Civil Rights for People with Disabilities vs. “The Usual Suspects”

Right now, even as we drink our coffee there are powerful forces working overtime on Capitol Hill. I like to call these forces “the usual suspects” because I love the old TV series “Dragnet” and also because it takes too long to type all the acronyms of the various business and human resources lobbying groups that have assembled to fight the “ADA Restoration Act”. Oh yes, and there are prominent corporations opposed to the full inclusion of people with disabilities in the workforce.

The Usual Suspects are opposed to the legislation because it would require that employers actually make reasonable accommodations for employees who have disabilities—rather than allowing said Usual Suspects to proclaim that these accommodations are wildly unreasonable. Why, By Golly! even reassigning a disabled employee to a different but equal job is an undue burden on said Usual Suspect. Enter the extraordinary, well funded, hence powerful Allied Usual Suspects who are working like junior attorneys to “mark up” the bill.

Their aim? To do to the “ADA Restoration Act” what the Supreme Court has done to the original ADA of 1990.  In decision after decision the Supreme Court has exonerated employers from having to make workplace accommodations for disabled employees. The court has used a cynical  loophole when deciding “for” employers against disabled workers: they’ve argued that Congress, in adopting the ADA has assumed the power to regulate commerce within the respective U.S. states—in effect the conservative majority on the court has asserted that Congress doesn’t have the authority to legislate civil rights for people with disabilities—and by extension, for any other group.   

What’s the final final rationale for such a position? Why by God if you give one disabled employee an accommodation well then, by God you’ll have to give all the differently abled people accommodations and heck, that would mean living up to occupational safety and human rights standards and that’s an undue burden on capitalism which, it turns out, doesn’t always see the opportunities for new markets.

So what you do is declare the authority of Congress null and void. You do it by the process of red herring-ism, you confuse the public that the issue is about disabled people in the workplace who are always a suspect group in the view of the general public—aren’t these people faking something? Trying to get an advantage with a better parking space?

If Americans don’t demand of their Congress true accountability on behalf of our nation’s disabled citizens then they are in effect giving away the last measure of our civil rights—the stakes in this argument are really that important.

Write to your Congressman or Congresswoman; take a stand. Don’t let the “usual suspects” continue to evade social responsibility by means of obfuscation.

S.K.

LINKS:

"Permanent Link to ADA Restoration Act Blogging Round-Up, Feb 11-28 ‘08"

Who are the Political Friends of People with Disabilities?

ADA Restoration Headed to House Markup on Wednesday 
ADA Restoration Moves Forward in the House 
Disability, civil rights and employer groups are working hard to secure support for the negotiated legislated language that has been circulated on JFA and now has the support of more than 50 national and 60 state and local disability groups, the US Chamber of Commerce, the Society for Human Resource Management, the National Association of Manufacturers, the Human Resource Policy Association, and a growing list of companies, including McDonalds, General Motors and Honeywell. Lobbying on the House side for this negotiated deal began in earnest yesterday, focused on the members of the House Education and Labor Committee and the House Judiciary Committee (which also plans to mark up the bill next Wednesday).

To avoid confusion with the bill that was introduced last July, we have begun referring to the negotiated legislation as the ADA Amendments Act. In anticipation of next week’s markup, we are working to counter any efforts in either committee to attach an ADA notification requirement to the bill, a cause that was championed in prior Congresses by Representative Mark Foley of Florida and that is strongly opposed by the disability-civil rights employer coalition working to enact the ADA Amendments Act. We are also working hard to secure White House and Senate Republican support for the negotiated bill.

:::TAKE ACTION:::
At this point, it looks like the bill will receive strong bipartisan support in the committee markups in
the House. We have included a list of the members of the House Education and Labor Committee and the House Judiciary Committee below.
 

·      Contact Members on the House Education & Labor Committee and the House Judiciary Committee between now and Wednesday morning and urge them to support the bipartisan negotiated language that will become the Chairman’s mark in both committees. The names are below.

Locate the Members’ contact information online, or call the Capitol Switchboard at (202) 224-1904 (V) / (202) 224-3091 (TTY) and ask to be connected to their offices by name. 

·      If you haven’t already, consider having your organization "sign on" to the proposed deal language by sending an email to Anne Sommers, JFA Moderator, at aapdanne@earthlink.net. Support of the deal language means you not only approve of its language and terms, but that you also agree to defend it against all attempts by Members of Congress to amend it–unless both sides agree to the amendments.

We will continue to share the list of organizational support with Members of Congress as ADA Restoration moves forward in both the House and Senate in coming weeks. 

·      Attend the markup! The House Education and Labor Markup is scheduled for Wednesday, June 18th, at 10:00 in the Rayburn building, Room 2175. Advocates are encouraged to show their support through numbers. The accessible entrance to the building is the main entrance with the horseshoe drive off South Capitol Street.

