America

America with your history of eugenics.
With your hostility to the global charter on disability rights.
With your jails, stocked with psychiatric patients—worse than the Soviet Union. We are Gulag Los Angeles; Gulag Rikers Island; Gulag Five Points in Upstate New York.
America with your young Doctor Mengeles.
With your broken VA.
With your war on food stamps and infant nutrition.
With your terror of autism and lack of empathy for those who have it.
Wih your 80% unemployment rate for people with disabilites.
With your pity parties—inspiration porn—Billy was broken until we gave him a puppy.
With your sanctimonious low drivel disguised as empathy.
With your terror of reasonable accommodations.
With your NPR essays about fake disability fraud, which is derision of the poor and elderly.
With your disa-phobia—I wouldn’t want one of them to sit next to me on a bus.
America when will you admit you have a hernia?
When will you admit you’re a lousy driver?
Admit you miss the days of those segregated schools, hospitals, residential facilities—just keep them out of sight.
When will you apologize for your ugly laws?
When will you make Ron Kovic’s book irrelevant?
America, you threatened Allen Ginsberg with lobotomy.
Ameica you medicated a generation of teenagers for bi-polar depression when all they were feeling was old fashioned fear.
When will you protect wheelchairs on airlines?
When will you admit you’re terrified of luck?

–Stephen Kuusisto

The Boy-Man Epidemic

It was simple when I was twenty: appetite wrapped stone, stone was appetite, scissors, you guessed it, appetite. Every man, woman, house plant, thesaurus, phone book—every one of these could be absorbed for the sake of hunger. All boys at 20 are this way. How does one not turn into a predatory creep? The answers are as variable as the social contract, but safe to say one finds a binding, a principle of community, and appetite turns to a deep desire to belong. One can get there through poetry or dance, but also with fair minded business practices, entrepreneurship, any desire to provide services that assist others. Some people refurbish ambulances and sell them at fair prices. Some dedicate themselves to clean water. I do not say only grown men accomplish these things, only that grown men become gracefully “beyond” themselves. I’ve been teaching college courses for over thirty years and I’ve seen “the boys” who won’t make it, who will become embittered when the shine of the fraternity houses fades. And I’ve seen the boys who want to live in the world with something no one can precisely describe but we know it for it’s palpable, and one may call it decency or civics or respect.

This is becoming a sermon. Forgive me. Don’t stop reading. I’ve a quick story to tell. It’s deeply personal. It concerns my family. My maternal grandfather didn’t care if people lived or died. He simply loved machines and explosives. Really, one may think of him as an anarchistic tinkerer who loved dynamite. He bought run down farms all over the state of New Hampshire solely to indulge his dynamite habit as he loved to blow things up. By things I mean telegraph poles, large boulders, houses, fences. He enjoyed TNT the way regular people like to work in their gardens. The man didn’t give a shit about people.

He was an American “type” who really did say to his 11 year old daughter (my mother) “shoot first and ask questions later” when he left her alone on the farm for three days. He was an American “type” who stirred dynamite into the drink of a game warden who chanced to visit. He was the “type” who sat on a flaming sofa with a pitcher of water beside his feet because eventually he’d have to put it out, but he was enjoying his cigar. He had a special kind of “screw you” and he never relinquished it. He was, in short, an American boy for whom personal growth never materialized. Unlike many boy-men he didn’t become a serial divorcer. He stuck with his family and destroyed everyone.

The Jungian psychoanalyst Marie-Louise Von Franz wrote a compelling book about men who have big bodies but remain children. Such men are often the life of the party, charming, at least at first. Then they tire of you (insert “children”; “wives”; “girl friends”;  “friends”) and jump ship (insert “leave home”; “skip town”) and find a new circle to hoodwink. While I know of no studies linking these “flying boys” (Von Franz’s term) with sexual assault, it’s a good bet that groping, rape, violence, and child abuse are all parts of their arsenal.

So I’m in mind of these matters during this election season. In mind of boys who remain boys, embittered, predatory, loud, overtly talkative. In mind of our contemporary fascination with public relations and self-branding, which are deeply tied to the “boy-man complex” (insert Billy Bush). I believe every journalist in America who covers local, state, or national politics or business, or sports, or yes, higher education, will read Von Franz’s book about the devastating consequences of the boy-man epidemic.

