Say It Ain't So! CNN: Mother Seeks Girl's Womb Removal

Oh No.  Here we go again.  This article was brought to my attention via a link from Femineste who already has quite a string of comments in response.  Check them out. 

Apparently the "Ashley Treatment" debate had not made it’s way across the Atlantic Ocean.  At least there is no indication of such in this CNN article: Mother Seeks Girl’s Womb Removal

Follow the link and you find these "Story Highlights"

  • Mother seeks to have womb of severely disabled daughter, 15, removed
  • Briton wants to prevent cerebral palsy sufferer feeling pain of menstruation
  • UK doctors seek legal advice to see if they can perform hysterectomy 
  • Charity for disabled says move could infringe human rights

Perhaps before a definitive decision is made on behalf of this young lady who they claim has no say, all parties might want to consult with Anne McDonald.  Granted, the mother seeking to remove her daughter’s uterus is not talking about a "growth attenuation" procedure.  But where does one draw the line?

Brace yourselves for another round of, shall I say, "spirited" debate.

~ Connie

Here goes:

"Ashley’s Back" by Emma;
UK Mom seeks hysterectomy for daughter with CP by Wheelie Catholic;
We Do Know Better by Penny L. Richards;
Another Assault on Human Rights by David

Tragic update as of today, October 10, 2007: "Doctor at center of stunting debate kills himself"

Split This Rock Poetry Festival: Mark Your Calendars!

At about the same time I stumbled on this post which neatly summarizes the Split This Rock Poetry Festival now being organized in Washington, D.C., we received an e-mail from Sarah Browning, the Festival Coordinator.  The excitement over this event is building and I thought it time to mention it to our friends so you can mark your calendars.  Steve has been asked to participate in this event and what an honor that is.  Just look at this list of featured poets, will you!

The dates chosen for this event coincide with the fifth anniversary of the invasion of Iraq.
The only "glitch" is that Easter turns out to be very early this year, falling on March 23, 2008, the last day of the festival.  Easter, spring in Washington, D.C., poetry – could be lovely!

Blue Girl, here’s your chance to soak up a lot of poetry!  See you there?

Georgia?  Lesley?  Andrea and Zac?  David?  See you there?

~ Connie

Never, Never Talk to the Customer

There are physicians working in America right now who don’t talk to their patients.

While many in what we loosely called "the medical community" are aware of the aforementioned matter, there’s a corresponding assumption that the problem will resolve itself.

I recently decided to chat with some professionals from other fields just to see how they handle this kind of "disconnect" in their respective areas of inquiry. The names below have been changed because, well, that is how they do things in the witness protection program.

Jasper Schunt is an internationally recognized architect. He is thin, appears to be in his early sixties, and he looks a good deal like the comedian Don Knotts. You would never guess that he’s the man behind the blueprints for the world’s first "Fast Food" indoor playground. In fact, the more you look at him, the more you suspect he has never had anything to do with kids.

"You’re right!" Jasper says while wiping his hands with what looks like an oil soaked baby blanket. "I really don’t know a darned thing about kids. In fact when I get near children I tend to get hives."

I ask Jasper how he designed commercial playgrounds for children if he never talked to any kids.

"Rats," he says. "You put them in a tube and they’ll always go to the other end. And of course the more rats you put in, the more they’ll keep moving. Kids are no different."

When I ask him if he’s ever read Robert Coles’s book "The Political Lives of Children" he says that he doesn’t have time for "touchy feely" stuff. "Look, I gotta keep the nation’s insufficiently medicated offspring moving through these plastic tubes."

Before I leave him, I ask Jasper about his latest project.

"It’s a spin off of the Chuck-E-Cheese playground concept: I call it "Senior World"–I guess you could say it’s a kind of "roach motel" for the old folks–you know–"they check in but they don’t check out"?"

Vilnius Trap is a licensed plumber. The man has a Ph.D. from Cornell University in linguistics but after years of grinding poverty he decided to turn his back on the adapted neurological semiotics of the great "vowel shift" for good, old fashioned Victorian threaded drains.