Continue reading “Who are the Political Friends of People with Disabilities?”

Big Chief Likes Juicy Fruit

The sight of President George W. Bush making his final diplomatic tour of Europe reminds me of Lyndon Johnson’s vice presidential visit to Finland when, among other things, he tossed American chewing gum to the crowds on the streets.

Bush’s rhetoric about everything from the world energy crisis to the problems in the middle east is really nothing more than chewing gum.

Everyone knows this.

He’s "the boy who cried wolf" about weapons of mass destruction in Iraq.

He’s the fox in the henhouse when it comes to human rights.

He’s chomping a bolus of Juicy Fruit alright.

If America is going to be a gum chewing nation from now on, then I’d like to know which flavor our respective presidential candidates are addicted to.

Here’s my guess:

Barack Obama chews "Nicorette" whenever he gets the chance.

John McCain chews Feenamint—"the minty laxative ".

S.K.

Balancing Hearts

Last evening Connie and I attended the world premier of a documentary film entitled “A Friend Indeed: the Bill Sackter Story” which was held at the University of Iowa’s Hancher Center for the Performing Arts.

The story of Bill Sackter’s life and times first received national attention in the early 1980’s when a TV film with Mickey Rooney dramatized Bill’s journey from neglect and institutionalization to a featured place in the heart of a community.

The documentary, directed by Lane Wyrick, brings superbly forward the archival film footage of the real life Bill who captured the hearts of a Midwestern college town and then the whole state of Iowa and finally the nation.

Bill Sackter’s story provides a series of intersecting narratives about people with mental disabilities and the proscenium stage of America’s streets.

Abandoned to a Minnesota hospital for “imbeciles” when still a young child, Bill grew up experiencing the inhumane treatment that was so often “part and parcel” of America’s residential institutions for people with disabilities.

Through a series of fortunate and almost happenstance circumstances Bill meets a young college student “Barry” who befriends him and who subsequently becomes Bill’s legal guardian—moving him in the process to Iowa City.

These details are likely familiar to anyone who has seen the original movie starring Mickey Rooney and Dennis Quaid.

Lane Wyric’s documentary aims to bring the real Bill—who was affectionately known as “Wild Bill”—the “man in the coffee shop”, purveyor of java and good cheer, impromptu harmonica player, inveterate local talker—and in so doing the film allows those who knew Bill personally to reflect on the impact he had on hundreds of students and residents of Iowa City.

The film is tender, achingly sad, poignant, witty, and altogether charming. I do think that owing to some inexperience dealing with disability as a historical subject, Lane Wyrick misses the opportunity to contextualize the history of disability incarceration and to in turn reflect on the contemporary problems faced by pwds who are still being hospitalized against their wills. The drawback to this documentary may rest in its deep affection for Iowa City’s collective love of this almost forgotten man—and so by turns, it doesn’t delve into the symbolic nature of disability and the industries of medicalization or charity that still haunt many.

Still it is a beautiful film and it helps us to hold a sweet man in our hearts.

S.K.   


Help
Bill’s Story Reach & Inspire Everyone!

Tell a friend about BillSackter.com
and/or join our email list
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“A Friend Indeed – The Bill Sackter Story”

LINKS:


http://www.billsackter.com/Bills_links.htm

Cross-posted on Blog [with]tv

A Friend Indeed – The Bill Sackter Story

Being fairly new to Iowa City I arranged to have delivered to my Inbox Tomorrow’s Best Bets from GoIowaCity as a means of getting to know the place.  I just read yesterday’s issue and as a result, I’m now making plans to attend the World Premier, yep you heard me, the WORLD PREMIER of "A Friend Indeed – The Bill Sackter Story"

Watch the trailer:

"44 years in an institution, unable to read or write, no family,  no place in society – an unlikely friendship changed his life forever…his story inspired millions…

Bill was really a big leader in a movement, unbeknownst to him, of normalizing people’s reactions to people with disabilities…"

To be honest, I’m not familiar with Bill Sackter’s story.  But as someone interested in how the media portrays people with disabilities, I am curious as to how Lane Wyrick, director/editor, has handled this responsibility – and I do consider it a responsibility. I’ve read Lane’s entry The Documentary Begins on the Bill Sachter Documentary Blog and I have no doubt this is a labor of love.  Let’s hope the audience loves it as well.

Steve and I will keep you posted.

~ Connie

LINKS:

Find numerous links to Bill Sackter on Abilities Awareness; A Friend Indeed Premiers…

Update: Here is Steve’s reaction after having seen the film.

Harriet McBryde Johnson: She will be deeply missed.

Last night over dinner with friends I learned that Harriet McBryde Johnson has passed away.

