How I Spent This Day

Talking of course. A friend called from New York City. Seems her mother is on a ventilator. Although she’s still conscious—"aware of what’s going on" etc., apparently the woman’s son—my friend’s brother—wants to pull the plug on Mom.

My cell phone was crackling. Our conversation was like old radio traffic far at sea. Somewhere out to the east there was a gibbous moon.

We must fight for every breath in this world. Who shall say the lives of others are inconvenient?

The brother was filled with what he called "ethics"—as in: "It’s terrible to see her this way. She’s probably suffering. She might not ever get better. Etc."

Like a million other Americans, "the brother" thinks life is simply about the absence of pain.

I tell my friend that I tend to side with conservative types around the issue of terminating human life.

But then again, I’m more consistent than conservatives because I oppose the death penalty.

I believe that Terry Shiavo was murdered.

I believe that Frank Zappa was right when he said America is turning into a "fascist theocracy".

I want to kick a badly manufactured thing: a tin lunch box with a picture of Mr. McGoo on the lid.

I want to roll through the day like a wheel on fire.

I realize that I need to stop talking for a time and read some poems by Pablo Neruda.

I went out into the sub-zero afternoon with my guide dog.

Nira, a yellow Labrador, who is only two years old, met her first goose just outside the University of Iowa’s student union.

The goose was eating pellets of salt from the sidewalk.

Students walked around the goose, ignoring it, talking to their friends on their cell phones.

People in this country are no longer living in the present tense.

S.K.

Superman Bolsters This Super Disability Blog Carnival!

Whew!  It’s not too late to enjoy the SUPERMAN! Disability Blog Carnival posted on Emma’s blog.
And the equally good news is that you don’t have to be faster than a
speeding bullet to get there on time!  Enjoy it at your leisure – and
enjoy it you will.

Cross-posted on Blog [with]tv

How to Write Able-ist Prose

I once knew a disabled (insert "Man" "Woman" "Child" HERE).

He was always (insert "upbeat" ""grateful" or "a real inspiration" HERE).

He or She never had a problem like (insert topical news story—e.g. "being dumped from a wheelchair" or "losing a job because of impairment" or "being denied access to a public facility" etc.).

Illustrative disabled person never understood (insert "these mooches and leeches" or "whining addicts of victim hood").

Illustrative disabled person would often say: (insert "Everything’s okay if you keep a song in your heart" or "I don’t know what ‘these people are griping about.")

Finally, you say: "There you have it. My disabled friend (who was a cross between Mr. Rogers and Tiny Tim) was always, until his last day on earth, dismayed—no more than dismayed, he was ‘gob smacked’ by the insufferable voices of the rest of them.  Amen."

Final note: You will always find a major newspaper or magazine outlet for this essay. It works every time.

Final final note: You don’t really have to know a disabled person to write this. In fact it’s an impediment. It’s always best to draw cartoons. (Insert "Mr. McGoo" HERE).

S.K.

Listen to Steve on "The Exchange" with Ben Kieffer on Iowa Public Radio

View the Iowa Public Radio "WSUI" Program Schedule and you’ll find this listing for tomorrow:

               

               

                  

                  

February
                    2008

                   
Audio streaming requires the
                    free Real Audio player available here

                      Fri 02/22/08
                      Real Audio
                     
(stream)
                     
Podcast
                     
(download
                      MP3)

An interview with University of Iowa Professor Steve Kuusisto. He’s an author, educator and advocate for people with disabilities. Blind since birth he says sometimes even those working to help people with disabilities consign the disabled person to a second-class, defective status. That thinking is something Kuusisto is working to change.

Why We Can’t Say Certain Words Anymore. Like "civil rights".

William Peace has written a compelling post about “wheelchair dumping” over at Counterpunch.

He wonders why Americans don’t see abuses against people with
disabilities or crimes against the poor or the elderly as civil rights
issues.

The answer is essentially economic: Ronald Reagan taught Americans
that anything having to do with “minorities” costs money. If a thing
costs money, why by God it must be coming out of the pockets of the
middle class.

(The analogy with Fascist Germany’s public insistence that people
with disabilities were “useless eaters” who cost the ordinary German
pocket money isn’t terribly far fetched.)

