Spartacus Launches New Disability Rights Campaign On Social Media

(Ekklesia)
November 14, 2012

LONDON, ENGLAND– [Excerpt provided by Inclusion Daily Express] The ‘We are Spartacus’ network promoting disabled people’s views on welfare reform, is launching a major campaign today . . . and aims to make a big social media splash from 8am onwards.

Ekklesia, which helped promote the Spartacus report, ‘Responsible Reform: Changes to Disability Living Allowance’, by Sue Marsh, Dr Sarah Campbell and others, is pleased to back this latest initiative.

The original Spartacus report was published independently and written entirely by disabled people in January 2012, supported and endorsed by a range of NGOs, including Ekklesia, Disability Alliance, Mind, Papworth Trust and Scope.

Based on detailed examination of submissions to the DLA consultation by 532 organisations, it exposed the fact that that the coalition government’s proposed ‘reforms’ lacked both backing and credibility.

Since then the Welfare Reform Act has passed into law, despite numerous parliamentary defeats for key elements of it. Attacks on the rights, dignity, integrity and living standards of disabled people and carers have continued over the past year.

Entire press release:
Spartacus launches new disability rights campaign on social media

http://www.ekklesia.co.uk/node/17361
Related:
We are Spartacus

http://wearespartacus.org.uk
Responsible Reform: Changes to Disability Living Allowance (Ekklesia)
http://www.ekklesia.co.uk/responsiblereformDLA

The White Deer

Photo of White Deer

 

 

By Andrea Scarpino

 

 

The day after President Obama was re-elected, I walked to the cemetery, around the cemetery’s duck pond, around the reflection trails. Bon Iver’s “The Wolves” played in my headphones and I thought about the election, how many women swept into power, how the national sentiment about marriage equality seems finally to be changing. And there, in a grove of trees at the cemetery’s edge: the white deer. She was eating with three other deer, stepping carefully among tree branches and fallen brown leaves, but I saw her first: a shock of white through a line of gravestones. 

 

I took out my headphones, started moving slowly in her direction. She saw me, raised her head now and then to monitor my progress, but didn’t run away, kept eating grass and leaves. As I got closer, the other deer moved further into the trees, but she held her ground, clearly paying attention to what I was doing, but not willing to turn away. When I got as close as I thought I could, I stood still and watched her move, watched the pink in her ears, the movement of her white tail. And she watched me. 

 

The day after we re-elected the first person of color to the presidency, I listed to Bon Iver—a bastardization of “bon hiver,” “good winter” in French—and a song called “The Wolves” played in my ears, and the white deer appeared, let me watch her, watched me. I was thinking about the election, how people waited in line for hours to vote, how much money billionaires spent trying to influence their vote. How disappointed many of us had been in President Obama’s first term—and how hopeful we remain in the second.

 

I don’t know what I want to say about this other than I stood in the cemetery, a place I love to walk—its quiet, thoughtfulness—and the white deer appeared. Ghostly. Brilliant. Moved along a line of headstones. Let me watch her. 

 

I know there will be other awful, bitter races. I know racism, sexism, homophobia aren’t dead because of one election’s results. But I took comfort in the white deer, in the hope of a “good winter,” in the hope of how far we’ve come. In the hope of how far we have left to go. 

 

 

 

When Dogs Are Not Dogs

A recent piece in the Washington Post by columnist John Kelly entitled “A Blind Eye Toward Guide Dog Discrimination” describes how landlords often try to prevent blind people with dogs from renting apartments. Of course the law is on the side of the blind–indeed, the ADA guarantees the rights of all people with disabilities to equal access. But what’s fascinating about Mr. Kelly’s column is that it highlights a problem we thought had been legislated out of existence years ago. Even before the adoption of the ADA in 1990 laws were on the books in all fifty states forbidding discrimination against blind people with guide dogs–especially in the provision of housing and access to spaces open to the public, and yes, the use of public transportation.