"Yeah, I know," he says, "lots of people say I look a whole lot like Jeff Goldblum in that movie ‘"The Fly’–I have these really big eyes and forget that I’m staring at people. Plumbing work is good for me because I tend to be under sinks or behind walls."

"How do you talk to your customers?" I ask.

"I don’t actually talk to them," he says. "I mean, you know, they’re just going to tell you how the ceiling is leaking above the living room and they’re going to tell you a long, boring story about the piano from Latvia and blah blah blah."

"I haven’t got time for the domestic palaver, not if I’m going to rip out walls and floors and take a week to do what’s really a one day job."

"I’m never rude about it. I just tell them they have only one option because the situation is so serious."

"The really good thing is that people are generally terrified of their plumbing. You know, they feel grateful just to have it at all, and most people are secretly worried that if they don’t call a licensed plumber, well, something unimaginable will happen deep below the earth."

When I ask him if he’s ever asked his customers about anything having to do with their houses or apartments he waves his hand dismissively.

"No," he says, "why spoil things for them? I mean let’s be real: every plumbing job is only about 3 things: 1. the customer is friggin’ terrified that his water main is going to break at any moment; 2. they trust that the plumber has almost occult powers; and 3. they expect to pay vast sums of money to an essentially anti-social expert who is wearing ill fitting pants."

It is reassuring to know that uncommunicative professionals are still in demand.

S.K.
 

Give Peace a Chance, Redux, etc.

I am in no way unique when I say I’ve watched the horrifying video from the University of Florida  in which a student is "tasered" by campus police during a speech by Sen. John Kerry. Even a blind viewer can discern that this is an outrage and that the campus cops are guilty of suppressing free speech. This is an ugly demonstration of American intolerance and it is shameful.

The University of Iowa (where I now teach) recently decided to arm campus police despite opposition from student and faculty groups. One can understand the university administrators’ fear that the unspeakable violence at Virginia Tech could happen anywhere and at any time. .

But then you watch this video and see campus security dragging away a student who has in effect done nothing more than exercise his right to free speech. He doesn’t even resist arrest and they shoot him with a taser. One can be forgiven for believing that the cops at the University of Florida used the taser simply because they had it.

Others in the "blogosphere" will opine that this incident in Gainesville represents "Bush’s America" or they’ll carry on about John Kerry’s pathetic droning and inappropriate joke as an innocent man takes a technological beating right before his eyes.

The real issue is that the University of Florida gave the cops a taser. Other colleges and universities are quickly arming their security forces with real handguns.

Yes, I am in no way unique. I am chilled to the bone.

S.K.

Why Won't They Tell You?

Is it just me?  Have you sensed that a shift is occurring underneath America?


One is tempted to use the recent senseless mining disaster in Utah as a form of metaphorical realpolitik—certain assumptions about the indifference of Americans to the plight of laborers (an indifference exploited by the “trickle down economics” crowd and their descendents among the neo-cons) is coming to an end.


If the term “stewardship” has a slang sister it might be “get her done”.  Americans are tired of insufficient government and corporate profiteering and the evidence is everywhere.  Perhaps the most significant proof is that the silly “on again off again on again” presidential   candidacy of Fred Thompson aint sparking the tinder grass of  middle America.


I believe that despite the GOP’s collective veneration of Ronald Reagan that even “the great communicator” would have trouble selling his economic ideas to the current electorate.

While Republican senators and representatives look for ways to distance themselves from the war in Iraq they might also think about the very real need for investment in the nation’s social and physical infrastructure.

The candidate who is best able to articulate this vision of an optimistic American renewal of the middle classes will be the winner. The war should be a factor but I don’t currently believe this is the issue that’s moving below ground and in the collective unconscious of the body politic.


Still, someone on the stump has to be brave enough to say that the nation is tired of third class government. Not all of the New Deal was bad Mr. Reagan.


Please don’t get me started on the subject of public transportation.

SK

Midwest Regional Disability Lifestyles Conference and Expo

Midwest Regional Disability Lifestyles Conference and Expo: Sharing Our World with You
September 29 – 30, 2007.

