The Wheelchair Runningback

Alright, I admit that I haven’t had enough coffee. Accordingly there are cobwebs in my belfry. But here’s the thing: I go to bed with a disability and when I wake up I still have it. And in turn this means that even in the half awake-half asleep intersection, the state that Edgar Alan Poe admired, I am still blind. I am blind when counting backwards by sevens. I’m blind when I watch the TV.

The experience of disability is invariably the “half-awake-half asleep” World view of Edgar Alan Poe: at once terrifying, revealing, darkly beautiful, unforeseen, foreseeable, sacred and profane, you name it. Disability defies our notion of stable space both in physical and metaphysical terms. Disability is the sore thumb of a saint: it reveals where culture must go if society will be just. And yes, people aren’t ready for it.

I remember being in a meeting some years ago with administrators whose job it was to provide services for the blind. The meeting had something to do with hum drum budgetary matters. I was the only blind person in the group. Everyone was talking about the legal battle between Casey Martin, a professional golfer who had sued the Professional Golfer’s Association over the right to use a golf cart during PGA sanctioned golf matches. Casey Martin won the right to use a motorized cart as a means of getting from one tee to another—a right that was eventually upheld by the U.S. Supreme Court. The justices agreed with Martin’s assertion that his disability didn’t prevent him from hitting a golf ball and they disagreed with the PGA’s assertion that allowing Casey Martin to ride from one spot to another would fundamentally alter the nature of the game. I agreed with the Supreme Court on that occasion and I was surprised by the evident distress of the other men in the meeting. They felt that allowing Casey Martin to ride in a golf cart from one fairway to another would radically destroy professional golf.

Continue reading “The Wheelchair Runningback”

"Pillow Angel" Ashley's Surgeon Commits Suicide

No matter what you think about the controversy and the ugly debate surrounding Ashley’s case, this is still stunning, tragic news…and very sad.

Doctor at center of stunting debate kills himself

Daniel Gunther helped parents of disabled girl keep her small
By Linda Dahlstrom
SEATTLE – The doctor at the center of a controversial procedure which stunted the growth of a severely disabled girl has committed suicide.

I woke this morning and read the terrible news that Dr. Daniel Gunther committed suicide on September 30.

There are no sufficient words for grief, and no words for the mystery of human suffering.  The goal of medicine and indeed, the wish behind all the arts and sciences is to advance the quality of life.  I choose to believe that Dr. Gunther stood for this very principle, despite the fact that I adamantly disagree with his decision to proceed with the "Ashley Treatment". 

I would also like to believe that the surgical procedure he performed on "Ashley" was, in his mind anyway,  conceived as a means of alleviating human suffering.  I believe that the surgical procedure was risky and that it was conducted in a most controversial manner, however, controversy can be good for social progress and disagreement is often productive in a free society.  That being said, I always feel that the death of someone, particularly by suicide, diminishes us all.  I grieve for his family and friends.

SK

Monica Moshenko Interviews Howard Renensland, Founder & CEO, [with]tv

Monica Moshenko, host of Disability News & Views Radio Show has interviewed [with]tv Founder and CEO, Howard Renensland.  On her website she introduced Howard by writing this:

Howard Renensland, Father, Advocate, Actor and CEO & Founder, [with]tv

[with]tv
is a start-up corporation devoted to providing television and Internet
programming of, by, and for people with disabilities. Driven by his own
experiences the past 22 years advocating for his own daughter Victoria,
Howard found the single most debilitating factor limiting people with
disabilities is not their disability, but their image in mainstream
media. There is no mainstream television channel in the world
addressing the needs of and targeting people with disabilities as
viewers, consumers and participants. Howard resolved to change that by
creating , an inclusive media outlet that defines all people by their
talents and the quality of their stories, rather than by disability; a
place where his daughter Victoria and everyone else can work in a
universally designed workplace with a welcoming, inclusive workforce –
with-tv is born. Listen to this compelling interview with Mr.
Renensland to learn more about with-tv and how you can get involved
now! http://www.with-tv.com Television of, by and for people with
disabilities…..and everyone else.

Mr.
Renensland, President and Founder of [with]tv, has been a professional
actor, writer, director, and teacher for thirty years. He is a member
of Screen Actors Guild, American Federation of Television and Radio
Artists, and Actors Equity Association. Mr. Renensland has appeared in
over 400 television commercials, numerous radio ads, and hundreds of
print ads as well.

LISTEN TO THIS!

Thank you, Monica!

Cross-posted on [with]tv 

United Nations Launches New Website re: Rights of Persons with Disabilities

For Distribution:

From: Edoardo Bellando [mailto:bellando@un.org]
Sent: Monday, October 08, 2007 4:46 PM
Subject: Announcement: new Enable website – www.un.org/disabilities

Dear Friends,

We are pleased to inform you that the Secretariat for the Convention on the Rights of Persons with Disabilities, at the United Nations Department of Economic and Social Affairs (DESA), has launched a new website. The website in English is complete, while the new website in Arabic, Chinese, French, Spanish, and Russian will be launched in early 2008.

We invite you to visit the new website, and encourage you to update all links to the Enable website from your own organizational websites.

Happy browsing!

Best regards,

Secretariat for the Convention on the Rights of Persons with Disabilities
Please visit the UN Enable Website at:
http://www.un.org/disabilities

Cross-posted on [with]tv

[with]tv Needs YOU!

Dear Friends,

The future of accessible media is now in our hands.  Under the direction of Howard Renensland, Founder and CEO of [with]tv, a collaborative effort is currently in process to develop a mainstream media company, the mission of which will be to  broadcast accessible content of, by, and for people with disabilities…and everyone else.

