The Day of the Station Wagons

Those who have read Don DeLillo‘s classic novel "White Noise" will recall his designation of the start of the university’s calendar year as "the day of the station wagons".  The entire campus is suddenly overrun with family cars as bewildered parents and their respective happy or diffident children unload the "stuff" that all Americans believe they can’t live without.

As I embark on a new year of teaching at the University of Iowa I find myself wondering if perhaps the immense amount of "stuff" that college kids are unloading might mean that materialism is the new "reasonable accommodation" for "normates".  You see, "normal" people seem to need a lot of items just to keep their normative lives in trim.  Gone are the days when a kid could move into a dorm room with a steamer trunk and a typewriter.  (That’s what I took with me to college believe it or not.)

Nowadays everyone needs his own microwave, refrigerator, HD TV,; computer, popcorn maker, mini component stereo with iPod connectivity, cell phone, coffee maker, and these are just "the basics" as the normates like to say.

Normal life is now as complicated as maintaining an iron lung.  I picture the new dorm residents lying prone under this mountain of gadgetry and status life accouterments and I feel a bit sorry for them.

The poet Gary Snyder used to say that one shouldn’t own anything you could not leave out in the rain.  I have it on good authority that Gary now uses a "Mac" so there it is: even a Buddhist poet needs to keep up with the times.

Activists in the disability rights community have long been arguing that "disability" is a social construction, and one has to wonder on the day of the station wagons if perhaps the high price of American normalcy is a bit too dear.

I travel with a guide dog and I need to use a talking computer and sometimes I feel bad that I need to ask for accommodations.  But I’m starting to get it.  American daily life is just one big commodity accommodation and by jimminy if you don’t have your own entertainment and appetite devices , well you might as well just stay at home.

SK

David Hosts Disability Blog Carnival # 21

David is Growing up with a Disability
and believes "society often underestimates the complexity of living
with a disability – the joys, the challenges, the ordinary, and the
extraordinary."

As host of the Disability Blog Carnival this month, he warns David Letterman to "move over" because "here come the bloggers!"

"The topic for this carnival is Top Ten Lists, and people put together a variety of lists on a variety of topics."

David, we’ve never seen you in a double-breasted suit like Letterman wears, but we bet you’re equally as dashing!  Audience, don’t you agree?

As per David:

"The next carnival will be hosted by Reimer Reason on September 13, with entries due by September 10. Posts can be submitted via the carnival siteUpdate – Penny says the theme is "Resilience".

Cross-posted on the [with]tv blog

On the Road Again

We’re entering Phase II of our transition to Iowa today.  I’m driving Steve, Vidal, and "stuff" to Iowa City where they will stay with friends (dear friends) while I come back to Ohio to sell our house.  (Phase I was moving Ross, our 18 year old, into his own place…)

I guess it’s too early in the morning to sort through my thoughts.   Or perhaps I’m just feeling numb.

~ Connie

Chautauqua Mystique

We all know that human beings are tribal creatures and that we suffer when we don’t have a neighborhood to live in.  Even "deviants" like academics and bishops need to have a community.  Still, knowing this and feeling it are substantially different experiences and I was reminded of this during my recent two day visit to Chautauqua in western New York.  Plenty of people have written about Chautauqua and tons of really important people have gathered there over the last century and far be it for me to claim any special insights about this remarkable gathering place.  All I can say is that I have seldom beheld so many intellectually curious and kindly people in one location.  From the visiting artists and thinkers to the staff who maintain the generous grounds to the very children of the families who come to the lakeshore to engage with the arts and sciences, everyone was humanely awake.  People were curious about each other.  "By God," I thought, "this is the America that Walt Whitman once hoped we might create."  We are in this life together and living it must be a collective celebration if this social experiment is to work.

I am by nature a mildly suspicious man and so I kept thinking that some odious and officious little person would appear and tell me that I obviously didn’t belong there.  I imagined that some guy wearing an Odd Fellow’s fez would turn up and yell at me for walking with my dog on the grass.  Or maybe someone would say that my books are "too wordy" or "too dirty" or someone would say that I obviously buy my shoes at the discount warehouse.

