Disability by Any Other Name

I’ve been disabled all my life and I hate the term. Beneath it, like Poe’s tell tale heart, is the pulse of loss. The “d” word is Karl Marx’s term: a 19th century mark for injured workers. It originally meant the lack of utility or earning power owing to a broken body. I prefer to be called a citizen.

That I’m a blind citizen should matter not at all. Did you know that blindness is nothing more than being born left handed? Disability is a false name which pulses underneath us and continues to cause human beings with diverse bodies terrible harm.

Of course there are cutesy efforts to fix the d word like putting the “dis” in parentheses to emphasize ability. This has always seemed to me like putting antlers on a cat. Diversions are seldom more than gestures and unless you’re using sign language gestures don’t mean much. Most if not all disabled will agree we’ve had enough of gestures.

The d word can’t describe me or the hundreds of d people I know. My band is made up of practical men, women, and children who have imaginations, wisdoms, loves, sorrows, tastes, and ambitions. For them the d is a horse collar—outdated, heavy. No one needs a horse collar anymore. Blind I’m disabled by the idea I’ve nothing to give. Disabled I’m doubly blind—not seeing becomes figurative worthlessness.

Citizen is better. I’d like my value to be understood as a matter of the hive. And yes, “value” is another tell tale heart. Value for whom? What does value mean? Why should the tax payer pay for a kid with Down syndrome to go to school?

Hitler called the disabled “useless eaters” to suggest the state shouldn’t support the unproductive. The presumption of competence, that the disabled have potential can’t co-exist in a purely industrial and essentialized vision of human bodies. It’s a terrifying vision. The d word is outworn, dangerous, and like the horse collar above, unsuited to a century when work itself is being reexamined.

I believe the future of work will involve more and more autonomous systems—robotics, driverless cars, supply chains that are fully automated. What will work mean for humans? It’s possible that deconstructing the d word will be important for everyone. Or it already is.

Mozart’s Piano

It’s raining in Syracuse, New York where I make my living teaching university courses about disability and the arts. Later today the rain will turn to snow. Of the grayness I’m fond of saying I’m a Finn and it can’t phase me. Yet these last few weeks have opened a portal and the grayness is seeping in. This is the gray stain where a portrait once hung; the lithic gray of the imagination trying to picture the future. Poetry is helpful. Mozart piano sonatas are good. I admire Mozart’s speed and cheer in the face of death which was everywhere in his world.

Speed and cheer.

Now you’re getting somewhere Kuusisto.

Cheer is a funny word. It comes to English via old French chiere which meant face. It’s a mask, a disguise, a pose. In a very real sense cheer is stoicism. The British stiff upper lip.

But if that was all there was to it cheer would be a social lie and of course it isn’t.

Cheer is motion. It is “going further” than wasting one’s time talking to sinister capitalists.

It’s knowing you’ll derive from this planet something something you needed to take with you on your way.

That is why Mozart’s piano fast or slow is so tender.

The Old Jokes

Old Jokes

1.

Where do they go the old jokes? The Sumerian howler—”Something which has never occurred since time immemorial; a young woman did not fart in her husband’s lap.”

Up the chimney they go.

It’s safe to say almost no one laughs at the residue of smoke.

2.

But we do. Farts. Smoke. Bad breath. The old jokes tell us we ought to weep.

And poor old Freud who had no sense of humor and wrote and wrote and wrote about the matter.

3.

“You go first” was in fact the first joke.

4.

When a friend was dying I told her I’d just come up with punch lines, minus the tedium.

“OK,” she said. “Show me.”

“I’m not that kind of a pig,” I said.

Punch lines don’t need support.

5.

Sometimes I think dogs invented the first jokes because of their noses. We can only approximate dog words. All their words are hyphenated. Grey squirrel standing in gorse. Muskrat nibbling on chicory.

6.

Don’t forget last words. Oops. The finest epitaph.

