[with]tv Blog Update

Dear Friends,

Blog [with]tv has a new address!  www.withtv.typepad.com  Remember to change your links!

As a volunteer working with the folks at [with]tv I have recently been honored with the title “blog master”.  In that capacity I am writing to disability bloggers I know and respect to ask for support.  I (we) are hoping you would be willing to either write a post, submit a post you’ve already written, or even join us as a “columnist” and submit posts whenever the mood strikes.

Posts can be submitted to my attention at articles@with-tv.com. The blog can be found at http://withtv.blogspot.com/. It is a work in progress and I (we) sure
would appreciate your support. While you’re
there, please sign the Guest Book and let us know what you think. We’re working hard to spread the word. Anything you can do to help would surely give
us a boost!

Thank you,

Connie Kuusisto
Blog Master, [with]tv

P.S.  A person need not be a blogger to submit articles to [with]tv or to sign the Guest Book.  Anyone interested in the topic of disability is encouraged to participate.

Cross-posted on [with]tv

Midwest Regional Disability Lifestyles Conference and Expo

Midwest Regional Disability Lifestyles Conference and Expo: Sharing Our World with You
September 29 – 30, 2007.

In collaboration with VAS Arts Ohio, Columbus Recreation and Parks Dept., Ohio Wheelchair Sports Association, and a growing list of other prominent sponsors, The Ohio State University will host the first annual Midwest Regional Disability Lifestyles Conference and Expo. This event is planned by people with disabilities, for people with disabilities, their friends, family, and the professional communities who support them.

In combination with a large expo of vendors and service providers, a Saturday night reception party, and keynote address, there will be workshops on various activities, recreational opportunities, arts programs, and competitive sports clinics and demos on Saturday and Sunday.

For more information or for a proposal submission form (deadline for submissions 5/31/07), please CONTACT: Derek Mortland, midwestregconf@yahoo.com.

For session descriptions and to print a registration form in PDF format to be filled out & mailed, go to: http://ada.osu.edu/MobilityConf2007/SessionDescriptions.html

Tara's 21! Happy Birthday!

Not much time to write – while in Chautauqua I found a computer to post this (should have brought my laptop after all!)Turning_21_2

Happy birthday to my favorite – my one and only –  daughter, Tara.  (She’s the young lady on the right.)

Why just last night someone said to me "you don’t look old enough to have a 21 year old daughter!"  Steve said the gentleman was just flirting with me. 

Leave it to a husband (my husband) to spoil the moment.

I’ll post a photo of Tara once I’m back home.

~ Connie

Empty Nest: Day 10

Steve is home from New Hampshire (as of three days ago).  Today we are off to the Chautauqua Institution in upstate New York.

It’s our first "date" as empty nesters – a mini-vacation of sorts.  Well at least for me.  Steve may have an audience of 500 to 1,000 people to entertain Thursday afternoon.  As for me, I just have to get him there.  My work is then done.

~ Connie

Empty Nest: Day 9

My how time flies!

Ross survived the removal of all four wisdom teeth.  I was glad, quite frankly, that he did his recovering at his own place.  Oh I’d stop by a couple of times a day with mashed potatoes, pudding or applesauce, but once the moaning and complaining started, directed at me of course, I was able to say, "see you later Ross"
and walk out.  How liberating.

Ross sees a counselor a couple of times a month as for a while he seemed to be dealing with some anxiety issues. 

This evening I suggested to him that next time he sees Andy, perhaps he (Ross) could inquire as to whether or not Andy had an hour in his schedule to see me.  (Naturally I want to make sure Ross is as "OK" with the idea of Steve and I moving to Iowa as he can be.  Perhaps this is harder on me than it is him.  So what if I want to talk about it.  I’m entitled don’t you think?)

"Oh Mom.  Andy doesn’t want to sit and watch you cry for an hour!"

"I will not cry for an hour!"

