Disability 24-7

I’m not really disabled but the “D” follows me around. He’s a shadow. He’s a shadow who’s roughly 7 years old and he wants to show me the picture he’s just drawn. He is in short, annoying. 

“C’mon, look!” he says. “Look!”

I look. Its a Jackson Pollock on the back of an envelope. 

“That’s your blindness,” he says, proudly. 

I try explaining that blindness isn’t so complicated. I tell him its like having brown hair. Its only a component part of a life. 

“No,” he says, “Blindness is what everyone sees and so you live inside it, just as Pollock lived inside his paintings.”

The D has a point. Even on my best days I can’t control the pesky public. 

“Besides,” he says, “blindness becomes you.” 

“You mean that ironically?” I ask. 

“Oh,” he says, “of course I do.” 

“So I could conceivably “un-become” blindness?”

“No, that would be an illusion,” he says. 

Then he adds: “If the public thinks your blindness is the whole shebang, its the shebang.”

And because he’s roughly 7 years old he says: “Nyah nyah!” 

“If you go water skiing, you’re a BLIND water skiier!” 

“If you take a walk, you’re a BLIND guy taking a walk.” 

“Get over it!” 

“Here, look at what I drew!” 

“Now you’re really being ironic,” I say.

“I’ll describe it for you. Its a man being chased by bees.”

“How Dantesque of you,” I say.

“Oh,” he says, “I’ll have to read him.”  
 

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Author: stevekuusisto

Poet, Essayist, Blogger, Journalist, Memoirist, Disability Rights Advocate, Public Speaker, Professor, Syracuse University

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