Disability in the Morning

Why am I such a sad man? Oh I’m funny alright. I can talk Dolphin like Robin Williams and imitate a medieval jester’s lavish chicken bone dance, but I’m sad. Some days I think it’s because of disability—a “dis-life” is a daily struggle and there’s no use pretending otherwise. If the attitudes of the able bodied don’t get you, the build environment will. Every cripple knows it.

My friend Bill Peace (who is paralyzed) and I often talk about the moments when, early in the morning, we sense respectively we don’t want to leave our houses. The spirit flags. Bill can see it coming: the ugly encounters with parking lot bullies who steal the handicapped parking; the smarmy waitress who says, “I don’t think I could live if I was in your situation.” These things really do occur almost daily. Blind? There are all sorts of miscreants waiting for you. “You can’t come in here with that dog.” “We don’t have time to make our software accessible.”

Whatever. And then one has to imagine the possibility that sadness precedes this life. We bring it with us. Born crying. We die crying, most of us. In the middle we’re supposed to smile.

Don’t get me wrong. I love smiling. I’m not against a good grin.

Sadness, conditional, part of mortality, is exacerbated by disability and there’s no way around it.

The politics of disability struggle keep me awake, literally, for I think about all the disabled who don’t have jobs. They don’t have jobs because there’s profound discrimination in HR circles. If you don’t think so, try this:

Apply for a job. When they call you, tell them you’re blind. You’ll be astonished at what happens next.

Longfellow said: “Every man has his secret sorrows which the world knows not; and often times we call a man cold when he is only sad.”

A consolation I think: few will call me cold.

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