I Blog Often About Disability Because

Because I’m like a bird who can’t decide which tree he wants to live on.

Because disability is the whole forest. 

Because my deaf blind friend writes astonishing poems and my two best autist friends are (every day) freeing unspoken vowels from long hidden boxes. 

Because myths of “normal” are a trap—Joe wishes to be normal so he won’t stand out. 

Of course people don’t want to stand out. Its best really to be normal. 
Take it from the boss. Have a nice weekend barbecue. 

Because as a blind kid I dared a boy who was bullying me to ride his bicycle blindfolded. He broke his arm. 

“The English feel schadenfreude even about themselves.” (Martin Amis) Comedy is not concerned with the sufferings of normal people. (Kuusisto)

Because normalcy is getting smaller and my forest is growing. 

Because I believe in a just society. One that takes care of aging children with intellectual disabilities. One that celebrates parents with disabilities. Did I say this correctly? One that celebrates. 

Because, as John Hockenberry says: “In America access is always about architecture and never about human beings.”

I blog often about disability because I believe in human beings. 
 

 

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Author: stevekuusisto

Poet, Essayist, Blogger, Journalist, Memoirist, Disability Rights Advocate, Public Speaker, Professor, Syracuse University

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