A Short Essay on Nostalgia

I was born in 1955 when monoaural long playing records were in fashion and people still listened to jazz. As a little boy I loved Dave Brubeck and I often pressed my blind eyes to the thin fabric of the speaker as if I might get inside the record player. Somehow over the past few days that child has come back—he’s insisted I listen to those early records and I’ve acceded to his wish. I’ve listened to albums that were brand new in the mid 1950’s and while I’m generally immune to nostalgia I’ve been experiencing something like it—a fancy that times were more joyous and elegant back in the day. Foolish I know. I’m a disabled man who recognizes all too well what a horror show America was back then for every conceivable outlier group and I’m not liable to forget it. But Brubeck….

And Chet Baker by god! “My Funny Valentine” crackles from my old stereo speakers. Snow falling and jazz and coffee and wistfulness in what’s otherwise a dark time in our nation.

**

I went furniture shopping yesterday with my wife Connie. After we’d visited a couple of stores I turned to her and said: “These places give me the willies.” I’m not sure I can explain it but the oversized fluorescent cluttered showrooms with sofas and arm chairs made me feel like Pablo Neruda who saw intestines hanging from balconies and bones flying out the windows of hospitals. Furniture stores cause me to think of the dead. All those fiendish arm chairs.

**

When I was in my twenties studying poetry writing I didn’t have much nostalgia. When you’re young you’re too busy thinking about how to live and what do do. In my case I was fearful since being blind I had great difficulty conceiving of how to make a living. All disabled folks experience this though many are better at confronting it than I was. Essentially I was a poetry writing wretch. What use nostalgia?

**

Of course not everything has a use. Even Carl Jung thought so. The psyche has many mansions and some lack utility. If nostalgia has a sibling it is avoidance from which we derive the arts. It is the half grown sister of imagination. Yes its childish. Funny how children don’t experience it—they have only envy. A kid can be homesick but not nostalgic.

You can say, and you’d be right, that nostalgia doesn’t exist without an object. It should reference something lost and which has come to be an illusion. You’re nostalgic for that baseball glove with its smell of leather; for that 1962 black Rambler station wagon, Elvis Presley on the radio. By illusion I mean you’ll think all was better and one could argue this has a use but for something to be useful it should advance the cause and squishy remembrance is only useful if it keeps you from pain and of course it can’t. Nostalgia gives way to regret.

**

The salesmen in furniture stores didn’t study enough to become funeral directors.

**

Dave Brubeck: “In Your Own Sweet Way” Newport Jazz Festival, July 6, 1956

Stephen Kuusisto and HarleyABOUT: Stephen Kuusisto is the author of the memoirs Have Dog, Will Travel; Planet of the Blind (a New York Times “Notable Book of the Year”); and Eavesdropping: A Memoir of Blindness and Listening and of the poetry collections Only Bread, Only Light and Letters to Borges. A graduate of the Iowa Writer’s Workshop and a Fulbright Scholar, he has taught at the University of Iowa, Hobart and William Smith Colleges, and Ohio State University. He currently teaches at Syracuse University where he holds a University Professorship in Disability Studies. He is a frequent speaker in the US and abroad. His website is StephenKuusisto.com.

Have Dog, Will Travel: A Poet’s Journey is now available for pre-order:
Amazon
Barnes and Noble
IndieBound.org

Have Dog, Will Travel by Stephen Kuusisto

(Photo picturing the cover of Stephen Kuusisto’s new memoir “Have Dog, Will Travel” along with his former guide dogs Nira (top) and Corky, bottom.) Bottom photo by Marion Ettlinger 

Screw the Vikings, Etc.

In my twenties and lonesome I spent a day walking around a Viking burial mound. I was purging myself of atavistic sentiments—ethnic romanticism, my own Scandinavian sensibility. I told myself the dead don’t mean a damn thing.

Now I know better but I was partly right. Never romanticize your ancestors though they linger, trouble, conflict us. Epigenetic research is correct.

