Affirmations

    

If the world is a verb as Heidegger once said it may be than the world is worlding without us. This isn't news if you're a Mayan priest or a Buddhist or a Labrador retriever but it "is" news for those who are caught in the trap of getting and spending or for those who are the victims of getting and spending like the children of Rawanda. The world will die on its own but we have the power to sustain life if we so choose.

I believe that in a season of associated holidays this pledge to take care of life is all encompassing and this principle offers the only antidote to cynicism.

If you are worn out with holiday treacle here are a few quotes I favor this time of year. Happy holidays to all.

Ralph Waldo Emerson:

What lies behind us and what lies ahead of us are tiny matters compared to what lives within us.

Albert Einstein:

"

The most important human endeavor is the striving for morality in our actions. Our inner balance and even our very existence depend on it. Only morality in our actions can give beauty and dignity to life.

"

Emma Goldman:

"The ultimate end of all revolutionary social change is to establish the sanctity of human life, the dignity of man, the right of every human being to liberty and well-being.

Stephen Kuusisto's dog:

"Dignity Shmignity. If you don't have health care–and that includes food,clothing and shelter along with medicine and the right to see a doctor, then dignity is a false pretense like those porcelain frogs you see in suburban gardens."

Sammy Davis Jr.:

"There's nothing that can match Broadway for stature and dignity."

Shopping Season

"I went to the store when they opened up the door

I said "please, please, give me some more."

–Frank Zappa

I went to the store and found that people who use wheelchairs or travel with a guide dog (and hence take up some extra space) couldn't get in.

I went to the store and found that people with disabilities could "get in" but they couldn't navigate the aisles.

I went to the store and found that the security personnel wouldn't let me in with my guide dog.

I went to the store and found that they didn't have any accessibility at all for wheelchairs.

I went to the store and was treated like crap . I remembered that I shouldn't feel special cuz that's the way it goes for everybody. Right-e-o?

I went home and lay down on the couch. I slept for awhile. I dreamt that a giant jade Rhinocerous was drinking absinthe from a Roman aquaduct in my bak yard. I felt good about this.

I will now dedicate this little arpeggio to Barnes & Noble, Macy's, CVS, and almost all the stores in Iowa City, Iowa.

I especially want to dedicate this to the Barnes and Noble in New York City on sixth avenue where once I gave a literary reading which, incidentally was filmed by NBC and when I came back to shop there I was prevented from entering the store because of my guide dog.

I should have filed a formal complaint with the Department of Justice but I was young and frivolous in those days.

Incidentally the only disability friendly store in downtown Iowa City is our fabulous "indie" bookstore Prairie Lights where my dog is treated like the soulful girl she really is. And you can use your wheelchair too.

SK

Feeling Sober at Year's End

    

I am ending 2008 with what the poet Norman Dubie has called "the green sickness of middle life" as I am ever mindful that the poor and people with disabilities and the elderly are far ahead of most Americans when it comes to suffering in our collapsed economy. The predations of nursing homes, and of state run institutions, half way houses, and schools for the mentally challenged are widely reported in the nation’s news although these stories tend to get little play in the national television newscasts. Instead we hear about the Illinois Governor’s corruption scandal as if petty thievery was something new to the political life of our nation. Meanwhile off camera the poor and defenseless are being herded into the streets or worse, they’re being placed in unconscionable institutions where the employees are without education and all too often without even the rudiments of compassion. The abandonment of our nation’s most defenseless citizens began in the Reagan administration and the problems have never been resolved insofar as the ruling classes have resisted national health care.

And so I am gloomy as the year ends. I see institutions of higher education all across this country that have still failed to adopt the minimum standards of disability compliance, their administrators imagining that disability isn’t really an intellectual matter but simply a question of plumbing in some building—and certainly such administrators happily imagine that people with disabilities are not a part of the cultural conversations of a university or college curriculum or diversity plan.

