Oh, the Poor Sighted People, etc.

I will tell you how to be blind but only when first you tell me how it is to be sighted. You will tell me what you see which has very little to do with the matter. You cannot help yourself. To see, seeing is this sail turning before the wind, this nearly transparent orchid. When your thoughts turn atavistic your vision has much to do with being a prey animal for humans have a great deal in common with horses.

So by turns, given this is what you believe about sight—that it is the sum of its contexts and each “peep” stands for something universal—you must believe the absence of sight is nothing more than a mineral blank.

You think there’s a tribe called “the blind” and we are pulling off a sinister trick by our very attempt to live in the world. You want to ask: “how can you live if you can’t see?” You know you want to ask it. A famous fiction writer once asked me during a job interview: “How can you write so clearly if you can’t see?” Translation: “How exactly are you fooling us? Maybe you can see? In any event you must be dishonest.”

Blindness is dishonesty to many sighted. If I can be called “blind” you can be called “sighted” though I prefer mis-sighted for you. In any event you believe you’re the sum of your sights however poorly apprehended.

Yes, you see as through a glass darkly. Most of you know it and are afraid. “Why if I lost my little peephole it would be like death itself.”

The blind are, to the poorly apprehended, the walking dead.

Yes. The blind are zombies to the P.A. kids.

Yes. The poorly apprehended are just kids.

Children who believe they’re the sum of their toys.

Seeing is toy collection.

Wouldn’t life without toys be impossible?

You’d have to be a zombie.

**

Not long ago while visiting a famous arts colony I heard a notable writer say that henceforth the famous arts colony would no longer be blind and poor when it comes to appreciating outlier forms of art. He said it twice during a formal speech.

And there I was with my guide dog. I’ve spent the last thirty years writing six books which argue that blindness is a rich way of knowing.

I was insulted and remain so. Yet this is business as usual for the poorly apprehended who can’t describe sight but imagine they know it thoroughly and think the blind are among the sighted “on sufferance” and yes, we make the P.A. tribe nervous by our very appearance.

I share with my black and LGBTQIA pals and all my foreign friends a capacity to make the poorly apprehended nervous. All of us are believed to be “here on sufferance” but there’s something especially dishonest about the blind, the lame, the halt.

The dishonest thing is that you, the sighted, unable to tell me what vision means, and only able to describe your toys, you fascinations as it were, the majority of you have no spiritual center. Without this you can’t imagine the glory of life itself. You think sight seeing is the secret to living.

And if you believe this, then you also must believe that language isn’t much of a thing.

My answer to the famous writer who wanted to know how I could write about the world with clarity was simple: all nouns are images. Horse. Battleship. Rose bush.

All I have to do is jot down a noun and voila! I saw what you saw little dude.

Or: of course I didn’t see it. But according to neurological findings, neither did you.

Stephen Kuusisto and HarleyABOUT: Stephen Kuusisto is the author of the memoirs Have Dog, Will Travel; Planet of the Blind (a New York Times “Notable Book of the Year”); and Eavesdropping: A Memoir of Blindness and Listening and of the poetry collections Only Bread, Only Light and Letters to Borges. A graduate of the Iowa Writer’s Workshop and a Fulbright Scholar, he has taught at the University of Iowa, Hobart and William Smith Colleges, and Ohio State University. He currently teaches at Syracuse University where he holds a University Professorship in Disability Studies. He is a frequent speaker in the US and abroad. His website is StephenKuusisto.com.

Have Dog, Will Travel: A Poet’s Journey is now available for pre-order:
Amazon
Barnes and Noble
IndieBound.org

Have Dog, Will Travel by Stephen Kuusisto

(Photo picturing the cover of Stephen Kuusisto’s new memoir “Have Dog, Will Travel” along with his former guide dogs Nira (top) and Corky, bottom.) Bottom photo by Marion Ettlinger 

Cranky

I must admit I’m a cranky man. This means I’m a hurdy gurdy man, a street nuisance. Did you know most curbside organ players were disabled? Many were war veterans. Jobless. They played for your amusement. Several cities in America didn’t like them. “Ugly Laws” were adopted across the nation at the turn of the last century—edicts stipulating bothersome, unsightly people were forbidden to appear in public. This was excellent news for the asylum business. The United States loves to lock people up for any reason at all—you’re black and deaf. Asylum. You’re blind. Asylum. You’re an immigrant in Trump’s America. Instant prison camp. Native American. Home detention. Gay? The Asylum. The Los Angeles County Jail is the largest psychiatric facility in the U.S. Cranky? You bet. I’m so cranky I can’t muster irony.

