excited about my presentation (even demanding I straighten my hair for the occasion!), her initial devastation began to lesson as she realized I could spend the weekend resting instead. Maybe that’s really what you needed, Andrea, she said. Maybe it’s better for you to have this time resting.

Almost every time I see her these days, she tells me I look tired and she’s taken to buying me various rejuvenating creams and lotions in an attempt to help me look more rested than she thinks I really am. But while I don’t foresee myself spending the weekend napping, I am beginning to think that having a little break won’t be the worst thing to happen. I do feel tired, run down. I do feel like a little rest could serve me well. Maybe I won’t even set the alarm this weekend. Maybe I’ll see what trashy marathons hulu has in store for me.

 

Poet and essayist Andrea Scarpino lives in Marquette, Michigan. She is a regular contributor to POTB. You can visit her at www.andreascarpino.com

Women Learn to Fight Stress from Home Front

brain

 

By Terri Moon Cronk
American Forces Press Service

See Full Article: Women Learn to Fight Stress from Home Front

 

WASHINGTON, Feb. 9, 2011 – During a week in which the White House pledged a vigorous, whole-of-government approach to supporting military families, 11 women worked diligently a few miles away to learn to cope with the stresses of their husbands’ multiple deployments and the post-traumatic stress that affects many of them when they return home.

Ten military wives and a fiancée met in a quiet place the week of Jan. 24 without the distractions from ringing phones, kids’ schedules and work projects. They learned coping skills through resilience training. They learned meditation, tried acupuncture, talked, laughed and cried.

The "significant others," who found out first-hand that post-traumatic stress affects entire families, came to the support group with more questions than answers. But they left armed with a battery of tools to cope with the everyday stresses of military life in a time of war.

The Significant Others Support Group is an offshoot of the Specialized Care Program their husbands completed following a diagnosis of combat stress or post-traumatic stress, or because they had difficulty readjusting to home life after war. Both programs are based on resilience and strength-building education conducted by the Defense Health Clinical Center at Walter Reed Army Medical Center here.

Navy Adm. Mike Mullen, Chairman of the Joint Chiefs of Staff, has called post-traumatic stress "the military health issue of our era." He and his wife, Deborah, are well-known advocates of taking care of the military family, taking every opportunity to make it known they want war veterans and their families to get all the help they need to cope with war’s invisible scars.

For five days, the Significant Others Support Group charter class studied family roles and relationships, how combat affects service members, how to raise children during a stressful time in a lengthy war, and how to communicate about and deal with control issues when the deployment is over. They also learned the how to take care of themselves, an often-overlooked need.

"We don’t ‘cure’ people here," said Dan Bullis, director of administration and operations at the clinical center. "It’s the start of their journey to cope with symptoms."

Because it affects the entire family, efforts to confront post-traumatic stress must be include a family care plan, he said.

"[It’s] is not a level playing field for them," Bullis said, adding that he believes the support group will become even more successful as word spreads to new attendees and sponsors.

"In a weeks’ time," he said, "12 to 14 [significant others] are equipped with tools to cope with life. It’s their lesson plan to take home so they can deal with the chronic symptoms. They’re so overwhelmed."

The idea, Bullis said, was spawned from the husbands in the Specialized Care Program who began saying, "If only my significant other could get this support." A pilot program that launched with five or six women progressed to the charter class of 11 last month, he added.

Thanks to a $35,000 donation by the nonprofit Walter Reed Society, the 11 women were brought to Walter Reed on per diem travel, housed in a nearby hotel, and attended the training and education, all expenses paid.

Designing the support group for women came from a tried-and-true approach.

"We had a lot of input through the years from service members to help their families and significant others," said Victoria Bruner, the center’s director of clinical education and training, who also is a social worker and expert in traumatic stress, with a background as a registered nurse. "Whether it’s a mother, brother, sister or adult child, we built the group on the basics of what helps people heal."

A holistic approach, Bruner said, is important in an environment that promotes comfort, healing and peacefulness.