I’ve seen how my friend Howard has struggled to get cable television to imagine a channel that could be devoted to the real lives of over 54 million Americans with disabilities. Howard has found broad and authentic enthusiasm from disability rights activists, writers, scholars, journalists, and the arts community but no substantive interest from people who could invest in such an enterprise. When we have cable TV channels devoted to poker playing for god’s sake I think reluctantly that the issue is disability itself. America still isn’t ready to conceive of disability as a real part of daily life. We’re still hooked on sappy television about "overcoming" a disability by climbing a mountain or the sweet forbearance of contemporary Tiny Times who remind us all of our god given good luck. Real disability is of course far different and programming about people who live and work and play while managing their disabilities A cable channel devoted to real disabilities would of course do the whole country a lot of good. But we’re not ready for real people on TV unless they’re pitted against one another in a sorority house or fighting over the broiled tarantula legs on a desert island.

I remain optimistic because President-elect Obama is going to work like hell to get something like health care up and running. I remain optimistic because people with disabilities are not going to go away and their allies are diverse and strong and poised to make a real difference in the years ahead.

Still I believe that the smug media compartmentalization of stories about people with disabilities is a very sad contemporary reality and one that contributes to the peculiarly American Puritanical tradition that somehow those in need must deserve it. I’m experiencing a great deal of schadenfreude these days as I watch the corporate classes lining up for their bailouts—the very classes of our citizenry that have argued against programs to help the most destitute.

I think as the year ends that a good rule of thumb is to ask when debating the merits of our public officials or of those who would like to become the same "What have you done for the poor?" In this paradigmatic area Caroline Kennedy beats her rivals for the New York senate seat vacated by Hilary Clinton hands down.

S.K.

    

The Real Work

        Barack Obama’s selection of a certain (here to be unnamed) right wing preacher to lead the invocation at his inauguration is receiving all kinds of praise and blame and I don’t really know if I

 

care about the issue. In general terms I don’t think preachers mean a tinker’s tutu when it comes to life in the big world. I can’t get worked up about preachers anymore. They’re on my list of facts that exceed intellectual energy along with onion farming and hemp clothing. I just don’t have the time. It does strike me that no one should be surprised that Barack Obama has no taste in preachers. But I think we already knew that.

 

The thing that matters more to me than anything else at this juncture is the failure of the

United States

to champion universal human rights. Whether you’re gay or straight; abled or disabled; or whether you hail from historically marginalized and oppressed ethnic group we must address the use of prisons as warehouses for America’s poor; the horrific and life threatening conditions in facilities for people with mental disabilities; the desperate conditions of the elderly; the plight of poor women with children; I could go on and on.

 

I always liked John Lennon’s quote: “They keep you doped on religion and sex and TV…”

 

I hope the Democrats surprise me with a push toward human rights but I’m not holding my breath.

 

Last night I was momentarily uplifted by some discussions in the Senate about holding Donald Rumsfeld responsible for the

U.S.

adoption of torture. But I came to my senses. The Democrats always flirt with these things and then they go flat as ginger ale.

 

I’m slapping myself around and getting ready for post election disappointments from the Democratic Party.

 

In the meantime, while everyone is beating up on Bill Clinton for accepting 10 million dollars from the Saudis for his presidential library foundation I’d suggest that people stop to remember that that 10 million was American money in the first place. All Bubba did was bring it back home. Personally I say “more power to him.”

 

SK

        

How Many Fingers am I Holding Up, Part Two

 

 

 

My friend William Peace has alerted me to a tasteless portrayal of New York

 

        Governor Paterson on last Saturday’s NBC comedy show Saturday Night Live. Bill’s post can be read at his blog “Bad Cripple” and I urge you to see what he has to say about the affair. Here’s the link:

 

http://badcripple.blogspot.com/

I think blindness can be funny. For instance when traveling alone I sometimes walk into the Women’s Room. This is funny for about a dozen reasons but most obviously it’s what every fifth grade boy wants to do. Women, seeing a man with a guide dog stumbling into their midst are either amused or solicitously helpful or both. I don’t make this mistake very often and when I do I try to cover it with some of my own humor: “I said find the Grille, not the Girls!” I wag my finger at the dog.

 

But the SNL skit presented Governor Paterson as being severely unable to orient himself to public space; depicted him holding a script upside down; made crude use of his inability to focus his eyes. These are the old comic gags that rude French comedy used to employ back in the late middle ages. Starved for humor the locals would round up blind men and give them oversized fake spectacles and musical instruments that they couldn’t play as well as fake sheet music they couldn’t read.

 

I wonder if the folks at Saturday Night Live find “Step and Fetchit” funny? How about some buck toothed

China

men ruining your laundry? These are the stock figures of racist and able-ist culture and no one who owns anything like an education would judge this stuff worthy of a primetime television show or even in a frat house revue.