 

More About Teaching with a Dog

I knew one in five of my students likely had a disability; that one in four had probably been assaulted sexually; that approximately 40% had alcoholic parents or relatives. One can’t teach without knowing such things—at least not be teaching properly. Could being disabled “before them” and working with Corky foster communicative possibilities beyond merely inserting my life, my story—the professor as “other?” I wasn’t sure at first. You walk into a classroom with a dog, it’s like a joke.

Since service animals can’t be ignored I said: “for Corky the past is prologue.” “She’s more well adjusted than most of us.”

“A guide dog’s childhood is impressive,” I said. “Love, encouragement, modest rules, then more love, more encouragement…”

“Who among us gets to have that?” I asked. No one raised a hand.

So here’s what I did. I invited students to coffee klatches with Corky. It was kumbaya. And so what?

We created a small circle around a dog.

I took the harness off.

Corky circled putting her head on people’s knees.

“In order for ideas to have value,” I said, “one must feel secure enough to be inquisitive.”

My coffee drinkers agreed this wasn’t easy.

We were newly minted adepts of John Dewey’s pragmatism, hugging a dog, insisting our everyday experiences mattered.

I will not tell my students stories.

But sometimes at night walking to the bus I thought of them bearing up under their burdens and of how they still desired lives of trust.

This is no small thing when you feel it. No small thing….

Teaching with a Dog at My Feet (Part One)

I returned to academe with a dog by my side. Entering a class at Ohio State students observed us with wonder. It was hard to know if they were surprised by a blind professor or by the sight of a dog, or both. “Oh!” cried three women in the front row. “Oh, I miss my dog,” said a boy.

“The only perk to being blind is you can take your dog anywhere,” I said.

Teaching with a dog at my feet was wonderful. All dogs radiate comfort and make the space around them congenial. They’ve been sharing this with humans for 30,000 years.

One afternoon when discussing Mary Shelley’s Frankenstein—one of the bloodier sections, Corky began moaning in her sleep.

“This even disturbs the dogs,” I said. There was nervous laughter.

Over time I saw how having a dog in the classroom changed teaching for me. It wasn’t just the shtick of the thing—as when students were silent and I’d say, “Well Corky knows the answer…”

It was a shy, unanticipated gracefulness as for the first time in my academic life I felt even-tempered and unflustered. Silence was good. I didn’t have to fill every gap in conversation but could afford to wait for a a shy student to offer up a Socratic answer.

And if a student was distressed he or she could have a dog petting session. Education is painful, steeped in competitions, often without evident maps or rules. “Dogs. Another natural place for dogs,” I thought.

We do our best learning when we’ve bonded, when we’re safe, when we experience intimacy with thought. We don’t learn well by arbitrary pressure and force. Dogs bond with us when they stare into our eyes, releasing in us oxytocin, the bonding hormone—lord knows it works, our pulse rates drop, our breathing steadies.

My own as well. When the teacher’s breathing is steady the whole room changes for the better. It wasn’t zazen, formal Zen Buddhist breathing, but still a slower more invitational mode of breath.

When a man or woman is breathing well, they like themselves better. Running. Sitting. Dog’s eyes. Even the fluorescent lights in a cheap university classroom won’t bother you.

 

After the Cruel Nun Threw Me and My Guide Dog Out of the Church

“Here’s the thing,” I thought as I stroked Corky’s beautiful face with one hand and brushed my tears with the other, “disability is not a clean ‘coming out’—just because you’re no longer hiding you’re still only accepted conditionally.” It was a hard thought, something like a friend’s betrayal.

There was a meanness out there. It might come from a nun, a bus driver, a person at work, the man who runs the delicatessen…moreover it wasn’t an infrequent nastiness. What to do with this?