The first guide dog school in the US opened its doors in 1929 and laws protecting guide dog travelers have been firmly “on the books” since the 1950’s. So why are guide dog users experiencing so much discrimination in 2012?  Why do I, as a guide dog user, feel I’m in the wrecked neighborhood of my civil rights? Flagging a cab in New York City is a nightmarish experience for guide dog users–thousands of drivers willingly avoid blind people with dogs–some drivers at cab stands, surprised by a blind customer will simply drive away. Though it’s against the law, it’s easy to do. Unless you have a sighted companion who can identify the cab’s medallion number or license plate it’s impossible to report the crime. And staying with New York for just a moment, I was denied access to a restaurant not long ago on Central Park South. Though the establishment apologized after the fact, they did so according to my threat of legal action. They sobered up quickly when they learned that I’m a professor in the Center on Human Policy, Law, and Disability Studies at Syracuse University.

Thee instances of guide dog discrimination are legion. Over the past four years I’ve read almost weekly about a blind citizen being denied entrance or housing, or transportation or what have you. How is this possible? Talking with blind friends I’ve heard multiple explanations: they don’t know the law; multiculturalism is part of the problem–many workers in the service sector hail from countries where there are no traditions of disability accommodations; we need more public education. 

While all these explanations are useful I believe they only approximate the truth. The real answer has to do with the fact that blindness is a “low incidence disability”. There are only a million people under 65 in the US who are blind. How many guide dog users are there? The answer will doubtless surprise you: there are currently (approximately) 12,000 guide dog users in the United States. Why are there so few guide dog teams in a nation with so many visually impaired people?

The guide dog schools will say its because half the blind under 65 are almost automatically dog averse. This leaves a pool of some 500,000 potential guide dog users. Factor in those who are allergic to dogs; others who are alcoholics or drug abusers (that is, people who couldn’t care for a dog), and the number falls to 250,000 potential guide dog users. Then what happens? In a nation of vast spaces where it can be awfully hard to find rehabilitation services and reliable information, you may never get professional help with orientation and mobility training. “O and M” training is necessary for all blind people who want to live and travel independently and safely. There are actually thousands of blind people who don’t know how to navigate safely, who live in rural places, who simply imagine there’s nothing they can do. Many of them learned this hopelessness from their eye doctors. Ophthalmologists are famous for saying, “I’m sorry, there’s nothing more I can do” when confronted by the advent of incurable blindness. Many doctors don’t know how to direct a person toward services. A good friend of mine who is a world renowned eye doctor likes to say of these unfortunate patients: “They just go home, live in a shack behind the family farm, and give up.” So the number of potential guide dog users drops to a tiny and imprecise figure–a “guesstimate”–perhaps something like 200 people per state, only 10,000 possible guide dog teams per year. Of this number only something like 1500 learn about and receive guide dog training. 

Finally there’s Occam’s Razor: the blind hear stories of nearly unending guide dog discrimination and decide it’s better to walk with a white cane. From my perspective as a veteran guide dog user, a man who has traveled to all fifty states and five foreign countries with three successive guide dogs, the advent of Occam’s Razor is the most heartbreaking possibility of them all. A guide dog is not a dog. She is something much more. She’s a reliable partner, one who is always up for adventure, who doesn’t have a conflicting appointment or a better social occasion on tap. She’s affectionate but focused, capable of preventing me from stepping into harm’s way. Imagine the personals ad you could place in the Village Voice:  Wanted: nearly but not totally selfless life companion with enthusiasm, judgment, occasional disobedience when it’s in the interest of the partnership; able to guide blind person in strange places day and night, unflappable in fierce traffic, ability to problem solve in crises; ignores squirrels and dropped pizza slices, can handle escalators, revolving doors, subways, airplanes, helicopters, sailboats, and must have cold nose, floppy ears, and posses mucho hilarity when off duty. 

Anything else? Dear America: these are the world’s most exceptional dogs.

 

 

   


Captain Smiley: Army's First Blind Active-Duty Officer Perseveres After Iraq Explosion

(United Services Automobile Association)
November 13, 2012

SPOKANE, WASHINGTON– [Excerpt provided by Inclusion Daily Express] Capt. Scotty Smiley — the Army’s first blind active-duty officer — lives the true meaning of perseverance.

