GOP Tries to Block Treaty on the Rights of Persons with Disabilities

 

Senate Majority Leader Reid has announced that he will be bringing the Convention on the Rights of Persons with Disabilities to the Senate floor tomorrow to move closer to ratification! The community must raise its voice on Tuesday!

 

Today, Senator Lee, former Senator Rick Santorum, and Michael Farris from the Home School Legal Defense Association held a press conference and falsely announced that they have the votes to defeat us. Santorum then headed to an interview with Piers Morgan to oppose the treaty as well. They continue to misrepresent U.S. ratification of the treaty – WE need to be the community force that counters this effort!

We must tell Senator Reid and the rest of the U.S. Senate that we support the CRPD as reported by the Senate Foreign Relations Committee with no additional amendments! The reservations, understandings, and declarations added to the treaty package were carefully crafted to address all the issues raised by the opposition. WE support the RUDS and NO NEW AMENDMENTS!

This is a DISABILITY TREATY . . . and the DISABILITY COMMUNITY is its voice! We need you to raise your voice! (And send this message to at least two friends to raise their voices!)

 

Please call Senator Reid and say THANK YOU for taking up CRPD. Call: (202) 224-3542

Please call your Senators with the message: Vote YES on the CRPD as reported!

Call, email, tweet, and raise their voices! Helpful links:

Contact Senators here:

http://www.senate.gov/general/contact_information/senators_cfm.cfm

 

Find Senator Twitter IDs here:

Click to access US%20Senators%20List%20of%20Twitter%20ID.pdf

 

The time has come for us all to join together to support the equal access and justice for all people with disabilities . . . your call matters . . . your voice matters . . . YOU MATTER! Let the Senate know it!

T'is the Season

By Andrea Scarpino


Tis the Season—

 

for indulgence, for batches and batches of cookies, fruit pies, for casseroles, cream-filled drinks, plates of meat, for holiday dinners, holiday parties, marathon holiday cooking sessions. 

 

And I am a vegan trying to avoid sugar and grains. 

 

My diet is the only thing that has quelled twenty-five years of pain—pain that began when I was 10 years old with Reflex Sympathetic Dystrophy, that continued even after my RSD was cured as crippling breast pain and an encyclopedia of hormonal problems otherwise unspecified. Since I was 10 years old, I’ve struggled with pain, seen specialists in six states, tried a litany of treatment protocols, exhausted every one. And then, desperate, speaking with specialists about mastectomy—removal of my breasts to remove the site of my constant pain, what seemed my only option—I came across Kris Carr.

 

February. A week at the Mayo Clinic in Minnesota. Test after test came back negative—all hormones within normal range—and yet, I was suffering through three months of daily, crippling pain in my breasts. I cried in my hotel room each night, discouraged, frustrated, overwhelmed. Midway through the week, sitting on the carpeted floor of the Barnes and Noble across from my hotel, I picked through stacks and stacks of health-related books. And there were Kris Carr’s: Crazy Sexy Diet, Crazy Sexy Cancer Survivor. A woman with dozens of cancerous tumors in her liver and lungs advocating going vegan, drinking green vegetable juices, meditating. 

 

The last day at the Mayo Clinic, the physician coordinating my visit with the breast center, gynecology, pain medicine, and internal medicine said, “We don’t know what’s going on.” The best of medicine: “We really don’t understand hormones.” I walked straight to the bookstore and bought Crazy Sexy Diet

 

Thanksgiving week: eight months without pain, the longest I have been continuously pain-free since my breast pain began, and even further back, since RSD. No meat, no dairy, no sugar, no grain: no pain. A plethora of vegetables: bright salads, freshly pressed green juices, nuts and seeds. Eight months without pain, longer than with any other treatment protocol. More than the Mayo Clinic offered.

 

But here I am, in the midst of holiday eating season, struggling with how to celebrate with friends without compromising my newly found health. I’m used to telling dinner party hosts that I’m vegetarian or vegan—but to add that I don’t eat sugar or grains? And I was raised to be gracious to a fault, never inconvenience anyone, never cause a fuss (My mother’s mantra: “No fuss”). 

 

For comparison: when I was a teenager, my mother bought a new puppy that she took everywhere. One afternoon when we returned to the car after a quick shopping trip, we found her dog had pooped in the car, stepped in his poop, and tracked it all over everything: the car seats, the dashboard, every window. The entire inside of the car was covered in dog poop. My mother quickly assessed the situation—and told me to get in the car. 

 

“Don’t make a fuss,” she said. I told her I would run back to the store and ask for paper towels. 

 

“Don’t make a fuss,” she repeated, steely eyed. “Get. In. The. Car.” 

 

And I did. And we drove home in silence, sitting on dog poop. Windows down. 

 

So here I am in the midst of holiday eating season, struggling with making a fuss, with how much to request of dinner hosts, struggling with how much food to bring before I’m seen as rude—one vegetable-based dish is a kind contribution, but three? And what if I only eat what I’ve brought? And how do I explain my dietary needs? I’m a vegan with diabetes and Celiac Disease? 

 

The truth, as best as I can parse it: my decades of debilitating breast pain and menstrual issues was caused by a combination of genes and diet, a possible genetic predisposition to pain combined with fluctuating menstrual hormones and insulin spikes from high-carbohydrate foods like bread and sugar. And add to the equation the chemical overload of our environment. Maybe. Who knows? Certainly not the dozens of specialists I’ve seen. 