"The [significant others] need a sense of safety to feel comfortable to tell a story, and to connect to other people so they know they’re not alone," she said. "It’s important to be in a safe environment, where people are assured their stories are honored and respected, so they can go as far as they want about their situation, or not."

Late in the morning on their final day together, Bruner conducted a session with the women, seated in a circle in a comfortable room adorned with plants, a wall quilt and subdued lighting.

"What has this week been like for you?" she asked. Answers circulated in a flurry of optimism from the participants, whose identities are not included in this article to protect their privacy.
"I feel less isolated, I made close friends," one of the women said. "We understand each other."

"I feel empowered, refreshed — a partner with my partner," another said. "I’m inspired to work as a team."

"It’s refreshing," said a third. "I learned skills to regain my energy. I feel whole again."

Bruner said the women in the support group see signs of strength in themselves to keep going — to bounce back and realize they’re not "crazy." They learn how to practice patience, be more tolerant and supportive of their military family in a balanced manner, she added.

Bruner, who lost her husband in Vietnam, said it’s critical for the women "to get the support they need, to reduce the cost of war."

Post-traumatic stress is not new –- it’s just another name for a phenomenon that’s been recognized since the Civil War. "Melancholy," "shell shock" and "battle fatigue" are among the names it’s had when it’s been observed in service members in past conflicts.

Bullis, a former Army medic who served in Vietnam, said that during and after the Gulf War deployment in 1990 and 1991, 100,000 service members complained of what became known as "Gulf War syndrome."

"It came from out of nowhere, and they had symptom

The Eucharist According to Chick-fil-A?

Jesus and Chicken

 

Then Jesus took the chicken and divided it in half and said: “Eat for this is my moral perfidy.” 

 

The ongoing Chick-fil-A flap – which has gay rights groups blasting the restaurant chain for donating food to an anti-gay marriage group – may be a fleeting controversy for a privately held company that is more accustomed to fiercely loyal patrons and generally positive press coverage.

But Lake Lambert, author of the book Spirituality Inc., says the flap may be a sign of more turbulence ahead for Chick-fil-A as it attempts to hold onto its conservative Christian business culture while expanding its chain beyond the Bible Belt.

See: http://religion.blogs.cnn.com/2011/02/04/chick-fil-a-controversy-shines-light-on-restaurants-christian-dna/

 

 

S.K.

Delta is Ready When You Are?

no_access_symbol

I too have been abused by Delta airlines. You can read my observations below this article about Carrie Salberg’s recent humiliation at the hands of Delta airlines employees.

Airline Tells Ventilator User To Get Off Plane
(Star Tribune)
February 4, 2011
MINNEAPOLIS, MINNESOTA– [Excerpt provided by Inclusion Daily Express] While her nurses were stowing the 100 pounds of medical equipment she needs to travel with, Carrie Salberg was given a startling order: Get off the plane.

Salberg, who has muscular dystrophy, was never told why she couldn’t use the ventilator she requires to breathe on the Jan. 13 flight that was supposed to carry her back home to the Twin Cities from New Orleans. In fact, just a month before the flight, Delta Air Lines said her equipment met the company’s requirements.

Salberg’s story illustrates the confusing landscape of federal regulations and airline policies that confront people with disabilities when they travel. The Air Carrier Access Act, established in 1986, prohibits discrimination against someone with disabilities during air travel, provided any necessary medical equipment is approved according to in-flight rules.

But disabled travelers are increasingly complaining about their rights being violated.

Entire article:
Airline bumps disabled traveler

http://www.startribune.com/investigators/115245289.html

 

**

I was boarding a Delta flight in Denver last month when the flight attendant stopped me at the door and told me my guide dog didn’t have a special scarf. Now you have to picture this: I was pre-boarding the plane with a dog wearing a harness that has the words “Guiding Eyes for the Blind” on it, and yes, Virginia, I even had a formal ID card for the dog. But the flight attendant was stuck in her own tape loop. “Every service dog has a scarf,” she explained. “Your dog doesn’t have a scarf!”  “Well, actually,” I said, “actually guide dogs don’t wear blue scarves. They have leather harnesses and—“ “Now don’t tell me!” she interrupted. “My uncle was blind and his dog had a blue scarf!”