I stood in the sunlight of Milan and thought, “abuse ye will always have with ye…”

What does one do about it? Discrimination is a sign of knowledge for the disabled. Your dog offers no fairy tale solution. Split the difference, maybe half the world accepts you and half does not. The numbers aren’t precise. You’ll never know the real numbers. Perhaps thinking half the world accepts you is too optimistic. Whole areas of the planet are opposed to service animals; large portions of the world treat the disabled as unwanted burdens. You know this and still you need to enter life, stand before Leonardo’s masterpiece, visit the opera, eat risotto a la Milanese with saffron, stand in the dear sunlight and whisper. Life beckons. You harness your dog and go.

“So I’ve come out,” I thought. “And there was less of a celebration than I’d imagined.”

“At least,” I thought, “I know who I am. They can’t take that away.”

 

 

The Guide Dog and the Cruel Nun, Italy…

I didn’t want to cry. The wide sun was covering my face. Tourists were all about. The day was warm for April. I didn’t want them, the tears, the choked tears of disability exclusion but they came and I leaned against a wall outside Santa Maria delle Grazie, home to “The Last Supper” and wept before strangers. I’d been denied entry to the church by a nun. She’d hissed like a goose and had pointed me away. It was Corky—no dogs in the grotto! Her disdain was cruel and it belonged to the viaticum of ruthlessness and I understood it wasn’t Corky she objected to at all but blindness itself, a pre-Roman atavistic stigma. I heard it. It rose from the back of her throat.

I’d encouraged Connie to go in and so I swayed and cried alone and hated myself. It wasn’t the spectacle of weeping that disgusted me, it was having to cry and letting a dried up craven, superstitious dingus get the best of me. “Supper Sister” had turned me away from Heaven and she knew it.

I slid down the wall and sat on the pavement. Corky, Labrador, large, affectionate, concerned, pressed against me and I cried all the more. The guide dog was supposed to fix this; to give me freedom; open the world, and to the best of her ability she had. We were in Italy where only three years ago I’d been living a sealed and provincial life in a small town, unsure of how to go places. Corky had done her part.

Godammit! I cried all the more. What was wrong with me? The Italians weren’t friendly to guide dogs, and over a span of three days I’d absorbed the evil eye from at least eighteen men and women. So what? Where was my inveterate, subversive streak—though I’d lived much of my childhood and adolescence fearing disability, I’d also been wild enough to say fuck you to teachers and aggregate bullies. Fuck you, I’d said to the high school chemistry teacher who wouldn’t describe what was on the blackboard. Fuck you, I’d said to the college professor who said I shouldn’t be in his class. Fuck you and Fuck you. And Fuck you, Nixon. Jesus! I’d been undone by a nun! A sputum bespattered unfounded wobbly nun!

I laughed then because that’s how it is with tears of discrimination—you get there.

 

 

Humility, Dogness, and the Horizontal Hula

“What does being a better person actually mean?” I thought.  Did I believe “better” was something spiritual? Probably. After just two weeks training with Corky I was thinking about humility. If you’ve spent much of your life feeling shame you don’t have room for a modest view of your own importance. That would of course be a step up from all encompassing misery. In my case I’d even had some contempt for humility—I’d made fun of St. Augustine when I was forced to read his Confessions in college. Augustine’s humility was out of control. He regretted stealing pears! If that was the gateway to meekness who needed it?

I needed it. Shame had been my ego, a necklace of depressions and self-enforced isolations. The disabled learn to wear this. Or some do. My lot had been whatever wasn’t self aware but angry, wounded; or desperate for acceptance which I started seeing as an extravagance. There’s not an ounce of modesty in anger or embarrassment. They offer a fight or flee world of tears and shouting.

Walking around Guiding Eyes with jangling Corky by my side I wondered if humility might also be nobility; if I might climb above my boyishness, my inheritance of sadnesses, with something like self-effacement and thankfulness. It wasn’t a question of healing myself or of “giving away” my disappointments, but wanting to find ways to think of myself less. This is one of the things a dog can do. I saw it.

That dog lay on her back with all four feet in the air and did a horizontal dance, a kind of hula and I saw it was unwise to be too sure of my own wisdom.

Disability could afford a potent life. One could be graceful. That was something new for me. Something new.