Howard has assembled a management team consisting of experienced professionals from the entertainment, business and disability advocacy worlds.  Brought together by a common purpose and a shared vision – to unite people with disabilities and their families, friends, and communities – this team is working hard to build a strong foundation for a dynamic and very diverse community poised to move from an arena of charity to one of full economic participation via a mass media presence.

This is a project just exploding with potential and we, as in all of us, have an opportunity to play a role in its development and success.  Howard and his management team are looking for our input.  Let’s roll up our sleeves and see what we can do tackle this “To Do” list, shall we?  Join us: 

  • Visit www.with-tv.com to learn more
  • Read the support letter and sign the Guest Book
  • Submit an article(s) to Blog [with]tv (articles@with-tv.com)
  • Comment on the the Blog and help spread the word (www.withtv.typepad.com)
  • Invest.  Angel Investors and Venture Capital opportunities available
  • Volunteer.  Help is needed in all areas, especially web support, Public Relations and Advertising
  • Send in your resumes and demo reels.  [with]tv is not hiring quite yet.  But they’re looking.
  • Forward this message to those you know with a passion for people!

Please feel free to forward your comments, questions and suggestions to either Howard hrenensland@with-tv.com or to Connie Kuusisto, Blog Master, ckuusisto@with-tv.com

Thank you in advance for your support.

Sincerely,

Connie Kuusisto
Blog Master, [with]tv
ckuusisto@with-tv.com
http://www.withtv.typepad.com

Cross-posted on [with]tv

Say It Ain't So! CNN: Mother Seeks Girl's Womb Removal

Oh No.  Here we go again.  This article was brought to my attention via a link from Femineste who already has quite a string of comments in response.  Check them out. 

Apparently the "Ashley Treatment" debate had not made it’s way across the Atlantic Ocean.  At least there is no indication of such in this CNN article: Mother Seeks Girl’s Womb Removal

Follow the link and you find these "Story Highlights"

  • Mother seeks to have womb of severely disabled daughter, 15, removed
  • Briton wants to prevent cerebral palsy sufferer feeling pain of menstruation
  • UK doctors seek legal advice to see if they can perform hysterectomy 
  • Charity for disabled says move could infringe human rights

Perhaps before a definitive decision is made on behalf of this young lady who they claim has no say, all parties might want to consult with Anne McDonald.  Granted, the mother seeking to remove her daughter’s uterus is not talking about a "growth attenuation" procedure.  But where does one draw the line?

Brace yourselves for another round of, shall I say, "spirited" debate.

~ Connie

Here goes:

"Ashley’s Back" by Emma;
UK Mom seeks hysterectomy for daughter with CP by Wheelie Catholic;
We Do Know Better by Penny L. Richards;
Another Assault on Human Rights by David

Tragic update as of today, October 10, 2007: "Doctor at center of stunting debate kills himself"

"Big Al" Makes a Name for Himself

Alex Moshenko is the son of disability advocate Monica Moshenko, Parent, Advocate and Host of Disability News Radio and friend and volunteer of [with]tv.  This is her son’s story:

"My name is Alex Moshenko. I am 14 years old now. I was diagnosed with a form of autism, Asperger syndrome, when I was six. I never cared about it too much. I actually made someone laugh when I was first told about it, which is always a good start – better to laugh than cry."

The above is Alex’s introduction to an article he wrote for TAP Magazine: The Autism Perspective titled “Who is Big Al of Al’s Wrestling Talk?"

"Ever since then, I have had sensory issues and social skills problems, but I am able to stick to something and learn all I can from it. I have been on TV multiple times and in the newspaper a few times too. I have been an advocate for autism since I was about eight years old. It was then that I first found out about wrestling."

Like his mother, Alex is now the host of his own radio program: Al’s Wrestling Talk

Meet Alex and read his story, in his own words, at:

Living with ASD / UNDERSTANDING AUTISM By Alex Moshenko :
Download  tap_2007_3_who_is_big_al_21.pdf

And keep an eye out for this young man.  I think this is a "you ain’t seen nothin’ yet" kind of situation!

Continue reading “"Big Al" Makes a Name for Himself”

Disability and the Dialectic of Dependency

Thank you, Dr. David Bolt, Editor of The Journal of Literary Disability, the only academic publication that focuses on the literary representation of
disability, for forwarding this information to us. 

We’re pleased to share this with our friends:

Continue reading “Disability and the Dialectic of Dependency”

The Clever Title: Book Reviews and Other Cool Things

I would like to recommend a new literature and "other cool stuff" blog called: "The Clever Title: Book Reviews and Other Cool Things

This new blog is hosted, in part, by Ira Sukrungruang, a professor of creative writing at the State University of New York at Oswego.  Ira is a terrific writer, but he’s also a great reader and he has what the Victorians used to call a "circle" and what the French used to call an "atelier" and which they call "a posse" in the hood–namely, he has sharp friends who think about the human oddity known as "bookishness"–and which the Victorians called "Englishness" and which the French call "le mot just" and which they call in the hood "hip hop" and which they call in Finland,"not killing yourself because the weather is unsupportive of primate life which is why books were invented in the first place".  (That is, of course, all one word in Finnish.) 

I encourage you to visit this new blog today!  Tell ’em Steve K. sent you…

S.K.

Musical Milestones

Congratulations_2
Before continuing with this post (written by Steve) as a contribution to the next Disability Blog Carnival, Steve and I would like to take this opportunity to congratulate Penny L. Richards for her all her continuing hard work and dedication to the Disability Blog Carnival, which she launched one year ago.  Bravo, Penny.  Bravo!  We’ve made many new friends thanks to you!

~ Steve and Connie

Continue reading “Musical Milestones”