Such a long day awaits me. My friend Amanda (who is autistic) is fighting for her life in a hospital where she’s been counseled to give up and die. Able bodied people can’t imagine disability life–much less an inventive and rewarding one. Nowadays hospitals employ people known as “hospitalists” who look for ways to shave a buffalo nickel by counseling patients to take the easy way out. Such a long day awaits.
Here is to the long days, to their unpredictable, happenstance cosmic jokes and blues, to the songs overheard by chance. Once while floating in a gondola in Venice I heard Frank Zappa’s “Peaches en Regalia” coming from a high, open window.
No electroplated gussied running dog of the bourgeoisie wearing a faux lab coat should be allowed to tell Amanda about her prospects for a good life so long as she wants to ride the improbable gondola.
Such a long day awaits. I have many autist pals. Here’s to their thrilling minutes.