The Blind Whale, Part One

I am inside the blind whale. I should say it isn’t Melville’s whale nor is it Jonah’s brute. The blind whale is made of all the dreams of sighted people occurring now and simultaneously. It is easier to say what the blind whale is not: it isn’t a prospect; it’s not a fortune; it’s not a standard nightmare. It isn’t of the left or of the right.

**

Now is the blind whale distinct from blindness itself? Yes. Genuine blindness is just a fish. A small one. A guppy. It swims in shallows. By distinction the blind whale cannot be seen. It’s a visual man’s phantasm. Or woman’s. Women are also screwed up by the blind whale.

**

Of course sighted people are terrified of blindness but this isn’t that. If the damned blind whale has significance beyond furnishing my roof it must be this: it’s composed of the oneiric afterthoughts of all visual humans. I do not mean repressed fears. Forget Freud and Jung. I mean the dropped car keys and lost buttons in dreams.

**

Petty detail is what the blind whale feasts on. The krill swims straight into the maw. What I mean is “sighted petty” —the blind spot in a rearview mirror.

**

I’m inside a non-fictive creature designed haphazardly by the small frights of the sighted. This is a problem.

**

When reading “Moby Dick” I’m always struck by what Melville doesn’t have to say. For instance he needn’t say that the intricate industrial-scientific butchery of a whale carcass is merely bloody psychoanalysis misunderstood. Nor does he have to say, “always remember what’s under the boat.”

Stephen Kuusisto and HarleyABOUT: Stephen Kuusisto is the author of the memoirs Have Dog, Will Travel; Planet of the Blind (a New York Times “Notable Book of the Year”); and Eavesdropping: A Memoir of Blindness and Listening and of the poetry collections Only Bread, Only Light and Letters to Borges. A graduate of the Iowa Writer’s Workshop and a Fulbright Scholar, he has taught at the University of Iowa, Hobart and William Smith Colleges, and Ohio State University. He currently teaches at Syracuse University where he holds a University Professorship in Disability Studies. He is a frequent speaker in the US and abroad. His website is StephenKuusisto.com.

Have Dog, Will Travel: A Poet’s Journey is now available for pre-order:
Amazon
Barnes and Noble
IndieBound.org

Have Dog, Will Travel by Stephen Kuusisto

(Photo picturing the cover of Stephen Kuusisto’s new memoir “Have Dog, Will Travel” along with his former guide dogs Nira (top) and Corky, bottom.) Bottom photo by Marion Ettlinger 

The Shoes of the Preparation of the Gospel of Peace

Once I dropped a spoon in the snow and when I couldn’t retrieve it I was tempted to view the matter as a comment on my life.

I imagined a balloon-like God who’d seen me groping in snow.

In general it helps to think of God as a Macy’s balloon.

In general one’s groping has no meaning.

Still, poking in shadows is central to blindness.

I search for my shoe in a strange hotel.

Perhaps a sighted person finds the shoe instantly.

I lie on the floor spreading my arms like a diver.

Shoe. No shoe. Shoe of the mind. Platonic.

Fingers scrabbling under the inauspicious bed.

Carl Jung said: The shoe that fits one person pinches another; there is no recipe for living that suits all cases.

What of the lost shoe?

Are not all lost shoes equal?

To find a shoe in a foreign hotel.

Eyes evolved for only this…

Stephen Kuusisto and HarleyABOUT: Stephen Kuusisto is the author of the memoirs Have Dog, Will Travel; Planet of the Blind (a New York Times “Notable Book of the Year”); and Eavesdropping: A Memoir of Blindness and Listening and of the poetry collections Only Bread, Only Light and Letters to Borges. A graduate of the Iowa Writer’s Workshop and a Fulbright Scholar, he has taught at the University of Iowa, Hobart and William Smith Colleges, and Ohio State University. He currently teaches at Syracuse University where he holds a University Professorship in Disability Studies. He is a frequent speaker in the US and abroad. His website is StephenKuusisto.com.

Have Dog, Will Travel: A Poet’s Journey is now available for pre-order:
Amazon
Barnes and Noble
IndieBound.org

Have Dog, Will Travel by Stephen Kuusisto

(Photo picturing the cover of Stephen Kuusisto’s new memoir “Have Dog, Will Travel” along with his former guide dogs Nira (top) and Corky, bottom.) Bottom photo by Marion Ettlinger 

The Blind Guy Persisted….

Because racism, ableism, homophobia, misgogyny are rampant right now at Syracuse University (the story broadly told) I feel unwelcome on campus. I’m blind and have struggled to get basic accommodations as a faculty member for seven years. When I speak about this I’m largely treated to double talk. It’s too hard for this university to make books and articles accessible in a timely way. It’s too hard to assure that sighted support is available to the blind. I’ve been told these things and if I’m hearing them I can only imagine what disabled students are experiencing. Except I don’t have to imagine. They tell me. They tell me over and over what a mean spirited place SU really is.