In collaboration with VAS Arts Ohio, Columbus Recreation and Parks Dept., Ohio Wheelchair Sports Association, and a growing list of other prominent sponsors, The Ohio State University will host the first annual Midwest Regional Disability Lifestyles Conference and Expo. This event is planned by people with disabilities, for people with disabilities, their friends, family, and the professional communities who support them.

In combination with a large expo of vendors and service providers, a Saturday night reception party, and keynote address, there will be workshops on various activities, recreational opportunities, arts programs, and competitive sports clinics and demos on Saturday and Sunday.

For more information or for a proposal submission form (deadline for submissions 5/31/07), please CONTACT: Derek Mortland, midwestregconf@yahoo.com.

For session descriptions and to print a registration form in PDF format to be filled out & mailed, go to: http://ada.osu.edu/MobilityConf2007/SessionDescriptions.html

Thoughts While Shaving

Ronald Reagan was a conservative. Well, no. He was a quasi-libertarian pragmatist. The difference in this instance is rather great.

The current rat pack of GOP candidates races after the imprimatur of true conservatism but they fail to understand Reagan’s complexity and they certainly have failed to recognize that the last true conservative to run for the White House was Senator Barry Goldwater.

The GOP hopefuls could learn a lot by both understanding why Reagan was less conservative than historical revisioning would suggest. And they would be wise to understand the intellect of Barry Goldwater, whose conservative views did not necessarily make him into a rubber stamp representative of the far right.

The neo-cons have all but ruined the GOP. And unfortunately no one who is currently running seems to have the courage to say so.

I can’t imagine Barry Goldwater raising his hand in tacit agreement that Charles Darwin is problematic.

As for the Dems: none of the current candidates has effectively suggested how he or she would be substantively different from a vague and sentimental retro-vision of Bill Clinton.

It seems like both parties have this addiction to the same vague retro-vision problem.

In the meantime I sure as hell wish someone would raise their hand for Darwin and for American science over there in the GOP.

I wish someone in the Democratic field would say that we need a strategic national defense plan rather than the Bush administration’s muddled and wrongly named "war on terror".

I wish that both parties would get behind the American middle classes.

I would like to hear a whole lot less about religion.

I’d like to hear more about the safety of our food supply.

I’d love to hear more about a national drive to improve music and the arts in our schools.

In the meantime I’m still shaving. I model myself after the British Empire. Just keep clean. Muddle onward.

In the meantime I think the most able person in the candidate pool is Hillary Clinton.

In the meantime I wish any of the candidates would talk about disability.

S.K.

Reality: Books for the Blind Still in Peril

You can imagine my surprise when I received a cell phone call yesterday from a staffer at U.S. Rep. Debbie Wasserman Schultz’s office in Washington. Rep. Wasserman Schultz’s office was calling to "correct the record" about the funding emergency facing the Talking Books program for the Blind. Apparently the folks in her office were aware of my two posts about the funding emergency that now threatens the future of books for people with reading related disabilities.

I was hoping of course to hear that the dire news about the appropriations committees decision regarding the Talking Books program had been completely misreported and that the funding needed by the Library of Congress to continue the National Library Service was already in place.

But in fact the funding that was authorized by the committee chaired by Rep. Wasserman Schultz has only given the National Library Service for the Blind approximately one third of the funding they will need to continue the program. This is a fact. You can look it up.

Apparently there was an inaccuracy in my post according to the Representative’s office, namely that the committee did not authorize the director of the Library of Congress to spend money for the Talking Books program on other programs. Aha! Here’s what they did.

The money targeted for the blind services (which is still only a third of what’s needed to continue the program, remember?) can ONLY be spent on something else if the director of the Library of Congress goes back to the committee and receives permission.

Now that’s really reassuring. I feel so much better today.

I urge my readers and friends to campaign vigorously for the full funding of the Talking Books program and please don’t let up. Taking books away from the blind and elderly is unacceptable. Period.

S.K.