 

The truth, as best as I can parse it: eating mostly vegetables has changed my health, my life, my daily experience on this planet. Thanks to Kris Carr’s book, to dramatically changing my diet, I’ve had eight months without pain. And I don’t want to go back. Which means I have to figure out ways to survive this season, to spend time with people I love without feeling like an inconvenience, to advocate for my needs without causing a fuss. And maybe to introduce some veggie-based dishes to those I love. Because eating mostly vegetables is absolutely delicious. 

 

 

Solo Trip

I remember the first time I went to Woolworth’s by myself. Like all genuine art, Woolworth’s belongs to a specific time. The smell of the oiled floors, the odor of fabrics, cheap tonics, popcorn, and fatigue. The old store, given a voice, would have sung the blues–or moaned. And there were men and women who appeared to have been sleeping, but were now moving again and some of them were simply there because it was an alternative and some of the men were veterans of the first world war and some of them had shell shock. And there was a wall of birds, little tokens of utopian dreams that no one ever bought. I always wanted to unlock the birds but there was a florid woman in charge of that department and rumor had it she’d had a lobotomy and all I knew as an eight year old was this meant there was something terrifying about her brain.  One had to keep away from her or something sinister would happen. But the five and dime could bring us good cheer with its heart shaped sunglasses, its concave mannequins, its bake light radio playing Connie Francis. Up and down the aisles I went with my calculations and visions of riches. 

Sesame Street Features Service Dog

A real service dog named Hercules will be featured in Episode 43 of Sesame Street, which will air on November 30, 2012. Hercules will be helping a new Sesame Street Muppet character named Brandies learn how to be a service dog. Brandies is a yellow Labrador retriever Muppet who is looking for a job. After unsuccessful attempts at working at a laundromat and sweeping floors, Brandies learns about being a service dog. Brandies starts training by learning how to open drawers, pick things up, and turn on light switches. After training for weeks, Brandies becomes an official service dog and meets Liliana, the person he will be helping. Liliana is a wheelchair user and Brandies helps her by picking up her bag when it drops and opening doors. The organization Canine Companions for Independence worked with Sesame Street to create this episode to increase awareness of service dogs that help people with disabilities.

Full Story: Canine Companions for Independence, Press Release, Sesame Street Episode Launches New Service Dog Muppet, Canine Companions for Independence Pressroom, available at 
http://www.cci.org/site/apps/nlnet/content2.aspx?c=cdKGIRNqEmG&b=4127877&ct=12188571

WIPO Director Pleads With Countries To Advance Treaty For Visually Impaired

(Intellectual Property Watch)
November 19, 2012

GENEVA, SWITZERLAND– [Excerpt provided by Inclusion Daily Express] Visually impaired and print-disabled persons have high expectations for the results of this week’s negotiations on copyright exceptions and limitations at the World Intellectual Property Organization, WIPO Director General Francis Gurry told the opening of a committee meeting today.

The 25th session of the WIPO Standing Committee on Copyright and Related Rights is taking place from 19-23 November. The high profile subject of this week’s meeting is a draft text of an instrument providing limitations and exceptions to copyright for blind/visually impaired persons and persons with print disabilities.

Gurry said meeting the expectations of the visually impaired community and the print disabled depends on delegates. He said he made a plea to delegates “to rise sufficiently above your national positions to see the common good that can be achieved for the international community through the conclusion of a new treaty in this area and to see the improvement that you are able to actually deliver for the visually impaired and the print disabled.”

Also on this week’s agenda are three other working documents delegates are mandated to advance: a draft treaty text on the protection of broadcasting organisations, a working document on exceptions and limitations for libraries and archives, and a working document on limitations and exceptions for educational, teaching and research institutions and persons with other disabilities.

Entire article:
WIPO Director Pleads With Countries To Advance Treaty For Visually Impaired

http://tinyurl.com/ide1119122a
Related:
Standing Committee on Copyright and Related Rights : Twenty-Fifth Session (World Intellectual Property Organization)

http://www.wipo.int/meetings/en/details.jsp?meeting_id=25024

The Devil You Know

This morning while walking I encountered a man in a business suit who was chasing his little dog up and down the street. The man was obviously in a hurry and the dog had gotten out because a child had left the gate open. Dog-chasing-man was extremely angry and emitting short testosterone driven oaths at the creature who was running in wide circles and enjoying every minute of his freedom. I of course made the mistake of trying to help. “Do you have any dog treats?” I called. “No, I don’t have any treats,” he replied, struggling to withhold the “F” bomb, for it was clear he wanted to say, “No, I don’t have any fucking treats, and as a matter of fact, and for the general good of mankind, why don’t you go fuck yourself?”

 

And then of course the devil entered the picture, for he’s never far from my thinking. Indeed in my life he’s essentially a constructive force, a solid contrarian. I suppose each of us has something like this–call it a daimon or a totem–it doesn’t really matter. Maybe your particular devil looks like Elmer Fudd. Mine is intrigued by assholes who are in extreme positions. Dog-chasing-man was especially attractive to my devil who then, (as devils always do) took control of my mouth. “Well you know,” said my happy demon, “dogs really like treats, and it’s a good idea to carry them with you.” 

 

Then the man’s dog did an unaccountable thing: he veered like an outside linebacker and ran full tilt for his home garage. Yes, there was a treat in store for the lad. I could tell that Dog-chasing-man wanted very much to give me the finger. But his little boy was standing in the driveway.