Since passengers were coming down the jet way behind me I didn’t have time to explain the use of prejudicial rhetorical devices. I simply said: “I’ve flown hundreds of thousands of miles with my guide dog and no one has ever told me I needed a blue scarf to board a flight.”

“You got any paper work?” she said.

“What paper work?” I asked.

“Well we need paper work for that dog to come on this plane!”

“No one has ever asked me for paper work when boarding a flight. What are you talking about?”

“There could be somebody on this plane with dry ice. It could kill your dog!”

“So dry ice guy trumps my right to get on this plane?”

At this point a second flight attendant came from the rear of the plane and showed me my seat.

But flight attendant number one wasn’t quite done. She began complaining loudly to the gate agent. Where was the paper work? That dog can’t come on the plane without paper work. An embarrassing argument was occurring just a few feet away from me while passengers fumbled and pushed their fat luggage into the overhead bins.

At this point I piped up and said loudly that as a passenger with a guide dog I felt completely unwelcome on this flight. You could have heard a pin drop. Then flight attendant number one shouted to the gate agent: “Did you hear what he said?” I suspected that I was going to be thrown off the flight. It was touch and go. Then there was some mumbling between the agent and the attendant. And then the crisis passed. The door was closed. The flight was going to go with me aboard.

This was a Delta flight in name only insofar as the operating airline was a subcontractor. The more subcontracting there is in the commercial airline industry the more cost cutting there is in terms of staff training. Every airline passenger knows that this in turn leads to diminished service in all kinds of areas. But the situation is especially revealing for passengers who have disabilities. Insufficient training of airline employees can lead to humiliation of passengers with disabilities and yes, to outright violations of their rights.

Would it help if Delta airlines apologized to me? Maybe. But the proper thing for the industry to do is to hire seasoned travelers who have disabilities to train their employees in disability etiquette and the rules of the road.

 

S.K.

 

How to Donate to my Alma Mater: Guiding Eyes for the Blind

222_Steve_Nira

We have received the following call for support from our friend William Badger, President and CEO of Guiding Eyes for the Blind. I earnestly invite the readers of this blog to read Mr. Badger’s press release with care. The lives of visually impaired people around the nation and the world have been profoundly improved by the tremendous work of GEB. Each day I am reminded by my guide dog (as if for the first time) of the rich and sustaining strength that “is” a guide dog team. By this I do not mean merely the stamina of a blind person and his or her dog—but the love of a whole organization that has made this team possible and that cares equally for its people and its dogs. There is nothing more ardent and yes, miraculous, than this kind of communitarian work. Read on:   

 

At Guiding Eyes for the Blind, maintaining the good health and well-being of our students while they are in training is a top priority. The nurses in our Student Health Department enjoy their work and they make a difference in many ways. For example, they help diabetics with the management of their condition, assist students with their dietary requirements, and monitor the vital signs of students with hypertension or cardiac disease.

Our compassionate medical staff provides first aid and attends to any minor “bumps and lumps” that may occur while students are learning to work with their new canine guides during the intensive three-week training process. A nurse is on duty on our campus from 6:30-8:30 a.m.

and 3:30-6:00 p.m. In addition, a nurse is on call 24 hours a day to address students’ medical needs and concerns.

Another top priority is maintaining the good health and well-being of our magnificent Guiding Eyes dogs. They reside in clean, climate-controlled kennels and get plenty of exercise, stimulation and attention. We are committed to ensuring that our dogs – sometimes suffering from the same conditions and diseases as humans – receive the highest quality medical care and treatment. Our on-site veterinary hospital is top notch and we are continually seeking to enhance the facility and acquire the most advanced technology.