"Yes you will."  Ross is now grossly exaggerating the amount of crying I did do a week ago in anticipation, I think, of The Big Cry.

Is this good or bad I wonder?  Will he feel ready for The Big Cry when the time comes or is he experiencing anxiety just thinking about it?  Probably a little of both.   

Just like his mother.

A Living Legend

In the summer of 1978 I went to  a restaurant and bar called The Sanctuary in Iowa City to hear the folk singer Bob Gibson who was billed as "the living legend".  I knew nothing about Gibson except that there was a small photo of him in the newspaper and he was shown with a 12 string guitar.

I was 23 years old and fresh out of college and I’d come to Iowa to study poetry writing at the Iowa Writers Workshop.  I was immoderately in love with the collected Folkways recordings of Leadbelly and I owned a third rate 12 string guitar that wouldn’t stay tuned and I spent far too much of my time trying to play "The  Bourgeois Blues" and "The Midnight Special" without having any concept that Leadbelly used a different tuning.

I was lonely that summer.  I’d rented a student apartment that came without furniture.  The landlord loaned me a sofa with no legs and a bed.  I sat in the empty living room and tuned my bad guitar and wondered how I would make it in the world with my evolving blindness and my obvious incapacity to do the customary jobs reserved for America’s misfits.  Blind people don’t drive taxis or wait tables or serve as short order cooks.  Anyway, I was too much in love with poetry to picture myself doing much of anything.  I didn’t feel sorry for myself: I kept as much as possible inside poems and songs.  I sang Elizabeth Cotton’s "Freight Train" in my barren apartment as the prairie dusk came with its graduated softness.

The Sanctuary was a skinny room with a bar on one wall and a small stage on the other side.  The tables in the center had real church pews for seats.  Although my vision was unreliable I estimated there were about 70 customers sitting in those pews and perhaps a dozen people at the bar.  A good turn out in a small town.   

I asked the waitress if I could have a table by the stage since I was "legally blind" and she said this would be okay.  I ordered a Pabst Blue Ribbon and waited for the show.

I suppose I should remember who warmed up for Gibson but I don’t.  I’m sure it was someone with plenty of talent.  Iowa City has a good folk music scene.  What I do remember is that when Bob Gibson came out The Sanctuary was suddenly packed and the warmth of the crowd was spontaneous and communal.  These were Gibson groupies and I could sense that lots of them had driven from outlying Iowa farm towns to be there.

I didn’t know that Bob Gibson had been the headline performer at the 1960 Newport Folk Festival and that he was the person who introduced Joan Baez to the music world when he invited her on stage to sing with him.  I didn’t know that Bob Gibson had co-written songs with Phil Ochs or that he had sung with Pete Seeger or that he had been a noted performer in the glory days of New York City’s folk scene in "the village".  I had no idea that he was a pal of Shel Silverstein’s and that they had begun writing songs together.

But man, I knew instant warmth when I felt it.

Gibson arranged the shoulder strap of his Martin 12 string while the applause rolled over the room. 

Then he sang Phil Och’s anthem "There But For Fortune" and I was utterly floored.

I’ve had the good fortune to hear some amazing musical performances over the years, from The Beatles to La Scala, from Domingo to Duke Ellington, but I’ve never heard anything quite as wonderful as Bob Gibson’s beautiful 12 string  and sweet light baritone in that little room in Iowa City.

Bob Gibson died too young and toward the end of his life he suffered from Parkinson’s disease.

I can’t tell you why I’m thinking of him today.  I feel a sweet ache and a taste perhaps of water taken from a tin cup and I want to pass it along.  If you don’t know Bob Gibson’s amazing music  I urge you to get your hands on his cd’s at Amazon.  Or better yet, go to a vintage record store in Chicago and talk to someone who may once have heard him play at the Gates of Horn.

SK

Andrea's Buzzing About: Being "ON HOLIDAY!"