Yesterday I was told to be quiet. My mistake? I posted a cris de coeur about these problems on a departmental listserv. I was told that my opinions offended people.

That’s of course how ableism works. It offends the ableists to know they’re part of a structural system. They think themselves liberal, progressive, tolerant. Blaming the disabled for calling attention to the problem is Ableism 101.

I said I’d never post to the departmental listserv again.

But I won’t stop talking about the ugliness of higher education and disability discrimination. I won’t.

I love the fact that Syracuse was the first university in the US to formally launch a disability studies program. I’m proud to be an activist faculty member who insists on human rights and who, like my faculty colleagues in many areas of study speaks about the hegemony of discrimination and the role of institutions in the creation of second class status for so many, including the disabled.

Closing, here’s a poem I wrote in the manner of Allen Ginsberg:

America with your history of eugenics.
With your hostility to the global charter on disability rights.
With your jails, stocked with psychiatric patients—worse than the Soviet Union. We are Gulag Los Angeles; Gulag Rikers Island; Gulag Five Points in Upstate New York.
America with your young Doctor Mengeles.
With your broken VA.
With your war on food stamps and infant nutrition.
With your terror of autism and lack of empathy for those who have it.
With your 80% unemployment rate for people with disabilites.
With your pity parties—inspiration porn—Billy was broken until we gave him a puppy.
With your sanctimonious low drivel disguised as empathy.
With your terror of reasonable accommodations.
With your NPR essays about fake disability fraud, which is derision of the poor and elderly.
With your disa-phobia—I wouldn’t want one of them to sit next to me on a bus.
America when will you admit you have a hernia?
When will you admit you’re a lousy driver?
Admit you miss the days of those segregated schools, hospitals, residential facilities—just keep them out of sight.
When will you apologize for your ugly laws?
When will you make Ron Kovic’s book irrelevant?
America, you threatened Allen Ginsberg with lobotomy.
Ameica you medicated a generation of teenagers for bi-polar depression when all they were feeling was old fashioned fear.
When will you protect wheelchairs on airlines?
When will you admit you’re terrified of luck?

–Stephen Kuusisto

Stephen Kuusisto and HarleyABOUT: Stephen Kuusisto is the author of the memoirs Have Dog, Will Travel; Planet of the Blind (a New York Times “Notable Book of the Year”); and Eavesdropping: A Memoir of Blindness and Listening and of the poetry collections Only Bread, Only Light and Letters to Borges. A graduate of the Iowa Writer’s Workshop and a Fulbright Scholar, he has taught at the University of Iowa, Hobart and William Smith Colleges, and Ohio State University. He currently teaches at Syracuse University where he holds a University Professorship in Disability Studies. He is a frequent speaker in the US and abroad. His website is StephenKuusisto.com.

Have Dog, Will Travel: A Poet’s Journey is now available for pre-order:
Amazon
Barnes and Noble
IndieBound.org

Have Dog, Will Travel by Stephen Kuusisto

(Photo picturing the cover of Stephen Kuusisto’s new memoir “Have Dog, Will Travel” along with his former guide dogs Nira (top) and Corky, bottom.) Bottom photo by Marion Ettlinger 

Delta: Leave the Blind Alone

As a blind traveler who uses a guide dog I’ve flown a lot of places. My professionally trained dog lies under my feet and never stirs, no matter how long the flight. I’ve had four such dogs and all of them were trained by a top notch school in New York called Guiding Eyes for the Blind. Although going places with a disability isn’t always easy its generally achievable because protective laws are in place that guarantee the disabled rights of passage. In the United States both state laws—known as “white cane laws”—and federal laws, including the ADA and the Air Carriers Transportation Act have made it possible for blind people and their exemplary dogs to go anywhere the public goes.

In the world of service animals guide dogs are the gold standard. Trained to guide the blind through heavy traffic, watch for low hanging branches, take evasive measures when cars or bicycles run red lights, watch for stairs—even prevent their partners from stepping off subway platforms, everyone can agree that they’re the “few, the proud” just like the Marines. Yes, and they’re also trained to stay quiet and unobtrusive in restaurants and when using public transportation.

This canine professionalism is possible because guide dog schools spend tens of thousands of dollars breeding, raising, and training each and every dog. In turn guide dog teams have earned the respect and admiration of the public here in the United States and around the world.