Disabled I know a good deal about cruel irony—“the act of using somebody’s words against them, usually when something to their great detriment is about to be inflicted upon them.”

I’ll never forget an administrator of a certain college who, once he had me behind a closed door told me I wasn’t a competitive blind person, why he had a roommate at university who was a blind Olympic rower and so forth. He was essentially firing me because I’d asked for a reasonable accommodation.

But you see here’s the trap. I’m cranky if I talk back, assert my dignity and my rights. I am especially cranky at the University where when I ask for basic ADA 101 accommodations, (a sighted graduate assistant to help me in my daily work) accessible texts, descriptions of overhead projections, asking that our websites and teaching software be accessible and so forth) I’m labeled as a real cranky pants. Academic ableism is built on cruel irony. “If you were more like us you wouldn’t have a problem. You don’t like what’s happening to you? You must be the problem. Not us. Not us able bodied birdies….”

I’ve met so many able bodied birdies. They may have different kinds of feathers but their song is always the same.

Ableism, the experience of it, requires the French adjective écœurante —for disability discrimination is simultaneously heartless and sickening. I recall the professor of English at the University of Iowa who told me my blindness would preclude me from being in his “famous” graduate class on Charles Olson. Another professor snickered when I said I was reading books on tape. When I protested the chairman of the English department told said I was a whiner and complainer. I wept alone in the Men’s room. My path forward to a Ph.D. in English at the University of Iowa was stymied. This was a full six years before the ADA was signed into law. Who was I to imagine a place at the agora’s marble stump?

Now I had an MFA degree from the creative writing program at that same university and I just went ahead and wrote books and sometimes appeared on radio and television and I wrote for big magazines and over time I received tenure at The Ohio State University. Later I went back to teach at Iowa despite my earlier experience and these days I’m at Syracuse. I’m a survivor of sorts. I’m a blind professor. The odds were never in my favor. Somewhere along the way I began thinking of Moliere in my private moments and I laughed because after all, every human occasion is comical and Moliere recognized the comedic types one encounters in closed societies better than anyone before or since.

It doesn’t really matter what institution of higher education you’re at, if you’re disabled you’ll meet the following Moliere-esque figures. The heartless and sickening ye will always have with ye if you trek onto a college campus. You’re more likely to spot them first if you hail from a historically marginalized background however, the ecoeurantists are more prone to blab at you if you’re disabled, especially behind closed doors. Ableists love closed doors. All bigots love closed doors.

The “Tartuffe” is an administrator, usually a dean or provost who will tell you with affected gestures that he, she, they, what have you, cares a great deal about disability and then, despite the fact a disabled person has outlined a genuine problem, never helps out.

The “Harpagon” is also an administrator, but he, she, they, can also be a faculty member. The Harpagon is driven by rhetorics of cheapness. It will cost too much to retrofit this bathroom, classroom, syllabus, website, etc. If the Harpagon is a professor he, she, they, generally drives a nice car.

Statue du Commandeur: a rigid, punctilious, puritanical college president—“this is the way we’ve always done it. If we changed things for you, we’d have to change things for everybody. Yes, it certainly must be hard…” See:

The Geronte: when his son is kidnapped he says: “Que diable allait-il faire dans cette galère?” (What in the deuce did he want to go on that galley for?” In other words, he brought this upon himself. “Really, shouldn’t you try something easier? I could have told you.”

These are the principle types of ableists. I invite you to add your own.

The one thing they have in common besides a privileged and thoroughly unexamined attachment to the idea that education is a race requiring stamina and deprivation, is that they all genuinely believe that accommodations are a kind of vanity.

Stephen Kuusisto and HarleyABOUT: Stephen Kuusisto is the author of the memoirs Have Dog, Will Travel; Planet of the Blind (a New York Times “Notable Book of the Year”); and Eavesdropping: A Memoir of Blindness and Listening and of the poetry collections Only Bread, Only Light and Letters to Borges. A graduate of the Iowa Writer’s Workshop and a Fulbright Scholar, he has taught at the University of Iowa, Hobart and William Smith Colleges, and Ohio State University. He currently teaches at Syracuse University where he holds a University Professorship in Disability Studies. He is a frequent speaker in the US and abroad. His website is StephenKuusisto.com.

Have Dog, Will Travel: A Poet’s Journey is now available for pre-order:
Amazon
Barnes and Noble
IndieBound.org

Have Dog, Will Travel by Stephen Kuusisto

(Photo picturing the cover of Stephen Kuusisto’s new memoir “Have Dog, Will Travel” along with his former guide dogs Nira (top) and Corky, bottom.) Bottom photo by Marion Ettlinger 

Why the Able Bodied Don’t Like Disability in the Arts

I was in residence at an arts colony not long ago when I heard a noted American novelist tell a wide audience that they’d never be so blind and poor of judgment again—referring to (wait for it) a broader appreciation of marginalized art forms.

