Cookbook

I decided to believe in God. There, that took care of it. 

In the open air market I bought a salmon and carried it home.

The kitchen was a room of souls—my grandmother, long dead, 

whispered about the fish; about baking it in paper, 

I heard the word “shroud” and it seemed right. 

In life she warned everybody against vanity.

This is how you cook a fish—perhaps you bed it in dill—

but it’s the soul, the shadow, the minutes of a life

you’re arranging in a yellow electric kitchen 

with your moist insensible hands. 

Poetry and Disability

American poets who do not identify as being disabled have long used crippling and crippled tropes to signify everything from abjection and spiritual despair to picaresque comedy. My view has always been that since no one is lower on the rungs in America than her poets, and since poetry is often a relatively adolescent art, glib objectification of the disabled is an easy and juvenile matter. Here is a well known poem by James Tate that goes a long way toward illustrating my contention about callow tropism:

Deaf Girl Playing

This is where I once saw a deaf girl playing in a field.
Because I did not know how to approach her without startling
her, or how I would explain my presence, I hid. I felt
so disgusting, I might as well have raped the child, a grown
man on his belly in a field watching a deaf girl play.
My suit was stained by the grass and I was an hour late
for dinner. I was forced to discard my suit for lack of
a reasonable explanation to my wife, a hundred dollar suit!
We’re not rich people, not at all. So there I was, left
to my wool suit in the heat of summer, soaked through by
noon each day. I was an embarrassment to the entire firm:
it is not good for the morale of the fellow worker to flaunt
one’s poverty. After several weeks of crippling tension,
my superior finally called me into his office. Rather than
humiliate myself by telling him the truth, I told him I
would wear whatever damned suit pleased, a suit of armor
if I fancied. It was the first time I had challenged his
authority. And it was the last. I was dismissed. Given
my pay. On the way home I thought, I’ll tell her the truth,
yes, why not! Tell her the simple truth, she’ll love me
for it. What a touching story. Well, I didn’t. I don’t
know what happened, a loss of courage, I suppose, I told
her a mistake I had made had cost the company several
thousand dollars, and that, not only was I dismissed, I
would also somehow have to find the money to repay them
the sum of my error. She wept, she beat me, she accused
me of everything from malice to impotency. I helped her
pack and drove her to the bus station. It was too late to
explain. She would never believe me now. How cold the
house was without her. How silent. Each plate I dropped
was like tearing the very flesh from a living animal. When
all were shattered, I knelt in a corner and tried to imagine
what I would say to her, the girl in the field. What could
I say! No utterance could ever reach her. Like a thief
I move through the velvet darkness, nailing my sign
on tree and fence and billboard, DEAF GIRL PLAYING. It is
having its effect. Listen. In slippers and housecoats
more and more men will leave their sleeping wives’ sides:
tac tac tac: DEAF GIRL PLAYING: tac tac tac: another
DEAF GIRL PLAYING. No one speaks to anything but nails
and her amazing linen.

Deafness, the real nature of deafness exists nowhere in this poem. Moreover, deafness morphs into blindness and a figurative representation of ur-childhood—innocence and simplicity so refined it becomes victimhood. Forget that living flesh and blood deaf girls (or deaf boys) are alert, sentient, far sighted, and entirely in the world. For the purposes of Tate’s poem a deaf girl is a succubus in a petticoat, Lolita without language. 

And we’re meant to read the poem as an inccubus/succubus dream, a vignette all sparkly and nearly hallucinogenic. A play on Blake’s innocence/experience. Tate’s narrator is both repulsed and turned on by weakness and feminine simplicity. Accordingly he’s disabled himself by the experience, robbed of his own capacity for self-narration. Disability is catching, as we always knew. In fact deafness becomes a contagion. A hetero-normative wet dream plague. 

In the hands of able bodied male poets, disability is almost always presented as abjection or lost innocence. It is overtly or vaguely sexualized. Sometimes disability stands for the imagination itself as in this poem by Robert Bly:

A Dream of Retarded Children

That afternoon I had been fishing alone.
Strong wind, some water slopping in the back of the boat.
I was far from home.
Later I woke up several times hearing geese.
I dreamt I saw retarded children playing, and one came near,
and her teacher, face open, hair light.
For the first time I forgot my distance;

I took her in my arms and held her.