My first thought was: “How can we tell our sorrow from our bread?”

We had been talking around the table about untimely death. Not so long ago my friend Deborah Tall died young from breast cancer. She was just hitting her stride as a poet and editor. Her memoir “A Family of Strangers” (which was Published just weeks before her death) is a stunning accomplishment.

Now Harriet has died at 50.

America has lost a disability rights leader and a pioneering voice for dignity and justice.

I don’t want to write obituary prose. I can’t bring myself to do it.

Harriet McBryde Johnson’s wonderful memoir “Too Late to Die Young” should be on America’s summer reading list.

She had the unshakable determination to stand up for the rights of the disabled and she took on public figures who would demean or discount the lives of people whose disabilities scare the pants off of shallow “normates”.

When Jerry Lewis opined in a 1990 “Parade Magazine” piece that in his view being disabled must be like being half a person—Harriet McBryde Johnson took him on.

When Peter Singer opined that certain lives are not worth living she took him on.

She took people on in court as an able attorney.

She took on the Democratic party when it couldn’t see why Terry Schiavo’s story was more than just one family’s tragedy.

She fought for the dignity of human life and fought those forces that would diminish our human experience with sophistry and outworn symbolism.

She will be deeply missed.

Let us carry her flag.

S.K.

LINKS:

Yesterday, from Kay Olson’s The Gimp Parade, where you will also find numerous links to her writings:

Nm0900harriet_2
Overwhelmingly sad news today: Harriet McBryde Johnson has died at age 50.

Image
description: The photo shows Johnson in a flowered-print navy dress
looking toward the camera. She sits in her wheelchair, though the image
is a close-up focusing on her and not the chair. Johnson leans forward,
right elbow on knee, chin in right hand. She’s a middle-aged white
woman with dark hair in a very long braid trailing over her shoulder
and into her lap. She’s not quite smiling, but looking interestedly
back at you.

The Post and Courier of Charleston, SC, provides a preliminary notice, with a more formal obituary expected soon

Also:

Beth Haller from Media dis&dat,
at a loss for words,
Sad News,
RIP, Harriet McBryde Johnson

From a Notebook

A friend tells me that his mother can vocalize the sounds of an Indian railway station at sunrise. We’re sitting in a neglected garden when he tells me this. We are drinking champagne. It is spring but not warm yet. We pour champagne into tea cups and we converse.

My friend who is British and who grew up in India is in love with words, but exquisitely in love with them, the way certain wild animals have been known to covet human toys.

"Mother dined out for years on the Indian railway station trick," he says.

S.K.

Flawless Memory

1.

I arrived at the intensive care unit in the early afternoon.

I was shocked to find my mother rising and falling atop a motorized bed with no nurse in sight.

2.

My mother, who resembled Elizabeth Taylor, even as they both aged and who was now unconscious, or partially conscious; terrified, or without a claim to dignity—with her tracheotomy, her heart monitor, I.V. drips, with a macerated open chest cavity, my mother was being tortured to death in the Portsmouth, New Hampshire hospital on an ordinary day in September. Outside you could see the beginning of autumn foliage.

3.

What to do? Stay calm of course. Despite the bungled surgery and the failures of post-operative care you need the nurses on your side. Everybody who has ever been in a hospital knows you need the nurses on your side. Don’t yell at the nurses. Don’t spit in the soup.

4.

"Excuse me, excuse me, sorry, sorry, but you see I’m blind so I can’t make eye contact and I could hear you over there—yes, hello. Yes, is my mother’s bed supposed to be rising and falling since as I understand it she has an open chest cavity?"

5.

Stray, affiliated questions asked over a 24 hour period:

"Why can’t you sew up her chest cavity?"

"Why can’t you find a chalk board so she can communicate?"

"Why did they perform the heart valve surgery if her sternem was too fragile to close?"

6.

Because I travel with a guide dog I discover things. Even the oldest hospital apparatchiks like to see a Labrador wearing its professional harness.

Discoveries:

My mother’s surgeon is called "the Italian Stallion".

He was once the doctor of a famous TV personality but he left New York and fame and glory for rural New Hampshire.

Since he couldn’t sew my mother up, the stallion put a staple in my mother’s chest but it wouldn’t stay in.

They’ve placed a sort of weighted pillow contraption over her breasts.

7.

Autobiography ain’t the movies. When a loved one dies there is only paper work and seemingly endless journeys to the Salvation Army. We gave away my mother’s favorite clothes. We bundled up the bed sheets and threw them away as if we were Victorian charwomen. What the hell else do you do with the landlord breathing down your neck. They wanted to show her apartment before she was in the ground.

8.

The funeral director handed me a black plastic garbage bag as we stood in the cemetery. "I forgot to give you this," he said, "It’s her teddy bear and her bathrobe. You know, left over from the hospital."