Oh I don’t like them. My private genomic dead. Money grubbers, god fearers, stabbers, superstitious. I don’t like them. And when they came to America in search of juicy prunes they just continued being themselves.

My point is simple. America is better when other people’s children come here—differing nationalities, other epigenetic stories.

Whenever I see Donald Trump I think: “there’s a man whose grandfather came here for the juicy prunes and nothing more.”

Brief Essay on Wasting Time, the Virtues Thereof

I can waste time with the best of them. Whitman’s loafing. Though I suppose he meant something lurid.

I can loaf without an agenda. I am almost a Buddhist loafer. I am not kidding.

I can drink a pot of tea and admire the snow.

Spend half a day listening to Chopin’s concertos which are better than I remembered from my lonely childhood beside the phonograph.

Walk in circles around my neighborhood with a dog for company.

I can waste time.

I know soon enough time will waste me.

I’m not afraid.

Do you hear me clocks?

The nothing that is not there and the nothing that is….you don’t scare me.

The power that comes from drifting.

About Yesterday or What Teachers Must Teach…

Yesterday I wrote a blog post about the perils of single issue politics and the erosion of critical thinking especially as these things pertain to teaching. Here are the things I suspect I’ll be accused of saying which I absolutely did not say: that racism doesn’t exist; that white people don’t have inordinate privileges; that minority opinions are fanatical; that the only way forward in the civic square is to become some kind of moderate.

I do not believe any of those things.

What I do think is that the common good has been demoted to fantasy. Listening to others is considered a waste of time. Any position that’s front loaded with rage is good.

Because these things are largely the case teaching is more important now than ever. From pre-school to grad school teachers have the opportunity to promote what Paolo Freire described as entering into reality:

“The more radical the person is, the more fully he or she enters into reality so that, knowing it better, he or she can transform it. This individual is not afraid to confront, to listen, to see the world unveiled. This person is not afraid to meet the people or to enter into a dialogue with them. This person does not consider himself or herself the proprietor of history or of all people, or the liberator of the oppressed; but he or she does commit himself or herself, within history, to fight at their side.”

Notice Freire’s fascinating disavowal of the egoistic considerations that accompany the impulse toward dogmatism.

Here’s another Freire quote I find useful:

“Because love is an act of courage, not of fear, love is a commitment to others. No matter where the oppressed are found, the act of love is commitment to their cause–the cause of liberation.”

**

I fervently believe love—a true experience of love—is abstaining from seeing the self only through singular positions. Liberation is knowing that disability, blackness, queerness, gender are bio political rhetorics of social constraint. Every. Last. One. Is an impoverishing tale.

Rage from a narrow ledge but you will be bitter and exploited.

**

My friend, the poet Preston Hood, who, among other things is a wounded war veteran writes about piercing through the illusions that separate us in a poem entitled “The Vocabulary Between Us:—

There is a thin covering
Between us & the world.

Sometimes it is the inward blue
Of our souls learning what to become.

Other times I hold you before me
Able to love all of what I have now.

**

Succumbing to individualized or identity rage is what the oppressors want of you.
This is what teachers must teach.

Stephen Kuusisto and HarleyABOUT: Stephen Kuusisto is the author of the memoirs Have Dog, Will Travel; Planet of the Blind (a New York Times “Notable Book of the Year”); and Eavesdropping: A Memoir of Blindness and Listening and of the poetry collections Only Bread, Only Light and Letters to Borges. A graduate of the Iowa Writer’s Workshop and a Fulbright Scholar, he has taught at the University of Iowa, Hobart and William Smith Colleges, and Ohio State University. He currently teaches at Syracuse University where he holds a University Professorship in Disability Studies. He is a frequent speaker in the US and abroad. His website is StephenKuusisto.com.