Waking up, I felt how alone I was.
I walked on the dock,
fishing alone in the far north.

In Bly’s poem a retarded girl and her teacher are angels straight out of the Romantic imagination. In Jungian terms they are his “anima” his inner feminine spirit. Just as women are angels or whores in the masculinist imagination, the disabled are sacred or profane. Disability as figuration is not only adolescent as I said above, its also a reaffirmation of ableist taxonomies. Presumably when Bly wakes up and feels alone, his retarded children have gone back to the asylum. 

In Charles Simic’s poem “The Initiate” disability functions as both spiritual and political stigma:

The Initiate

St. John of the Cross wore dark glasses
As he passed me on the street.
St. Theresa of Avila, beautiful and grave,
Turned her back on me.

“Soulmate,” they hissed. “It’s high time.”

I was a blind child, a wind-up toy . . .
I was one of death’s juggling red balls
On a certain street corner
Where they peddle things out of suitcases.

The city like a huge cinema
With lights dimmed.
The performance already started.

So many blurred faces in a complicated plot.

The great secret which kept eluding me: knowing who I am . . .

The Redeemer and the Virgin,
Their eyes wide open in the empty church
Where the killer came to hide himself . . .

The new snow on the sidewalk bore footprints
That could have been made by bare feet.
Some unknown penitent guiding me.
In truth, I didn’t know where I was going.
My feet were frozen,
My stomach growled.

Four young hoods blocking my way.
Three deadpan, one smiling crazily.

I let them have my black raincoat.

Thinking constantly of the Divine Love 
and the Absolute had disfigured me.
People mistook me for someone else.
I heard voices after me calling out unknown names.
“I’m searching for someone to sell my soul to,”
The drunk who followed me whispered,
While appraising me from head to foot.

At the address I had been given.
The building had large X’s over its windows.
I knocked but no one came to open.
By and by a black girl joined me on the steps.
She banged at the door till her fist hurt.

Her name was Alma, a propitious sign.
She knew someone who solved life’s riddles
In a voice of an ancient Sumerian queen.
We had a long talk about that
While shivering and stamping our wet feet.

It was necessary to stay calm, I explained,
Even with the earth trembling,
And to continue to watch oneself
As if one were a complete stranger.

Once in Chicago, for instance,
I caught sight of a man in a shaving mirror
Who had my naked shoulders and face,
But whose eyes terrified me!
Two hard staring, all-knowing eyes!

After we parted, the night, the cold, and the endless walking
Brought on a kind of ecstasy.
I went as if pursued, trying to warm myself.

There was the East River; there was the Hudson.
Their waters shone like oil in sanctuary lamps.

Something supreme was occurring
For which there will never be any words.

The sky was full of racing clouds and tall buildings,
Whirling and whirling silently.

In that whole city you could hear a pin drop.
Believe me.
I thought I heard a pin drop and I went looking for it. 

Presumably Simic’s narrator, searching for the pin does so on his hands and knees, groping, for we’ve already been told he’s a blind child:

I was a blind child, a wind-up toy . . .
I was one of death’s juggling red balls
On a certain street corner
Where they peddle things out of suitcases.

The city like a huge cinema
With lights dimmed.
The performance already started.

So many blurred faces in a complicated plot.