As far as we know, Guiding Eyes is the only service dog school in the world equipped with a veterinary MRI machine. This is a tremendous benefit to our puppies, broods and studs, as well as working and retired guides. The procedure is non-invasive and painless, with no radiation exposure. Having the unit enables our veterinary staff to provide rapid, accurate diagnosis, which leads to more thorough and effective treatment that can save lives. Before acquiring this machine there was a delay of up to two weeks in trying to schedule a veterinary MRI for one of our dogs at an outside facility, and the cost per scan was about $2,000, not including staff time and transportation.

Guiding Eyes for the Blind has been blessed for more than 50 years with generous and caring friends like you who understand our mission and support our wonderful work. Our services are provided FREE OF CHARGE to our blind students and graduates, so we rely on kind friends like you for support.

If you want to help in a special way, please consider becoming a Partner in Independence by signing up for our Sustaining Gift Program if you have not already done so. This convenient method of giving provides ongoing funding for our extraordinary programs and services.

Simply click on www.guidingeyes.org/donate <http://www.guidingeyes.org/phplist/lists/lt.php?id=YUVWC1ALVQ8MGgRaRFUAUVo%3D>

, choose “sustaining gift” for gift type, and indicate your

preference: monthly, quarterly or annually. If you prefer to sign up for our Sustaining Gift Program via your checking account instead of using a credit card, please email connections@guidingeyes.org <mailto:connections@guidingeyes.org?subject=Email from Connections Newsletter Feb 2011> and we will send you a form to complete.

As always, to make a one-time gift, please click on www.guidingeyes.org/donate <http://www.guidingeyes.org/phplist/lists/lt.php?id=YUVWC1ALVQ8MGgRaRFUAUVo%3D>

All of us at Guiding Eyes for the Blind are very grateful for your kindness and generosity.

<http://www.guidingeyes.org/phplist/lists/lt.php?id=YUVWC1ALVQ8NGgRaRFUAUVo%3D>

Sincerely,

William D. Badger, President

www.guidingeyes.org

<http://www.guidingeyes.org/phplist/lists/lt.php?id=YUVWC1ALVQ4EGgRaRFUAUVo%3D>

connections@guidingeyes.org

<mailto:connections@guidingeyes.org?subject=Email from Connections Newsletter Feb 2011>

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Senator Harkin To Mayor Bloomberg: How About Accessible Cabs For Your Taxi Competition?

New York City cab in motion

 

(Iowa Politics)
February 3, 2011
NEW YORK, NEW YORK– Senator Tom Harkin (D-IA), a longtime champion of disability rights, this week urged New York City Mayor Michael Bloomberg to select a wheelchair accessible taxi in the city’s "Taxi of Tomorrow" competition with the goal of making taxis and the city itself friendlier to people with disabilities. New York City is currently in the process of selecting a new design for their fleet of 13,000 taxis.

"I have also learned that the City is putting great emphasis on making its future taxi fleet wheelchair accessible by dramatically increasing the number of accessible vehicles from the limited 230 taxis that are accessible today," Harkin said a letter sent to Mayor Bloomberg.

"Through this process, New York can set the standard for accessibility for taxis across the nation. Indeed, New York could be the first city in the world to have a fully accessible taxi fleet. I hope you will take advantage of this opportunity to choose a Taxi of Tomorrow with a built-in wheelchair ramp system in every vehicle. Assuming that other features and elements of the competing models are roughly comparable, I urge you to select the taxi which would set the standard of accessibility and ADA compliance for the nation and the world."

Harkin has long been a champion of persons with disabilities and a leader on disability policy. In 1990, he authored the Americans with Disabilities Act, landmark legislation that protects the civil rights of more than 50 million Americans with physical and mental disabilities. He has since been one of the strongest supporters in Congress for full funding the Individuals with Disabilities Education Act (IDEA), community-based health care services and supports, and other initiatives that enable people with disabilities to live independently.

Entire press release:
U.S. Sen. Harkin: Promoting wheelchair accessible taxis for New York City

http://www.iowapolitics.com/index.iml?Article=225768