Have Dog, Will Travel: A Poet’s Journey is now available for pre-order:
Amazon
Barnes and Noble
IndieBound.org

Have Dog, Will Travel by Stephen Kuusisto

(Photo picturing the cover of Stephen Kuusisto’s new memoir “Have Dog, Will Travel” along with his former guide dogs Nira (top) and Corky, bottom.) Bottom photo by Marion Ettlinger 

On Critical Thinking, Disability, and the Academy

One of the ironies about the current state of academe is that universities propose to introduce students to what is called “critical thinking” as if most teaching faculty are available and capable to do this very work. I remember a biology professor wagging his finger in my face because, he said, biology students really don’t need to know how to write. That he was a well regarded professor made the moment doubly remarkable. “Don’t you want your students to be successful grant writers?” I asked. “You don’t need to take writing courses to do that!” he sniffed. Opposition to writing and the teaching of same is fundamentally a resistance to the teaching of nuance, scruple, irony, and pesky associative questions like “why is this problem interesting; confounding; worthwhile; perhaps even utopian?” Whatever we mean by the term critical thinking behind the term must lie a hope that students will bloom beyond being students. If this isn’t your hope as a member of the professoriate—which is to say a wish that your students will master their own curiosities no matter their chosen profession, then you’ve no business teaching. And there. I’ve said it. I believe far too many faculty are insufficiently inclined to engage with students as potential contrarians which is what we all should be after.

How many department meetings have I attended over the years? Lordy. And scarcely a discussion about students or what we hope they’ll gain. Worse perhaps is the cynical shorthand of “outcomes assessment” that’s been adopted for inclusion on syllabi and which now occupies senior administrators from the accreditation complex—themselves former faculty who’ve little experience teaching critical thinking. In this way the contemporary academy is like the singsong monkey that chases its tail around the flagpole. There’s a lot of talk about critical thinking and little actually happening. Instead there is essentialism about any number of topics. Here’s a popular one: Capitalism is the source of all suffering. I think one should say it’s the source of many problems. But critical thinking demands probing the assertion: was there ever a civilization without some kind of capitalism? Are there capitalist countries where the people are happy? These questions are not popular in essentialist teaching circles. Essentialism requires agreement, a prescriptive shared narrative. I know disabled students who think all able bodied citizens are their enemies and that able bodied people believe in compulsory able-bodiedness.

Remember “The Combahee River Collective Statement” of 1977?

“This focusing upon our own oppression is embodied in the concept of identity politics. We believe that the most profound and potentially most radical politics come directly out of our own identity, as opposed to working to end somebody else’s oppression.”

As Mark Lilla puts it in his book “Once and Future Liberal” the left, following Reagan’s election failed to unite and instead augured into separate coverts of bitterness:

“Instead, they lost themselves in the thickets of identity politics and developed a resentful, disuniting rhetoric of difference to match it. ”

**

Three weeks ago I watched the televised memorial for President George H.W. Bush. I found the occasion moving. Bush 41 signed the Americans with Disabilities Act into law in 1990 and that moment still stands for me and many others as a watershed in American politics as it was perhaps the last time the left and right worked assiduously to promote the well being of millions upon millions of citizens. The law was fiercely opposed then and still is now. That Bush signed it says a good deal about his willingness to resist calls from the Chamber of Commerce to let the disabled continue living without rights as they’d always done.

When I posted on social media my appreciation for Bush’s role in promoting the ADA I was besieged by Facebookers and Twitterers informing me Bush was a moral coward, a bigot, a war criminal, a homophobe, a liar, a groper—all to edify me. Having said he’d done something good I must be obtuse or utterly ignorant about his life in its entirety. This is the sloppiness of identity politics—its execrable cheapness of thought, adopted formally at the Combahee conference and now a laziness disguised as moral advantage. If critical thinking is to be taught let’s ask what it might actually mean.

I’ll venture it may require a willingness to give up first response finger wagging—the “gotcha” which is now everywhere on both the right and left. Someone who teaches disability studies told me on Facebook (in response to my observation that much about racism I find hard to absorb having grown up in a very liberal environment) I “must be” racist as I’m white. Her proof? I’m soaked in white privilege. Gotcha works this way. It substitutes paradigms within an argument. Example: “You believe you’ve a personal identity which is moral and possesses Enlightenment values of nuance and rationality but actually you’ve no personal identity since postmodern culture assures this. Therefore you can’t be immune to racism, if say, you’ve gotten a bank loan at any time during your life.”