I can’t believe that he’s handed me a garbage bag with a teddy bear inside He might as well have handed me a bundle of shorn human hair and a sewing machine.

9.

My mother’s death was so ghastly it’s taken me 8 years to confront the business. She was an old woman. She had congestive heart failure. She was diabetic. Her body was malnourished owing to years of alcohol abuse. She was a high risk patient for heart surgery. Then the Italian Stallion discovered while leaning above the operating table that he couldn’t sew her chest back together.

10.

And so she slowly bled to death while rising and falling atop an electrical bed.

11.

Homer’s Odyssey, Book Eleven, tells of the journey of Odysseus to the underworld. The man requires words from the dead. Everyone knows that if you want to get home you need the dead on your side. D.H. Lawrence said the dead stay around and help. Or something like that. The Greeks were less certain. Ancestors were no more trustworthy than the gods Odysseus leaned into the smoky underworld and put a bowl of blood on the ground. Soon the shades of the dead came forward and Odysseus saw his mother. She was unloved, grieving, bloodless, thirsty, kept from the world of solid form by the two dimensional forces of Hades. The Swedish poet Gunar Ekelof wrote that everything in Hades is flat. The dead navigate there like sting rays.

12.

Is memory real? Yes and no. Longitudinal studies in "memory theory" report that human beings "see" specific incidents poorly; they remember experiences incorrectly; and after time has elapsed they are convinced of their misapprehensions about the past.

Freud saw that we do not remember the past; we re-arrange it in symbolic figuration. In other words we are at every moment re-inventing the personal pastand we are doing so with the signs and symbols that we have absorbed along the road of life.

Just as there is no "true green" in nature there is no "true memory" stored in the human individual.

13.

I used to believe this. Until I found my mother dazed and bleeding, rising and falling in a malfunctioning bed that was designed to prevent bedsores. Her mattress heaved her wounded torso up, then with a merciless sequence of chirps and a grinding of gears it would drop her back down, leaving her flat for twenty seconds, flat with her leaded cushion over her chest,her eyes wide open, her throat blocked with a tube.

14.

"No, no," said the nurse. "That bed isn’t supposed to do that!"

"Well how long has it been doing this?" I asked.

"I don’t know," she said and then quite literally ran away.

15.

A bowl of blood.

Shadows of early morning.

Good bye

Good bye

A Roman carnival spins at the top of the narrow street.

It’s spring and they are honoring the dead.

Look.

S.K.

Summer Hymn

Summer Hymn

–             -after the Finnish of Pentti Saarikoski

1.

I took the long path to the ocean

I had old songs in mind oak trees stood out like people who have come home

& walking I saw it was a folk tale I knew I was crossing a bridge of shadows

& love me or not I said & yellow flowers what are they

(I didn’t know)

2.

as a boy I worked for many months to starve myself the summer I watched the scouts lower the flag & the hospital settled into night. those boys folded Old Glory like Marines I was at the window: 17 and maybe a hundred pounds

a doctor from Ghana asked me what I was singing.

I said it was the holy art of dying for two voices.

I was anorexic smarty pants

3.

we die in summer even though the last thing we see is ice on the pond

& we live again in summer though we can’t explain

4.

the lame God used to live really live sailed up the Nile got dirt on his hands.

his feet were soft metal, gold, imperfect

today, early june

I lay my head down in the temple of the god

Hermes Endendros

first god withered

first broken in the high branches

first god of summer…

                     –in memory of my mother

S.K.

The FFALF Needs YOU!

CALL FOR NOMINATIONS

The Fred Fay Advanced Leadership Forum (FFALF) seeks to identify proven leaders from the disability community and bring them together with pioneers from the disability rights movement and key current figures for an informal, comprehensive weekend aimed at giving participants the background, training, information and expertise to return to their communities and organizations and lead successful advocacy efforts for disability rights.

The goal of the FFALF is for the next generation of leaders in the disability rights movement from across the United States to get to know and learn from the current generation of leaders, and for them to strategize together about the future direction of the movement.

Nominees will have demonstrated strong vision and leadership ability by having either:

· improved the civil rights and delivery of services for people with disabilities.
· led disability rights actions that have achieved significant results.
· enhanced opportunities for people with disabilities to participate fully in all aspects of society.

Selected candidates will participate in an intensive, two day, all-expense-paid retreat in Boston on October 24 – 26, 2008, covering a wide range of subjects critical to the disability community. The Fred Fay Advanced Leadership Forum is presented by the Boston Center for Independent Living and members of the Advisory Council. National leaders of the disability rights movement and noted public figures will also take part in the FFALF.

Applications due by July 1st.

For more information:

Brochure

Application

Cross-posted on Blog [with]tv