 

Of course Simic doesn’t mean blindness as blindness. He means it as abjection and stigma. He means it as a dark force from on high. The narrator catches his blindness from St. John of the Cross who’s wearing the signature dark glasses of all blind beggars. The entire city becomes a mise en scene where blindness and disfigurament are played out against the horrors of modernism. In the end our man who is blind in spirit is left reading the pavement with his fingers in search of a pin. In his essay “In Praise of Pins from Tool to Metaphor” Jaap Harskamp suggests that the pin is:

“a constituent part of Adam Smith’s capitalist theory on productivity and the division of labour, a sharp symbol of European social criticism on the degradation of industrial life (the production of pins and the promise of progress became a hotly debated issue), a literary metaphor for female oppression and subordination and, last but not least, a weapon in the campaign for women’s liberation. In French literature of the later nineteenth century in particular, female insubordination became intertwined with references to needlework. There are of course many examples of virtuously stitching women, but allusions to pins and needles, sewing and knitting, tended to bear a negative relationship to the picture of domestic bliss which they appear to evoke. At the same time, the story of the pin points to some complex patterns in the embroidery of European, i.e. Anglo-Dutch and Franco-Scottish interaction and communication.” 
 
Simic’s poem leaves its narrator wholly in the grip of helplessness and horror—but these circumstances are filtered through blindness and disfigurement as metaphor. One wants to say: sometimes a pin is just a pin. 

Disability, Identity, and Phantom Acceptance

In his canonical book Stigma: Notes on the Management of Spoiled Identity, Erving Goffman observed that the disabled are managed by the non-disabled with “phantom acceptance”–a dance of sorts where the disabled must replicate with every gesture the provisional codes of acceptance that “stigma management” has offered. Goffman puts it elegantly:

 

“The stigmatized individual is asked to act so as to imply neither that his burden is heavy nor that bearing it has made him different from us; at the same time he must keep himself at that remove from us which assures our painlessly being able to confirm this belief about him. Put differently, he is advised to reciprocate naturally with an acceptance of himself and us, an acceptance of him that we have not quite extended to him in the first place. A PHANTOM ACCEPTANCE is thus allowed to provide the base for a PHANTOM NORMALCY.”

 

People of color, LGBT folks, women, all those who hail from historically marginalized positions know this dance and fully understand their precarious position where phantom acceptance and phantom normalcy are concerned. The unspoken but implicit rules of discourse are famous: your phantom acceptance is conditional. Speak too passionately and you're “uppity”; a bitch; or a “bad cripple”. Contrarian opinions will disrupt the expectations that go with false acceptance. The burden borne by the uppity cripple is two-fold: (s)he must perform or conduct “identity management” at all costs; (s)he must negotiate the limits of the false acceptance that's been extended to her. But above all else (s)he must never raise her voice.

 

I've had a career teaching at 4 universities and have worked in the non-profit world as well. I've watched the disabled struggle with phantom acceptance and identity management in hundreds of settings. Over time I've come to believe the single biggest reason the disabled are unemployed at staggering levels has everything to do with the hoary circumstances Goffman outlined over fifty years ago. It seems some books just don't wear out.

 

Not long ago someone in a committee meeting called me a bully. I was speaking passionately but without vulgarity, ad hominem attacks, or meanness. But there it was: I'd stepped over the phantom acceptance identity management line–the invisible but ever present stigma trip wire of Goffmanism. I was officially uppity.

 

I was badly bullied as a child. I've written about it in two of my memoirs. I was a blind kid attending public school long before the Americans with Disabilities Act. I was beaten on the playground, taunted in the hallways, ostracized by both teachers and children. I've never forgotten what it felt like to be red faced and weeping alone in the woods. Someone who calls me a bully is of course outing my phantom acceptance but also demonstrates a failure of empathy. As a disabled person who teaches I always feel the implicit connection with my colleagues and students who negotiate daily around the Goffman wire. Bully is a synonym for uppity, which means something more than arrogance–in its original usage it meant a woman who presumed to climb beyond her proper station. I'm no bully. But just try saying it out loud under the great phantom circus tent.

Today Show and Guiding Eyes: It Takes a Village

If you have been watching NBC’s Today Show recently you know about “Wrangler” the guide dog puppy from Guiding Eyes for the Blind. In an unprecedented TV event, the cast and crew of  Today is raising a puppy who may one day become a guide dog for a blind person. I have more than passing interest in this because I’m a graduate of Guiding Eyes and I’ve traveled around the world with three remarkable yellow Labrador Retrievers. I’m alive today because of the intelligence and loyalty of my guides. Watching Today I’m heartened by the cast and crew’s enthusiasm for the guide dog movement and I’m reminded that it really does take a village to breed, raise, and train every single service dog.