If you’ve white privilege you’re a de facto racist. The essentialism behind the argument—the confirmation bias—is that this has been entirely decided by people who recognize oppression better than I do.

Forget that I grew up blind; have lived on food stamps and unemployment and have spent time living in Section 8 housing. Dispose of the fact I’ve been discriminated against in education and employment over and over during my “career”—that fancy term for what the Buddhists call the “meat wheel.”

That I’ve been harmed owing to disability doesn’t change the fact that I have advantages over others. If you believe this than you also have to imagine that human beings are just flies in amber, mere products of ancient entrapments with no hope of escape.

**

Why is this “gotcha” so attractive?

Fundamentalism is easier than scruple.

Amos Oz died this week. I’ve been reading his book “Dear Zealots” with considerable interest. He is at pains to understand how fanaticism works and why it’s the illness of our time. He writes:

“Fanaticism is not reserved for al-Qaeda and ISIS, Jabhat al-Nusra, Hamas and Hezbollah, neo-Nazis and anti-Semites, white supremacists and Islamophobes and the Ku Klux Klan, Israel’s “hilltop thugs” in the settlements, and others who would shed blood in the name of their faith. These fanatics are familiar to us all. We see them every day on our television screens, shouting, waving angry fists at the camera, hoarsely yelling slogans into the microphone. They are the visible fanatics. A few years ago, my daughter Galia Oz directed a documentary film that probed the roots of fanaticism and its manifestations in the Jewish underground.

But there are far less prominent and less visible forms of fanaticism around us, and perhaps inside us, too. Even in the daily lives of normative societies and people we know well, there are sometimes revelations, albeit not necessarily violent ones, of fanaticism. One might encounter, for example, fanatic opponents of smoking who act as if anyone who dares light a cigarette near them should be burned alive. Or fanatic vegetarians and vegans who sometimes sound ready to devour people who eat meat. A few of my friends in the peace movement denounce me furiously, simply because I hold a different view of the best way to achieve peace between Israel and Palestine.

Certainly, not everyone who raises a voice for or against something is suspected of fanaticism, and not everyone who angrily protests an injustice becomes a fanatic by virtue of that protest and anger. Not every person with strong opinions is guilty of fanatic tendencies. Not even when such views or emotions are expressed very loudly. It is not the volume of your voice that defines you as a fanatic, but rather, primarily, your tolerance—or lack thereof—for your opponents’ voices.

Indeed, a hidden—or not so hidden—kernel of fanaticism often lies beneath various disclosures of uncompromising dogmatism, of imperviousness and even hostility toward positions you deem unacceptable. Righteousness entrenched and buttressed within itself, righteousness with no windows or doors, is probably the hallmark of this disease, as are positions that arise from the turbid wellsprings of loathing and contempt, which erase all other emotions there is nothing wrong with loathing in and of itself: in Shakespeare and Dostoyevsky and Brecht, Chaim Nachman Bialik and Y. H. Brenner and Hanoch Levin, we find a stinging component of loathing. A blazing component—but not an exclusive one. In the works of these great writers, loathing is accompanied by other feelings, too—by understanding, compassion, longing, humor, and a measure of sympathy.)”

**

If the American university hopes to embrace critical thinking it must examine righteousness entrenched. In literary writing courses we talk of comic or dramatic irony—those moments when a literary writer asks “what do my characters or my narrator know “now” that they did not know even just a few moments ago? In a dramatic stage play comic irony is when the audience knows more than the figures on stage. All of Shakespeare’s comedies depend on this device.

If the American university hopes to embrace critical thinking it must offer courses that show students how to work across divides. My suggestion is to look at the history of the Americans with Disabilities Act—it has a long back story, driven by veterans wounded in foreign wars, pushed by political activism—cripples crawling up the Capitol’s steps; grassroots politics of the best and worst kind; and perhaps most remarkable of all its demonstration that intellectual and dogmatic buttresses can come down just as architectural barriers can.