 

The terrible after effects are what most concern me. As I’ve said over and over on this blog and in public, people with disabilities remain disproportionately unemployed in the

U.S.

and caricatures like the stumbling and lost version of Governor Paterson do considerable harm out here in the world where real lives are in the balance.

 

NBC owes the good governor of

New York

an apology and they owe me one too.

 

Not ready for Prime Time indeed.

 

SK

The 12 Days of Xmas

So there I was yesterday morning awaiting a flight in the San Antonio, Texas airport when I became aware that very loud Xmas music was being piped all over the terminal—really loud; drop your suitcase loud; bug eyed loud; enough to drive you onto the runway.

Someone told me it was in preparation for the arrival of a flight carrying disabled war vets who were coming home from Iraq and Afghanistan.

Imagine coming into a terminal on your newly crafted prosthetic legs and hearing Jingle Bells or Rockin’ reindeer. It was a sobering sense I had: we don’t know how to welcome the wounded so we aim for Burl Ives singing have a Holly Jolly Xmas.

I think were I coming off that airplane I’d feel even sadder. Call me a gloomy and unseasonable fellow if you want. But Xmas music is commodified treacle under the best of circumstances. It would be better to have a brass band. It would be better to hear “The Stars and Stripes Forever” or Sousa’s “The Thunderer” than “Frosty the Snowman” and I am not in danger of taking this back.

So I’m a sour puss. I can only tell you that the sugar plum fairy better get out of my way.

On the first day of Xmas Uncle Sammy gave to me

My discharge papers and a phat colostomy.
Etc. etc.

SK

The Road Ahead?

The Road Ahead? Screw the Old Folks and Their Gimpy Pals

If you’re wondering what’s up with the social services scene in these United States you can read this sobering article from the right wing Wall Street Journal which doesn’t usually bother with the Dickensian people—prefering all largesse go straight to the bankers, the CEO class, etc.

http://online.wsj.com/article/SB122714130153442755.html

The road ahead is to put the elderly and the home bound disabled into the streets while we throw obscene trillions at the corporati.

President-elect Obama is sitting behind the Truman desk on this one. The old folks and the severely disabled can’t wait long with winter upon us.

I say we could do with at least two less crappy car makers. Maybe Detroit could in the future be a museum kind of like the Rock and Roll Hall of Fame?

Human dignity matters Mr. President-elect.

Don’t drive too much in the middle of the road Sir.

SK

Disability Awareness, Global Style

December 3, 2008

International Day of Persons With Disabilities

This Wednesday marks the twenty-sixth International Day of Persons with Disabilities.  The 2008 theme is The Convention on the Rights of Persons with Disabilities: Dignity and justice for all of us.

Around ten percent of the world’s population live with disabilities. Like our own ADA the UN Convention on Disability promotes and protect the rights of persons with disabilities.  However, all over the world, persons with disabilities continue to face barriers to their participation in society and are often routinely denied the right to participate public and economic life.   Legislation alone can not ensure rights without the commitment of individuals to translate law into custom and practice.   This International Day for Persons with Disabilities is a time to make a renewed commitment to these principles of dignity and justice.

Ohio State Departments, Programs, and support units can mark the day by adding a link to the University’s  Access Concern Form  to their web sites.  It is easy to do – just cut and paste the code     into to your web page.

Links:

UN: http://www.un.org/disabilities/default.asp?navid=22&pid=109
Form: http://ada.osu.edu/access-concerns-form/index.php

Iowa Winter

WE live in a fly over state. NO one comes to Iowa unless he or she is a politician or a poet. You can go down to the local café and find Mike Huckabee eating eggs over easy. You can go to the pub and find a poet from Ireland or Iceland or Chicago. But otherwise this is a closed state. Relatives don’t come here for the holidays.

Iowa is Irkutsk. It’s the prairie. There’s wind out here and then it starts snowing as it did last night. We’re now off limits until late March. It’s time to break out the macaroni and cheese. Time to bring the fire wood into the house. Maybe bring the pigs into the house. Hell, bring everything inside. It’s time for Noah’s Ark. Time to hunker down and read conspiracy theories for the rest of the winter. It’s time to “go gruesome” as the sleet strikes the windows. While the tuna casserole bakes at 375   degrees we shall consider the Kennedy assassination. If Oswald acted alone I’m Donald Trump. Time to read dark novels. The Brothers Karamazov for the 17 time. Snow hits the roof and we’re thankful for the five pages of human mercy in the Brothers K. We would read Dickens but he’s too cheerful. Next to Dostoevsky even Bleak House is cheerful. Isn’t that damned casserole done yet?