In turn, after three decades of this commonplace Reganite
sensibility, Americans can no longer afford to use the term “civil
rights” because the very utterance is a disavowal of the comfortable
assumption that social equity costs too much and will rob the suburbs.

This is why Americans only use the term “civil rights” in a
historical context. We only required civil rights in the “old days”
before the GOP fixed everything.

That’s my “take” but have a look at William Peace’s excellent essay.

S.K.

fyi: featuring Steve and guide dog Nira

The University of Iowa has a great news magazine for faculty and staff called "fyi" and this month features Steve and "Nira" in an article and "picture show"!  This is very nicely done if you ask me.

~ Connie

Read article: Blind professor helps others see another side to disability
Photo feature: Steve and Nira’s first day of class
Audio slide show: Professor, Nira get acquainted with UI campus, each other

More Proof: Disability Doesn't Exist!

We received the following online news story this morning and want to share it.

S.K.

NEW YORK CITY

Theatre Breaks Barriers for Disabled Actors
February 14, 2008 By Lauren Horwitch

Director Ike Schambelan had a problem. The founder of Theater by the Blind in Manhattan wanted to cast company regular Ann Marie Morelli as Tatiana and Hermia in his production of A Midsummer Night’s Dream last year.

However, Morelli’s multiple sclerosis kept her in a wheelchair.

Even after 29 years of working with blind actors, Schambelan hesitated. He wondered how he would direct her. Would the audience accept her in the roles? How would she get on stage?

Continue reading “More Proof: Disability Doesn't Exist!”

More of Everything

The news about the tragic shootings at Northern Illinois University the other day will, I’m afraid, have the effect of reigniting the call for permitting students and professors to carry guns on campus.

Americans are the people of excess in all areas of life. Faced with the horrific occasion of terrible violence we call for more of the ingredients that make violence possible.

I am not a social psychologist and I never took a Sociology course in college. Yet I know that the abstract process of emulation depends in no small measure on the absence of revulsion.

The call for more gun toting people at our nation’s colleges is of course a product of fear.

But it’s also a proposition that’s made possible only if one accepts violence as a signature circumstance.

I am repulsed by the industry and machinery of violence.

I don’t accept the proposition that carrying a gun makes a man or woman safer.

I’m not alone by virtue of having this view. I hold no moral compass.

I think that more guns in more stray hands is no solution to our nation’s evident epidemic of mental illness.   

Still it’s the abstract admission of violence as a necessary component of civil life that most troubles me.

More! Let’s have more!

Or to paraphrase Orwell: “perpetual violence for permanent peaceful co-existence.”

S.K.

Our heart goes out to the family and friends of those whose lives were lost by this terrible act of violence.

How to Fend Off Despair

The world has so many problems that some days merely getting out of bed is one of the labors of Hercules. I personally take an hour to put on my fawn skin these days.

My old black Labrador "Roscoe" who is 14 has the right idea. He moves ever so slowly out into the yard and then he eats snow.

I remember as a child in New Hampshire the glory of eating snow.

Okay. I don’t eat snow anymore. For one thing: I can’t identify the yellow patches.

For another thing: it’s unseemly for a grown man to get down on his knees and put his head in a snowdrift.

"Look Mommy! The blind man who lives next door has lost his head!"

Mommy: "It’s not polite to stare Honey."

Yes, and it’s no fun eating snow when you’re wearing a fawn skin.

But Roscoe has the right idea.

Take advantage of the small blessings.

I once had a friend who was an esteemed history professor. He actually looked like an eminent professor–gray hair, glasses, a little slumped from a life at the desk.

Anyway, one night we were both rooming together in a New York City hotel because our flight was canceled, etcetera. And while I was brushing my teeth, Frank went out into the corridor without explanation.

When he came back he had sandwiches, grapes and a bowl of fruit salad.

Frank had taken these items from the room service trays outside various rooms.

"It’s all still good," he said. "People give away all kinds of good things in America."

I told Frank that he was really a poet.

I miss Frank. He’s been gone now for about ten years. Students at the college where he taught will find his vast collection of books in the library. They will see some of his margin notes written in pencil. They will profit handsomely from being in the presence of a mind that wrestled ardently with Aristotle.

But they won’t know Frank was a poet.

And I suspect Frank would have eaten snow if it looked clean enough.

S.K.