Blindness as metaphor, indeed all disability as metaphor is offensive and “not cool” anymore. That this occurred at a well heeled arts event doesn’t surprise me. It’s still the case that disability isn’t part of inclusivity in the arts even when some of the most amazing creative work in contemporary America comes from the disability community.

Just so the leading national academic conference for creative writing, the AWP (Association of Writers and Writing Programs) has a long standing problem with disability. They dislike having to provide accommodations at their conferences and they are particularly disdainful to disabled writers.

I’ve come to see this as a matter of resort sales. Years ago I ran training sessions for Sandals and Beaches resorts. The idea was to help beach front hotels become better service providers for the disabled.

One executive said that having disabled people on their property would negatively affect business.

I saw what he meant: all their promotional material featured photos of sleek, gym toned, happy looking people. Some were white, some were from different ethnicities. But the point was everyone was very very attractive.

When you look at the photos featured on the AWP’s website you’ll notice that all the writers look like they’ve just come from the gym.

When you look at the photos from arts colonies you’ll notice that everyone looks like they’ve just come from the very same gym.

That the arts industry (such as it is) has so little awareness (such as it might be) about it’s devotion to normality is telling. Diversity is OK if it’s about race, gender, sexual orientation, but it’s not applicable if you use a walker, a stick, talk with your hands, walk with a guide dog, etc. Everyone knows that disability art isn’t real art. It is something else, isn’t it?

Adrienne Rich, Virginia Woolf, William Carlos Williams, Audre Lorde, Stanley Elkin, Robert Lowell, Andre Dubus, Walt Whitman, Hart Crane—all were disabled. Some walked with canes, some stuttered, some used wheelchairs. None looked like they were fresh from the spa.

In the narrow confines of American art, which let’s admit is academic art, it’s still the case that when illness is thought of at all, it’s imagined as something to be overcome. The arts in America are driven by the medical model of embodiment.

Try explaining this to the arts administrators. They’ll say, as indeed someone at the AWP said to a room full of disabled writers, “your time hasn’t come yet.”

Stephen Kuusisto and HarleyABOUT: Stephen Kuusisto is the author of the memoirs Have Dog, Will Travel; Planet of the Blind (a New York Times “Notable Book of the Year”); and Eavesdropping: A Memoir of Blindness and Listening and of the poetry collections Only Bread, Only Light and Letters to Borges. A graduate of the Iowa Writer’s Workshop and a Fulbright Scholar, he has taught at the University of Iowa, Hobart and William Smith Colleges, and Ohio State University. He currently teaches at Syracuse University where he holds a University Professorship in Disability Studies. He is a frequent speaker in the US and abroad. His website is StephenKuusisto.com.

Have Dog, Will Travel: A Poet’s Journey is now available for pre-order:
Amazon
Barnes and Noble
IndieBound.org

Have Dog, Will Travel by Stephen Kuusisto

(Photo picturing the cover of Stephen Kuusisto’s new memoir “Have Dog, Will Travel” along with his former guide dogs Nira (top) and Corky, bottom.) Bottom photo by Marion Ettlinger 

Like a Falling Leaf….

Like a falling leaf
The boy in me, spinning
How to take him with me
As my years advance?

Finnish poet Paavo Haavikko:
I hear a happy tale, it makes me sad:
no-one will remember me for long.

The boy, a blind young man
Knew a thing or two.

He was never “in” time
Like those trees you see
In certain forests
Still green
Though there’s more darkness
And we are long into September.

Stephen Kuusisto and HarleyABOUT: Stephen Kuusisto is the author of the memoirs Have Dog, Will Travel; Planet of the Blind (a New York Times “Notable Book of the Year”); and Eavesdropping: A Memoir of Blindness and Listening and of the poetry collections Only Bread, Only Light and Letters to Borges. A graduate of the Iowa Writer’s Workshop and a Fulbright Scholar, he has taught at the University of Iowa, Hobart and William Smith Colleges, and Ohio State University. He currently teaches at Syracuse University where he holds a University Professorship in Disability Studies. He is a frequent speaker in the US and abroad. His website is StephenKuusisto.com.

Have Dog, Will Travel: A Poet’s Journey is now available for pre-order:
Amazon
Barnes and Noble
IndieBound.org

Have Dog, Will Travel by Stephen Kuusisto

(Photo picturing the cover of Stephen Kuusisto’s new memoir “Have Dog, Will Travel” along with his former guide dogs Nira (top) and Corky, bottom.) Bottom photo by Marion Ettlinger 

Washing Birds is the Work of the Gods….