ON channel 57 they’re showing Hannibal Lector for the millionth time. He’s about to eat someone. Now there’s a commercial for a new kind of mop. We might as well mop the kitchen while we’re waiting for old Hannibal to eat a man alive. When will the casserole be done? Did we get the grit out of the corner by the door? Did I just hear the first snow plough of the season? Are we ready for this? We’re crazy already and it’s just the first day of snow. Thank God! Here comes Hannibal Lector with a spoon.

The local TV station talks about the snowfall county by county. Iowa

has more counties than Irelandand the weather girl visits every one of them. No one can pronounce these counties. Each time it snows one discovers new and hitherto unknown places. They got four inches in ParacelsusCounty. The sun will never shine there again we’re told.

We would like to go to the movies but all the flicks are Disney or they’re about vomiting teenagers and we conclude it’s better to stay home. We think about ordering Netflix but instead we just go to bed. Wind buffets the north side of the house. The dogs snore companionably.

It’s only 120 days until the thaw. Where’s Dostoevsky? How did my book get in the refrigerator? Is it really only day one?

 

SK   

        

The Miniature Pony

                

There comes a moment when the meeting breaks up and the faculty is done with the formal business. The department chair doesn’t have a gavel but he waves a sheaf of papers and thanks everyone for coming. This is when it always happens: the faculty locks eyes collectively and start talking. I don’t know how many times I’ve been in this warp of ophto-centrism but it’s a routine fact of life. I’m on the “outs” unable to join a conversation. I sit for a time at the edge of the room and listen to the admixture of talkers—a vocal arrangement that’s part driven by familiarity and part by the myriad disasters of the super-ego; part collective relief now the official business is over, part diminuendo of sorts—like cocktail party chatter, a kind of spoken card play. Bridge.

 

My disability can produce routine states of loneliness. I’m unable to join the room though my only problem is seeing or not seeing. Sighted people are neurologically wired to look into one another’s eyes. Then, liking or not liking what they see there, they talk like espresso drinkers.

 

Instantly I feel a wash of loneliness. It’s the kind of loneliness one finds in certain poems by Lorca. Paths overgrown with brush appear. The heart feels it is a little island in the infinite. Worse: I’m thrown back into a childhood experience of solitude. I’m once more that blind kid living at the end of the dead end road.

 

This happens at the end of an ordinary meeting. It happens at the conclusion of a public assembly when the audience gathers in the aisles or in the foyer to talk about the ceremonies. It happens at the intermission at the concert hall.

 

I’m used to this. I’m not without the correspondent balances of brain jazz and. tom foolery that define the inner life.

 

But it’s lonely for whole moments. I will never be able to do anything about this. I can’t get up from my seat and walk into a cluster of unidentifiable people—elbow my way into a klatch of talkers. Nor can I just sit there at the edges of the talk. So I get up and walk outside with my dog.

 

Yes this is a small sadness. It has no serious relationship to large sadness which is grievous and virtually unendurable. I’d say what I’m talking about belongs in a category of miniature isolations like the ones that the elderly know or the parents of teenagers who are deemed ignorant and superfluous by their once loving children.

 

My father was in the Army Air Corps during World War II. He used to say “upward and onward” when far down in his inner life he was suffused with this condition I’m now calling the miniature pony of solo despond.

 

We just get on with it.

 

We keep our powder dry. We save our complaints for something big.

 

I’ve always loved the joke about the parents who have a son who after the age of 2 when most kids start speaking remains strangely silent. They take the boy to doctor after doctor. The specialists say there’s nothing wrong with the boy. Meanwhile he doesn’t speak. Until one day when he’s around 8 years old he says suddenly “The toast is burned!” His mother drops to her knees, grabs his hands, says: “Oh you can talk! You can! Thank God! Tell me, why did you never say anything before?” The boy looks at his mother and says: “There wasn’t anything wrong until just now.”

 

 

SK