Old White Finn’s Homage to Black Disabled Lives Matter

planet of the blind

Some of the most important intersectional human rights work being done in the United States comes from Black Disabled Lives Matter. This work doesn’t have analogies. Strictly speaking it’s not a slogan, only the meretricious and ill conceived parodies (Blue Lives Matter, All Lives Matter) are slogans, for DBLM is proleptic, it materializes objections to disabled black human rights by stating what should be true but isn’t. Blue lives already have the money and power; “all lives” means white able bodied life and we know it has the bacon.

I’m a 65 year old Finnish-American blind writer and activist. I don’t know what it’s like to be black and disabled. As a guide dog user I’ve been prevented from entering public accommodations. I’ve been denied cab rides. When I was unemployed a social worker told me I’d never find another job and I should be content to collect social security disability. I’ve been treated badly by airlines, academics, bus drivers, weirdos on the streets and even once in a church. But no one is generally out to shoot me. And because of my cheerful whiteness I’ve even been approached by cops who wanted to help me. (They thought I was lost. You know all blind people are permanently lost.)

If you’re disabled and black you’re pre-judged by systemic racism and ableism. Disability is cheating. Blackness is nascent criminality. Illness is a civic burden. Added together: the black disabled must be locked away. In public they can be tased, shot, whatever, and before you say, “why is this different from non-disabled people of color” let me add that it isn’t but disabled people of color are imagined by racist and ableist society as not ever belonging in public. They are rolling, tapping, ventilating reminders of all civil rights history. Hence they make even some black people uncomfortable. Kudos to Rev. Al Sharpton for mentioning black disabled lives at George Floyd’s funeral.

One of the best things happening is that Black Lives Matter means black disabled lives matter. BLM is amplifying the voices of black disability activists who have critically important stories to tell. Check out the Black Lives Matter page “Black, Disabled and Proud : College Students with Disabilities: https://www.blackdisabledandproud.org/black-lives-matter.html

There you can read Darnelle Moore’s excellent piece on racism as a mental health trigger. Moore writes about the horror and exhaustion of systemic racism.

Check out the Black Lives Matter Washington Disability Rights page: https://www.disabilityrightswa.org/2020/06/01/black-lives-matter/
Here you can read about BLM and disability rights where policing is concerned:



If you know your history you’ll remember that the Black Panther Party was a significant promoter of disability rights and inclusion. If you know your history you know that Brown vs. Board of Education opened the doors of public schools for disabled kids like me. The intersections are tight between civil rights movements. But if there’s a moment beyond history—whatever we mean by history in the making—black disabled activists are pushing for true universal rights. They speak for veterans, the elderly, those who steer their chairs with breathing tubes, the guide dog teams, the mentally ill, the homeless, the unemployed, the deaf and non-speaking.

Now being blind I’m terrible at posting videos and I even struggle with pasting links but please check out the work of Vilissa Thompson, LeRoy Moore, and this terrific article published just two days ago at The Guardian; https://www.theguardian.com/commentisfree/2020/jun/09/sandra-bland-eric-garner-freddie-gray-the-toll-of-police-violence-on-disabled-americans

In creative writing circles we’re asked, all of us, the old question, “who are you writing for?” I’ve never known how to answer this. I don’t think I write for blind people only. Certainly not cis gendered white men; not ableist or racist or homophobic types. I think though that today I’m writing for an old friend who is black and trans and has a guide dog.

And yes, nothing here is exhaustive, there’s so much more to be read and said. And yes I’m in total awe of disability activists everywhere.

Author: skuusisto

Poet, Essayist, Blogger, Journalist, Memoirist, Disability Rights Advocate, Public Speaker, Professor, Syracuse University

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