The village is filled with astonishing people. Not everyone can deeply love a puppy for over a year and then give it back to the guide dog school. Not everyone can martial the discipline to train a puppy to have manners and fully understand a range of commands. And while puppy raisers don’t actually train future guide dogs in the intricacies of traffic work, they do prepare the pups by exposing them to the hustle and bustle of the world, giving them a foundation of confidence. When the puppies return to Guiding Eyes they’re ready to learn. And ready to rely on their own assurance and motivation.

When I travel with my guide people often ask me questions. Though many folks know guide dogs exist, few have ever seen one in person. This is because blindness is a low incidence disability. In truth there aren’t many guide dog users in the US. We’re a minority’s minority. There are roughly 12 guide dog schools in America and approximately 15,000 guide dog teams. Though the sight of a blind person and guide dog walking confidently in traffic is inspiring and holds a place in the public’s imagination, there aren’t as many of us as you’d think. Given that working with a professionally trained dog gives blind people an edge in traffic, and owing to the fact guide dogs are offered free of charge (despite the hefty cost of their training) I think the partnership between Guiding Eyes and Today is truly significant. More people, blind and otherwise need to know about the guide dog movement.

As I say, people ask me questions. “How does your dog know when to cross the street?” Guide dogs don’t make that decision, their blind handler does. What a guide dog does is remarkable: she evaluates the wisdom of the command. If it’s not safe to cross she won’t budge. This is called “intelligent disobedience” and it represents the marriage of a dog’s instinct for self-preservation with sophisticated training. It takes a dog with oodles of confidence to make life or death decisions.

“When your dog gets old what happens to it?” (This is a frequent question and it can happen anywhere—in an airport, riding in a taxi.) You can keep your guide dog as a family pet when it grows old. If your circumstances don’t allow for this, the guide dog school has a list of loyal puppy raisers and volunteers who will lovingly look after a retired guide. They are doted on.

“Is your dog trained to protect you?” (People think blindness means you’re especially vulnerable. This question has more to do with imaginary fear than reality.) No. Guide dogs aren’t trained to attack people. On the other hand, once, about ten years ago, while I was waiting for a bus rather late at night, a drunk lunged toward me making exaggerated Frankenstein noises. My guide dog at the time was “Vidal” and he stood up on his hind legs and let out a ferocious bark.

Vidal wasn’t having any of that nonsense. The drunk shrank into himself. And just then the bus pulled up. The driver had seen it all. “Give that dog a steak when you get home!” he said.

I became a guide dog convert long ago. I believe a confident and tireless canine companion offers advantages to navigating with a white cane. I think more blind and visually impaired people need to know about the services offered free of charge by America’s best guide dog schools. I’m heartened to see NBC and Guiding Eyes team up to share a guide dog puppy’s story. Go get ‘em Wrangler!

 

 

 

 

With My Guide Dog in Italy

My dog follows me into sleep. I dreamt of her while in Venice. 

By day we floated on the Grand Canal, at night I swam with her in a New England lake. 

Animals are the key to all the secrets of the subconscious. 

Corky followed me up a slope of raspberry bushes. 

Beautiful flowering trees gleamed just out of reach. 

This is how it is to be happily attached to your guide dog. 

We rode a train to Verona. She looked out of the window as dogs do. 

I thought, “let reality weigh itself”—with Corky I am lighter. 

This is how it is. 

I was breathing lightly; the April light of northern Italy falling on my eyelashes. 

Hey Disabled Dude, Can I Ask You Something?

“How did you get that way?”
“How many fingers am I holding up?”
“How do you dress yourself?”
“How do you find the toilet?”
“Can you see what I look like?”
“Who selects your clothes?”
“How do you know people aren’t cheating you?”
“How do you watch movies?”
“Can I pray for you?”
“Do you know my friend X who is also blind?”
“How do you know where you’re going?”
“How does your dog know when to cross the street?”
“Do you have a girlfriend, boyfriend, etc.?”
“Do you really have a job?!!”
“Are you a veteran?”
“Were you always like this?”