If the American university wants to embrace critical thinking it should look at the peacemakers.

Amos Oz again:

“There are varying degrees of evil in the world. The distinction between levels of evil is perhaps the primary moral responsibility incumbent upon each of us. Every child knows that cruelty is bad and contemptible, while its opposite, compassion, is commendable. That is an easy and simple moral distinction. The more essential and far more difficult distinction is the one between different shades of gray, between degrees of evil. Aggressive environmental activists, for example, or the furious opponents of globalization, may sometimes emerge as violent fanatics. But the evil they cause is immeasurably smaller than that caused by a fanatic who commits a large-scale terrorist attack. Nor are the crimes of the terrorist fanatic comparable to those of fanatics who commit ethnic cleansing or genocide.
Those who are unwilling or unable to rank evil may thereby become the servants of evil. Those who make no distinction between such disparate phenomena as apartheid, colonialism, ISIS, Zionism, political incorrectness, the gas chambers, sexism, the 1 percent’s wealth, and air pollution serve evil with their very refusal to grade it.

Fanatics tend to live in a black-and-white world, with a simplistic view of good against evil. The fanatic is in fact a person who can only count to one. Yet at the same time, and without any contradiction, the fanatic almost always basks in some sort of bittersweet sentimentalism, composed of a mixture of fury and self-pity.”

“The urge to follow the crowd and the passion to belong to the majority are fertile ground for fanatics, as are the various cults of personality, idolization of religious and political leaders, and the adulation of entertainment and sports celebrities.

Of course there is a great distance between blindly worshiping bloodthirsty tyrants, being swept up by murderous ideologies or aggressive, hateful chauvinism, and the inane adoration of celebrities. Still, there is perhaps a common thread: the worshiper yields his own selfhood. He longs to merge—to the point of self-deprecation—with the throng of other admirers and unite with the experiences and accomplishments of the object of worship. In both cases, the elated admirer is subjugated by a sophisticated system of propaganda and brainwashing, a system that intentionally addresses the childish element in people’s souls, the element that so longs to merge, to crawl back into a warm womb, to once again be a tiny cell inside a huge body, a strong and protective body—the nation, the church, the movement, the party, the team fans, the groupies—to belong, to squeeze in with a crowd under the broad wings of a great father, an admired hero, a dreamy beauty, a sparkling celebrity, in whose hands the worshipers deposit their hopes and dreams, and even their right to think and judge and take positions.

The increasing infantilization of masses of people everywhere in the world is no coincidence: there are those who stand to gain from it and those who ride its coattails, whether from a thirst for power or a thirst for wealth. Advertisers and those who fund them desperately want us to go back to being spoiled little children, because spoiled little children are the easiest consumers to seduce.”

Stephen Kuusisto and HarleyABOUT: Stephen Kuusisto is the author of the memoirs Have Dog, Will Travel; Planet of the Blind (a New York Times “Notable Book of the Year”); and Eavesdropping: A Memoir of Blindness and Listening and of the poetry collections Only Bread, Only Light and Letters to Borges. A graduate of the Iowa Writer’s Workshop and a Fulbright Scholar, he has taught at the University of Iowa, Hobart and William Smith Colleges, and Ohio State University. He currently teaches at Syracuse University where he holds a University Professorship in Disability Studies. He is a frequent speaker in the US and abroad. His website is StephenKuusisto.com.

Have Dog, Will Travel: A Poet’s Journey is now available for pre-order:
Amazon
Barnes and Noble
IndieBound.org

Have Dog, Will Travel by Stephen Kuusisto

(Photo picturing the cover of Stephen Kuusisto’s new memoir “Have Dog, Will Travel” along with his former guide dogs Nira (top) and Corky, bottom.) Bottom photo by Marion Ettlinger