Washing birds is the work of the gods
They’ve been at it some thirty thousand years
One may reasonably believe
Birds were not clean
Before rain gods came
I stand before a plate glass window
Drinking coffee from a paper cup
Many of my friends are dead and gone
Leaves whirl under a streetlamp
Death’s butterflies
I’ve a hymn in mind
Called I Must be Home by Now…

Stephen Kuusisto and HarleyABOUT: Stephen Kuusisto is the author of the memoirs Have Dog, Will Travel; Planet of the Blind (a New York Times “Notable Book of the Year”); and Eavesdropping: A Memoir of Blindness and Listening and of the poetry collections Only Bread, Only Light and Letters to Borges. A graduate of the Iowa Writer’s Workshop and a Fulbright Scholar, he has taught at the University of Iowa, Hobart and William Smith Colleges, and Ohio State University. He currently teaches at Syracuse University where he holds a University Professorship in Disability Studies. He is a frequent speaker in the US and abroad. His website is StephenKuusisto.com.

Have Dog, Will Travel: A Poet’s Journey is now available for pre-order:
Amazon
Barnes and Noble
IndieBound.org

Have Dog, Will Travel by Stephen Kuusisto

(Photo picturing the cover of Stephen Kuusisto’s new memoir “Have Dog, Will Travel” along with his former guide dogs Nira (top) and Corky, bottom.) Bottom photo by Marion Ettlinger 

Her hands in the stream…

You can tell me about Helen Keller
But you can’t say what words
Perform on the inside.

Have you seen a cormorant
Drop from on high
And enter the sea?

That’s my Helen Keller—
That falling…

ie Kuusisto :
Stephen Kuusisto and HarleyABOUT: Stephen Kuusisto is the author of the memoirs Have Dog, Will Travel; Planet of the Blind (a New York Times “Notable Book of the Year”); and Eavesdropping: A Memoir of Blindness and Listening and of the poetry collections Only Bread, Only Light and Letters to Borges. A graduate of the Iowa Writer’s Workshop and a Fulbright Scholar, he has taught at the University of Iowa, Hobart and William Smith Colleges, and Ohio State University. He currently teaches at Syracuse University where he holds a University Professorship in Disability Studies. He is a frequent speaker in the US and abroad. His website is StephenKuusisto.com.

Have Dog, Will Travel: A Poet’s Journey is now available for pre-order:
Amazon
Barnes and Noble
IndieBound.org

Have Dog, Will Travel by Stephen Kuusisto

(Photo picturing the cover of Stephen Kuusisto’s new memoir “Have Dog, Will Travel” along with his former guide dogs Nira (top) and Corky, bottom.) Bottom photo by Marion Ettlinger 

Faeries, come…

All those who believe I’m vagrant—blind as I am
Walking with my stick or dog—
That woman in Boston who hoped to pray for me
Who ran away when I offered to pray for her,
What’s wrong with a disabled prayer?
I stood in the street and waved my arms.
In London a girl called me “poor Dearie”
And thrust coins in my hands.
Once in Cleveland a red faced man
Followed me block after block
Proposing to help…better I thought
Than the alternatives—
The asylum; the work houses.
In general the poets of my nation
See the blind as an existential blank.
But tired of standing for nothing
I sing and walk down Broadway
The sweet, manifold, wishful syllables
Of William Yeats—
Faeries, come take me out of this dull world,
For I would ride with you upon the wind,
Run on the top of the dishevelled tide,
And dance upon the mountains like a flame.

Stephen Kuusisto and HarleyABOUT: Stephen Kuusisto is the author of the memoirs Have Dog, Will Travel; Planet of the Blind (a New York Times “Notable Book of the Year”); and Eavesdropping: A Memoir of Blindness and Listening and of the poetry collections Only Bread, Only Light and Letters to Borges. A graduate of the Iowa Writer’s Workshop and a Fulbright Scholar, he has taught at the University of Iowa, Hobart and William Smith Colleges, and Ohio State University. He currently teaches at Syracuse University where he holds a University Professorship in Disability Studies. He is a frequent speaker in the US and abroad. His website is StephenKuusisto.com.

Have Dog, Will Travel: A Poet’s Journey is now available for pre-order:
Amazon
Barnes and Noble
IndieBound.org

Have Dog, Will Travel by Stephen Kuusisto

(Photo picturing the cover of Stephen Kuusisto’s new memoir “Have Dog, Will Travel” along with his former guide dogs Nira (top) and Corky, bottom.) Bottom photo by Marion Ettlinger