But as far as I know, no one wearing the "fez of bureaucracy" followed me about.

I was impressed by all kinds of events: Peter Gelb spoke about his experiences as the new managing director of the Metropolitan Opera.  Daniel Levitin talked about his career as a rock musician turned neurologist–he’s the author of a terrific book entitled "This is Your Brain on Music".  I got to hear the contemporary Israeli composer Yinam Leef talk about time and its role in the composition of his work.  I met Mary Rogers, the composer of the signature Broadway musical comedy "Once Upon a Mattress" and Connie and I had the opportunity to see and hear a wonderful production of that famous show.

Still, the signature moment for me was when a pre-teen boy, maybe around 11 years old, stopped on the sidewalk because he heard Connie and I talking with a couple who were walking their Wheaton Terrier.   We were saying that we’ve thought about getting one of these dogs someday.  This boy stopped in his tracks and turned and with evident joy encouraged us to do it.  You see, he also has a Wheaton Terrier.

In an era of besotted video game kids who mostly mumble, well, this was a moment of Chautauqua mystique: even the kids are encouraging of others and fully awake.

S.K.

[with]tv Blog Update

Dear Friends,

Blog [with]tv has a new address!  www.withtv.typepad.com  Remember to change your links!

As a volunteer working with the folks at [with]tv I have recently been honored with the title “blog master”.  In that capacity I am writing to disability bloggers I know and respect to ask for support.  I (we) are hoping you would be willing to either write a post, submit a post you’ve already written, or even join us as a “columnist” and submit posts whenever the mood strikes.

Posts can be submitted to my attention at articles@with-tv.com. The blog can be found at http://withtv.blogspot.com/. It is a work in progress and I (we) sure
would appreciate your support. While you’re
there, please sign the Guest Book and let us know what you think. We’re working hard to spread the word. Anything you can do to help would surely give
us a boost!

Thank you,

Connie Kuusisto
Blog Master, [with]tv

P.S.  A person need not be a blogger to submit articles to [with]tv or to sign the Guest Book.  Anyone interested in the topic of disability is encouraged to participate.

Cross-posted on [with]tv

Midwest Regional Disability Lifestyles Conference and Expo

Midwest Regional Disability Lifestyles Conference and Expo: Sharing Our World with You
September 29 – 30, 2007.

In collaboration with VAS Arts Ohio, Columbus Recreation and Parks Dept., Ohio Wheelchair Sports Association, and a growing list of other prominent sponsors, The Ohio State University will host the first annual Midwest Regional Disability Lifestyles Conference and Expo. This event is planned by people with disabilities, for people with disabilities, their friends, family, and the professional communities who support them.

In combination with a large expo of vendors and service providers, a Saturday night reception party, and keynote address, there will be workshops on various activities, recreational opportunities, arts programs, and competitive sports clinics and demos on Saturday and Sunday.

For more information or for a proposal submission form (deadline for submissions 5/31/07), please CONTACT: Derek Mortland, midwestregconf@yahoo.com.

For session descriptions and to print a registration form in PDF format to be filled out & mailed, go to: http://ada.osu.edu/MobilityConf2007/SessionDescriptions.html

Tara's 21! Happy Birthday!

Not much time to write – while in Chautauqua I found a computer to post this (should have brought my laptop after all!)Turning_21_2

Happy birthday to my favorite – my one and only –  daughter, Tara.  (She’s the young lady on the right.)

Why just last night someone said to me "you don’t look old enough to have a 21 year old daughter!"  Steve said the gentleman was just flirting with me. 

Leave it to a husband (my husband) to spoil the moment.

I’ll post a photo of Tara once I’m back home.

~ Connie

Empty Nest: Day 10

Steve is home from New Hampshire (as of three days ago).  Today we are off to the Chautauqua Institution in upstate New York.

It’s our first "date" as empty nesters – a mini-vacation of sorts.  Well at least for me.  Steve may have an audience of 500 to 1,000 people to entertain Thursday afternoon.  As for me, I just have to get him there.  My work is then done.

~ Connie