 

 

Of Kipling and Superman

When I was approximately 9 years old, though maybe 10, I fell in love with Rudyard Kipling’s “Jungle Book” and couldn’t put it down. That’s a figure of course especially since I “read” Kipling by way of long playing records from the Library for the Blind—big scratchy slow disks that required a bulky oversized government issue record player, but let’s say I couldn’t put the book down.

I loved so many things about the “Jungle Book” I can still call them to mind. Kipling praised curiosity, a thing all children need to hear.

“It is the hardest thing in the world to frighten a mongoose, because he is eaten up from nose to tail with curiosity. The motto of all the mongoose family is “Run and find out,” and Rikki-tikki was a true mongoose.”

And I loved Kipling’s recondite, arcane Victorian prose:

“Now Rann the Kite brings home the night That Mang the Bat sets free— The herds are shut in byre and hut For loosed till dawn are we. This is the hour of pride and power, Talon and tush and claw. Oh, hear the call!—Good hunting all That keep the Jungle Law!”

I marched around reciting those lines in my Superman costume.

Little Superman knew nothing of colonialism. He liked animals, magic, and abstruse lingo. He liked a thick alternate reality to days of being bullied in the schoolyard. Who wouldn’t’ want to live with real wolves like Mowgli?

By the age of 10 I knew I’d never be bored. Books. Fantasies. Living nose to tail with curiosity.

Oh don’t give up on curiosity. Please. I love you, you stranger, don’t let them take this precious gift from you.

Read some Kipling. Kipling:

“No price is too high to pay for the privilege of owning yourself.”

 

Blind at Widget College

I am a blind person. Notice I’m using people last language since in public I’m blind “first” and a person only in the most conditional sense. It’s not fashionable to say this. What’s popular in “the idioms” is arguing blindness is nothing more than an inconvenience, why it’s nothing really. I wish this was true. But in my experience I’m always a problem whenever I leave my house. I’ve written about this on my blog for close to nine years. Many disability themed bloggers also discuss the subject—this problematized life we endure when we venture out.

As a poet I tend to think about disadvantaging spaces in gestural ways which is to say I think being on the playing field is important. If the Americans with Disabilities Act gave us the opportunity to be out in public then by God we should be everywhere. You can’t count on your rights unless you use them. Poets believe in community or most good ones do. We want people to gather and hear words, share emotions. Just so I think all the disabled turn environments into something new when they arrive where formerly they were strictly absent. I’m a blind man at the movies with my guide dog. Blind at the ball game. A few people will think. They’ll say: “well, yes, of course the blind can enjoy things…” Silly to have to say so? Silly yes, but necessary every day. 25 years after the ADA John Q. Public still thinks in a moist  way the cripples probably belong in asylums. Or worse: they think we should be eliminated.

So anyway I leave my house. Because I can’t drive it takes a long time to get to work. (You’re lucky if you have work or you’re going to school…) And when I get to work I discover they’ve changed the computer system overnight. No one took blindness into account when they jumped to “Leverage 2.0” and now I can’t use the damned PC. I call the IT people and learn they’ve no idea what to do next. Blindness (nothing more than an inconvenience) now becomes an “impossibility” in the workplace. Complain about it and lo and behold, one becomes a crank in the eyes of administrators at the Widget Company or Widget College. Your very presence is inconvenient.

At Widget College they regularly adopt inaccessible software and course management tools and try later to retrofit them. This is not uncommon. Widget College is the norm in higher education when it comes to digital access. What’s so demoralizing is that while you’ve complained about it for years they simply hold more committee meetings and voila, continue buying inaccessible software.

You’re tempted over time to throw up your hands and say, “well I don’t belong in the workforce after all.” And when the bus driver won’t call out the stops even though you’ve asked him politely to do so and you get off in the wrong neighborhood and it takes you an hour to solve this and it’s raining and you’re half lost, well, you think, “I don’t belong on the bus or the street.”

Let’s be clear these are nearly daily problems.

My faculty colleagues are not disabled for the most part. They nod when I tell them how inhospitable Widget College is. I’ve found liberal minded faculty are great nodders. They can’t imagine being blind. Why if they were blind, they know they’d never leave their houses.