Surviving an explosion that almost killed him was just the start of Smiley’s ordeal. Recovering at Walter Reed National Medical Center, he struggled with the reality of losing one eye entirely and his sight in the other. He asked, “Am I truly blind? Will I always be blind?”

The day he received the Purple Heart in his hospital bed was difficult. “Receiving a Purple Heart was recognition that my life was changed. Yes, you were wounded. Yes, you are blind.”

The struggle strengthened not only his personal faith, but also his desire to serve others and his country. “One of the Army’s values is selfless service. I don’t think anyone would ever say Scott Smiley has not served his country,” he says. But he wasn’t ready to stop.

Once an Army medical review board declared Smiley mentally and physically fit to serve, he was ready to move forward. Despite his blindness, he earned a Master of Business Administration from Duke University’s Fuqua School of Business. A graduate of the U.S. Military Academy, he went on to teach military leadership at West Point and to command the Warrior Transition Unit at West Point’s Keller Army Medical Center. He also earned the Army’s prestigious MacArthur Leadership Award, which recognizes junior officers who demonstrate the ideals espoused by Gen. Douglas MacArthur: duty, honor, country.

Entire article:
Officer Doesn’t Let Blindness Stop Him

http://tinyurl.com/ide1213122

Micro Memoir 95

This is my story. I am old. I am very old. Was always old. As a boy I fell asleep on a boat and woke on the shores of death. You think I’m joking, but really, my brother, my twin brother, left this world early. He stepped off the dory, vanished in tall reeds. I saw him vanish. I fell asleep once more. Woke in the busy city of childhood.

Dusting Your Brains: A Disability Rant Dusting Your Brains: A Disability Rant

 

 

Okay, sometimes I have to hit the reset button. You know, the one behind the somatic sensory cortex–control, alt, delete. It’s a disability thing, you know, like when they try and give you a wheelchair in the airport because you’re blind and all you want is someone to guide you to your connecting flight. “I don’t need a wheelchair,” you say. They say: “You have to use the wheelchair, it’s the rule.” You say: “But I can’t use the wheelchair, I have a guide dog.” And then you hit the reset button and just walk away, find your flight all on your lonesome. This requires walking up to preoccupied strangers and getting them to read airport TV monitors for you. And then you have to shout to clusters of people: “Is this Gate F14B?” It works out. But you had to get out of the software loop of incomprehension and as I say, the reset button is your ticket. 

 

This isn’t just a disability thing, but it’s more applicable with multiple daily moments in disability land. And if you have a good relationship with your reset button you can get through all kinds of things–the peculiar weirdness of able bodied people is rather relentless. ONe just keeps going, with or without the proper public assistance or comprehension. Today I’ve already used my reset button at least five times.

Election Worker Says She Was Fired For Being A Burden To Co-workers

(Examiner)
November 12, 2012

RENTON, WASHINGTON– [Excerpt provided by Inclusion Daily Express] An election worker was fired due to complaints from her co-workers. The co-workers stated they were tired of having to help her. The employee has multiple sclerosis and is in a wheelchair.

Patricia Clayton lost her temporary job at the King County Elections headquarters in Renton, Washington. Clayton is the wife of NFL Hall of Fame sportswriter and ESPN commentator John Clayton.

Clayton has worked at the election headquarters for four years and makes $17.00 per hour. Patricia Clayton specialized in signature verification. Her training allows her to compare voter’s signatures on ballot envelops against their voter signature on file

Her job was basically to watch for election fraud. Clayton stated to King5.com that she was “surprised when they said she was no longer welcome”. That was it, no warning just given her walking papers.

Entire article:
Election worker fired for being burden to co-workers

http://tinyurl.com/ide1112124

Chen Guang-who" Chinese Official Never Heard of Him

What I’ve always suspected! The sighted actually can’t see the blind at all! 

http://mobile.reuters.com/article/idUSBRE8A80OC20121109?irpc=935

BEIJING (Reuters) – Despite causing a huge diplomatic incident between the world’s two largest economies earlier this year, the Chinese official in charge of the hometown of blind legal activist Chen Guangcheng said on Friday that he has no idea who he was.