Rinse and repeat. 

Hey Disabled Dude, Can I Ask You Something?

“How did you get that way?”
“How many fingers am I holding up?”
“How do you dress yourself?”
“How do you find the toilet?”
“Can you see what I look like?”
“Who selects your clothes?”
“How do you know people aren’t cheating you?”
“How do you watch movies?”
“Can I pray for you?”
“Do you know my friend X who is also blind?”
“How do you know where you’re going?”
“How does your dog know when to cross the street?”
“Do you have a girlfriend, boyfriend, etc.?”
“Do you really have a job?!!”
“Are you a veteran?”
“Were you always like this?”

Rinse and repeat. 

Disability Now

In the blink of an eye it will be the 25th anniversary of the Americans with Disabilities Act. Within the borders of the USA the ADA has been praised, excoriated, upheld in courts, crushed in courts, adopted as a model for future design, ignored and labeled as an “unfunded mandate”. In short, like many other political and legal developments in American history, the ADA is as tall and curvy as Mt. Rushmore. You can salute it; hurl obscenities at it; ignore it; or argue about the wisdom of carving it in the first place. Many folks both within and outside the “disability community” have done all these things, often sequentially.

The ADA is a human document. It’s the horse designed by committee. It’s wildly imperfect. It grants churches immunity. When you see a church, mosque, temple, or synagogue with a wheelchair ramp you’re looking at a house of worship that has done what’s right despite the embarrassing exception. It’s likely of course that someone in the “flock” has a disability and maybe, just maybe, has deep pockets. But as I say, the ADA is imperfect and it’s critics will remind you of it at every possible juncture. The biggest criticism is that the disabled are not any better off when it comes to employment than they were before the act. Statistics about disability are notoriously hard to gather but the static unemployment figures seem conclusive: between 60 and 80% of the disabled (who are of working age) remain jobless though the ADA has been the law of the land for a quarter of a century. “You can’t legislate morality” goes the refrain. True enough. But you can give morality a fighting chance: remove barriers, make accommodations “reasonable” and encourage attitudinal changes. These are the triumphs of the ADA. People with disabilities may not be fully in the village square but the expectation, the presumption they should be is understood.

I say “the presumption” is understood. Disabled people might come here one day. I remember checking into a motel in Santa Cruz, CA some three or four years after the ADA was passed. I had my guide dog with me. The manager was very excited to see me. He had a telephone relay device for the deaf and was eager to bring it to my room. I was so touched by his enthusiasm I didn’t venture to explain why it wouldn’t be helpful for me. I thanked him profusely. I put it in the closet. It was the presumption that mattered. The managed had known a disabled person would appear one day.
And there I was. As I say, it’s this presupposition cripples will appear at your door that is the ADA’s signature benefit. One may quibble about the value of this but I won’t. I’ve lived much of my life without civil rights and I know the difference. When I was in graudate school at the University of Iowa back in the early 1980’s a professor of literature told me I couldn’t be in his class if I was blind. Today’s professors may be equally ableist but in general terms they won’t come right out and tell you to go away. They will evince a moue of disgust. They’ll tell you what an inconvenience you are. But the chances are good they won’t get away with it. I won’t say it’s impossible. At too many colleges and universities attitudinal barriers and structural barriers remain in place and while the Department of Justice is handing out hefty fines to many insitutions of higher education, transformations within the ivory tower are painfully slow.

The Los Angeles County Jail is the largest psychiatric hospital in the US. 25 years after the ADA we’ve achieved a great national disgrace. People with psychiatric conditions or autism or learning disabilities are frequently abused by police.
Rehabilitation programs for people who’ve suffered spinal cord injuries have been scaled back; wounded veterans don’t get the resources they often need; budget cuts imperil orientation and mobility services for the blind and visually impaired; public transportation is reduced; wheel chair users see their chairs destroyed by airlines; service animal users are told they can’t enter the shopping mall; the disabled with good resumes are told “that job was just filled”. It has been a quarter of a century since the ADA and in all too many cases things are as bad as ever.