Recently Delta Airlines, in an effort to curtail the appearance of fake service dogs on airplanes has issued a new requirement that actually hurts the blind. Delta is demanding that service dog users upload veterinary health certificates to their website 48 hours prior to flying. This is essentially a stumbling block—an obstacle designed to impede the blind while doing very little to halt illegitimate or phony service dogs from boarding flights. As a blind person who uses a tasing computer I can tell you that navigating websites and uploading documents isn’t easy. In fact its often ridiculously hard.

The blind and their amazing dogs are not the problem for Delta or other airlines. Fraudulent service dogs are a problem for sure, but really, do they think dishonest people who are already passing off their pets as professionally trained dogs will be unable to attach rabies certificates on a website? For sighted people this is a snap.

All guide dog users carry ID cards issued by the guide dog schools, certifying that the dog team pictured is legitimate and has graduated from a real service dog training program.

I don’t know what to do about the sharp increase in fake service animals on airlines, but I do know Delta and other carriers should leave the blind alone. We’ve earned our passage.

Stephen Kuusisto and HarleyABOUT: Stephen Kuusisto is the author of the memoirs Have Dog, Will Travel; Planet of the Blind (a New York Times “Notable Book of the Year”); and Eavesdropping: A Memoir of Blindness and Listening and of the poetry collections Only Bread, Only Light and Letters to Borges. A graduate of the Iowa Writer’s Workshop and a Fulbright Scholar, he has taught at the University of Iowa, Hobart and William Smith Colleges, and Ohio State University. He currently teaches at Syracuse University where he holds a professorship in the Center on Human Policy, Law, and Disability Studies. He is a frequent speaker in the US and abroad. His website is StephenKuusisto.com.

Top Ten Reasons Why the Blind Can't Get Ahead

10. The public still thinks blindness is a great misfortune.

9. Vocational and orientation-mobility training are horrifically funded—that is, its left up to the states and nonprofit organizations when it should be offered by every eye clinic and billable to Medicare.

8. Blindness advocacy organizations fight amongst themselves like the characters in “Gulliver’s Travels” who start a civil war over the question of which end of the hard boiled egg to break first—the big or small one.

7. Just try using a cell phone or a Macintosh pc. I mean “off the shelf” “ready to go”—just try it.

6. Just try using a PC “off the shelf” without expensive “third party software”—just try.

5. Just try going to a movie and asking for audio description.

4. TV can’t be watched—probably a good thing.

3. Bank machines; vending machines; signage; endless roulette of incomprehensions…

2. Blind students drop out of college at higher rates than other disabled student groups. See above problems.

1. Access to printed or electronic information remains highly provisional. Thank you Google; Microsoft; Apple; Adobe; Mozilla; Sun Micro Systems; and all the rest of you bongo whacking Information Technology designers who continue to think of the blind as “add on” people. In Disability Studies we call this principle “the defective people industry”.

Why am I posting such a riposte on Memorial Day?  Ask the Blinded Veterans of America.

S.K.

Iowa blind advocates (Steve being one of them) disagree over court ruling on paper money

Advocates Disagree…(click for complete article)

Updated May 20. 2008 6:04PM
By Diane Heldt
The Gazette
diane.heldt@gazettecommunications.com    

A federal appeals court ruling Tuesday that paper money — indistinguishable by touch — is discriminatory to blind people was hailed by some advocates as a long-awaited step forward, while others said a change is unnecessary and plays into negative stereotypes about the blind.

Blind people have adapted and often fold money to distinguish the bills, but no longer would have to rely on others to help them if the Treasury Department makes bills of different sizes or prints them with raised markings, supporters of a change said.

"What’s at issue here is the ability to identify money without other people helping you," University of Iowa English Professor Steve Kuusisto, who is blind, said. "My view is, the most accommodations possible help the most people. To be opposed to accommodations that help people is narrow."

The American Council of the Blind sued for such changes, but the government has been fighting the case for about six years. The U.S. Court of Appeals for the District of Columbia ruling could force the Treasury Department to alter money, though the ruling is subject to appeal.

Continue reading

Still

As written by Simi Linton:

Definitions of the word “blind” found in my computer’s Thesaurus
support the idea that blindness limits . The terms ignorant,
imperceptive, insensitive, irrational, oblivious, obtuse, random, rash,
stagger, unaware, unconscious, uncontrolled, unknowing, unplanned and
violent came up on my screen. My Roget’s Thesaurus also provided
inattentive and purposeless. These meanings lurk under the surface when
the word “blind” is used whether on its own, or in pairings, in such
phrases as “blind passion”, “blind rage”, “blind justice”, “blind
drunk” and “blind faith”.

How can the culture get away with attaching such an absurd
proliferations of meanings to a condition that affects, simply, visual
acuity? Of all the impairments, blindness seems to call up the most
fantastical of responses. These are used, uncritically and without
apparent irony by many and often.

Read Simi’s post in its entirety:  Blind Blind People and Other Spurious Tales