Andrea’s Buzzing About: the Disability Blog Carnival # 20 she’s titled "ON HOLIDAY!"
Andrea has put this carnival together in a very clever narrative that almost makes you feel like you’re there.  She’s set up a "buffet" and invites us all to
help ourselves, then stake out "spots in the shade or a place to soak up some of the abundant warm sunshine. "Do try some of the brownies — I got the recipe from Gluten-Free Girl and they are fabulous…" she says.

If you’re ready to take a little holiday of your own, this edition of the Disability Blog Carnival is the perfect place to start.  But don’t forget the bug spray!

You will find links to other Disability Blog Carnivals: past, present and future here.

(Visual description of black & white photo: a man and a small boy are standing side by side on the shore overlooking a body of water and a bridge in the distance.  The man’s right let has been amputated.  He’s leaning on his right crutch; the boy has a hold of the crutch in his left hand in a kind of affectionate gesture.)
 

Cross-posted at [with]tv

REPORT: Children with disabilities 'as happy as classmates'

We received the following post from Lawrence Carter Long, who is a well known disability rights advocate in New York City. The article, from England, confirms what those of us
who live with disabilities have long suggested, namely that kids who happen to
have disabilities are indeed just as joyous and richly immersed in life as their
“normative” neighbors.

SK

Children with disabilities ‘as happy as classmates’

Cross-posted on Blog [with]tv

There's No Lip-Synching in Baseball!

Since everyone in America is talking about Barry Bond’s achievement, which is to say, "the feat" which is to say "the mountaintop" and because Mr. Bonds’ ascent to the top is marked by controversy, I want to add my little voice to the cacophony.  After all, that’s what a baseball crowd is for: it serves as a democratic shouting index and that’s as it should be.

As everyone knows by now, Barry Bonds has been under supreme suspicion of having used illegal steroids during the last decade of his career, a period for most athletes when players experience the erosion of their athletic skills.  Not only did Barry Bonds hit more home runs in his final decade in the batter’s box, but he looked suspiciously bigger and brawnier while doing it.

At this very moment Mr. Bonds’ former personal trainer is sitting in prison because he refuses to testify before a federal committee that’s looking into the use of illegal drugs in our nation’s pastime.

The home run title is baseball’s most glorious prize and my personal view is that anyone who breaks a cherished record while using banned substances should be given an asterisk.  After all, when doctors or attorneys take their respective board exams more than once this information is entered into their professional record with the phrase: "passed the boards on the second try".

Let’s let Barry Bonds have the home run title with a similar caveat, something like: "Performance enhanced record".

Heck, they could even build a special room at the baseball hall of fame for guys like Bonds and others who surpassed long held records with the help of chemistry.

I think this is the best solution to the whole problem of drug use in professional sports.  People could choose to be listed as either authentic or performance enhanced competitors.  In turn we would keep two kinds of record books.

In my view, and in the view of millions of other baseball fans, Henry Aaron is still the home run king.  The man doesn’t need an asterisk.

Right now it looks as though professional baseball is going to let the record stand as if it’s authentic.  That’s really a shame.

I love baseball.  I also love grand opera.  But I don’t condone lip-synching.

S.K.

Scott Rains is Blogging for [with]tv

The following is an excerpt borrowed from Scott’s post on The Rolling Rains Report:

[with]tv – A New and Different Voice

withtv logo

The Travel section of the [with]tv blog has been launched — after much procrastination on my part and good humored patience on the part of others.

Yesterday’s post, "Welcome to Travel Programs at [with]tv" sets a theme of travel as transformation. Whether that is the intellectual transformation gained by such stellar programs as MIUSA‘s
student exchanges, the personal transformation gained from a good
vacation, or the systemic transformation of projects from disability
& development organizations such as Rosangela Berman Bieler’s
Inter-American Institute on Disability & Inclusive Development
(Instituto Interamericano sobre Discapacidad y Desarrollo Inclusivo) it
is still true that travel transforms.