Conservatives say getting rid of Social Security Disability payments would impel the disabled into the work force. To this I always say: “try showing up with a white cane and sunglasses and see how quickly the Widget Company will hire you.” And to this I say: “do you want the blind begging in the streets?” Some may want this. Most I presume do not. Embarrassment isn’t completely passe in the United States. Not yet.

The biggest single obstacle to employment for the disabled remains the attitudinal barrier. Even though the Social Securithy Administration made it possible some fifteen years ago for the disabled to keep benefits while transitioning to work the jobs haven’t appeared. Could it be that neo-liberalism will finally command all citizens, disabled or not, to become sole-proprietors—entrepreneurs, consultants, purveyors of cottage industry commodities? Perhaps. But if we were to honor the ADA at 25 a push toward creating material tax incentives and accommodation resources for buisnesses that hire the disabled would be a signature accomplishment. 

You can’t legislate morality but you can make it profitable. 
  

February and Silence

Spring is under the snow, improbable as lizards and flowers here in the north. Spring with its tonic sub-categories, the green that appears like smoke in the branches, the trunks of trees silver as knives in a pawnshop, even the breath is renewed, a reconciliation with the air itself. I think this year I will stay silent long into May. Enter the garden like an old drunken captain who long ago was expelled from the sphere of his senses but who listens anyway for the stray music.  

Disability and Traffic

It has always been my chief fear I’ll be struck by an automobile. Each of us has a signature fear. Franklin D. Roosevelt was afraid he’d be consumed in a house fire, his terror all the more ghastly because of paralysis. Disability dread isn’t casual like the proverbial spider in the bathtub. It’s substantial and inherently realistic and one learns to carry it as some carry memories of bad divorces or the traumas of violence. 

This morning I read of the sudden death of Ben Woolf a young television actor who recently became well known for his role on the hit series “American Horror Story”   Ben Woolf was born with pituitary dwarfism and accordingly was a man of short stature. On American Horror Story he played goulish figures—“freaks” in the manner of Todd Browning, and I’ll withold my opinion about whether he was exploited or not but merely quote from today’s New York Times:


Mr. Woolf, diagnosed with pituitary dwarfism when he was a child, became known for his work on the FX series “American Horror Story,” an Emmy-nominated show that features an ensemble cast. It has new characters each season and a new story line and settings that have included a haunted house, a 1960s mental hospital plagued by demons and extraterrestrials, a coven of witches, and a 1950s carnival “freak show.”

In the first season Mr. Woolf played the Infantata, the murderous ghost of a baby-turned-Frankenstein monster by his grieving parents, and in the recently concluded fourth season he played Meep, a sideshow performer with a one word vocabulary and a gift for biting the heads off live animals.

Standing just over four feet Ben Woolf would be hard to see in a busy traffic situation and that’s the tragic story as he was clipped by a vehical’s side mirror while crossing the street and knocked unconscious. He died of a stroke. 

As a guide dog user I’m always, and I mean entirely thinking about the street ahead, the one I must cross. I think about a hundred things. The drivers who are naturally incompetent; those who are medicated with over the counter drugs—drugs that were formerly available only by prescription, and which, when taken without supervision, can make a person foggy. Don’t forget the drivers who are texting; who fumble for dropped lipstick; talk on their phones; spill coffee in their laps. Then there are the habitual scofflaws—the traffic light runners, the acceloristas. Blind walking requires (in the words of Lou Reed) a busload of faith to get by. In other words, to overcome my fear and navigate the day, I must imagine people are competent. It’s like the adumbrations of faith one must martial when flying on an airplane. You tell yourself the pilot is competent, the mechanics are heroic, perhaps and likely against contrary evidence. You need to get someplace. You certainly can’t stay home.

Ben Woolf died in traffic. The driver who struck him stopped. It was a genuine accident. And I’m haunted by “Infantata” the ghost of the dread streets.